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How long can you take rifampin for bart?

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Lyme Disease
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Posted 2/5/2021 4:00 PM (GMT 0)
I have had bartonella for decades now, which causes a lot of neuropsychiatric symptoms (anxiety, depression, brain fog), as well as other symtoms like fatigue and neuropathy. I have been a little over 6 months into treatment for it, with 600 mg once daily of Rifampin and 500 mg once daily of Azithromycin. I am much better than i was before, but i'm interested to know, for how long should i still treat with Rifampin? I seem to tolerate Azithromycin better and i can't get Rifabutin. I'm from northern Europe, here we don't have LLMDs and nobody takes these infections seriously. If someone has taken Rifampin daily for a year or more, i want to know, so i can reassure myself that i'm not doing more harm to myself with Rifampin. Are there any long term effects of taking Rifampin?
Posted 2/5/2021 4:58 PM (GMT 0)
I've been on rifampin daily for at least three years now without any issues.
Posted 2/5/2021 5:37 PM (GMT 0)
Whats your dose, WV Mike? Do you have any kidney or liver aches? Do you take regular liver and kidney blood tests?
Posted 2/5/2021 9:10 PM (GMT 0)
I used it with Doxy and Azithro for around 6 months but found my liver enzymes going high and lots of discomfort in that area so had to stop.

there is quite a bit of individual variation with the response to and metabolism of antibiotics.
it's worth getting liver function tests done privately if you can every couple of months.
I'm in the UK and these are around £50 a time via online test services like Thriva and Medichecks

BTW - several Bart-literate LLMDs think Clarithromycin often works better than Azithro for Bart - eg Burrascano in his Guidelines. might be worth changing that up if you are not progressing.
Posted 2/5/2021 10:30 PM (GMT 0)
Started at 600/day now at 300/day. Yes I get liver pains but so far levels have been good.
Posted 2/6/2021 1:57 AM (GMT 0)
Rifampin messed with my adrenals and stained my teeth. My dentist was able to scrape most of it off though.

The biggest problem with rifampin was that my bartonella infection was resistant to it and it just didn't work.
Posted 2/6/2021 6:03 AM (GMT 0)
i only lasted 4 months at full dose because of adrenals and liver function ....llmd says 6 month max wait 2 yrs the maybe try again. fwiw best bart gains was on zhang combo hh2/ allicin at full dose...
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