Air hunger for 8 months possibly mycoplasma

Air hunger is a hallmark babesia symptom. The other infections can cause it as well, but given your constellation of symptoms it would make a lot of sense to very closely explore babesia. Lab testing isn't great for picking it up. One indirect way of testing for underlying babesia infection is taking antiprotozoals and seeing if you get a flare in symptoms. If you do it is a strong indicator that you have babesia (or some other protozoal infection).

I think this article features very good analysis on babesia and its symptoms. Imo air hunger and many of the other symptoms are linked to the infection affecting the autonomic nervous system. Def recommend checking it out and seeing if it somewhat matches your experience: http://conniestrasheim.org/blog/2017/3/6/a-deep-look-at-the-symptoms-of-six-major-lyme-related-infections

Post Edited (sebreg) : 10/23/2018 2:28:14 PM (GMT-6)

My bad, I think I cut off part of the address link when I copy/pasted. I just updated it, should work now.

Hi and welcome to our forum,
Sorry that you are having these symptoms.

It would be wise to seek out an llmd. You can do that here by enabling your email, that way you can receive responses from members. Then you would start a new post"Seeking an llmd in your area"

You can also search at ilads.org and lymedisease.org and globalymealliance for llmd's.

Like the others said ...air hunger is classic symptom of babesia. But many co infection symptoms overlap.

We do encourage you to check out our"New to Lyme" start here thread at the top of the page.
It has good information on Lyme, testing, symptoms and more.

Take care and I hope you get some relief from the air hunger soon.

Brent2254 said...
The air hunger and fatigue is debilitating I believe I'm on to something considering I've been bitten by ticks

I suggest you do an Igenex Lab WB lyme test: Lyme WB IgM and IgG for total of $250.
You call the lab and they send you a test kit.
Fill out the lab req and get a Dr sign it. Get blood drawn and fedex it to Igenex. Three weeks later results are sent to signing dr.

You should consider booking an appt with a LLMD for evaluation.

If you’re interested in finding a LLMD, start s new thread: “Searching for LLMD in/near______” and fill in the blank with your location.

Then enable your email option so members can send you names of llmd’s. We don’t post the names here for their privacy and protection.

Hi,

I know this is an old post but I’ve found myself in the exact same situation. Did you ever find out what caused your symptoms? Did you get better?

Thanks

Hi!

Thanks for your message. I’ve had an ECG and my lungs checked. Getting enough oxygen and nothing to do with heart or lungs or so it would seem. Got a covid test when I first got symptoms (breathlessness and swollen glands) last year (negative), also tested for glandular fever (negative).

Also been told it’s anxiety however I’m a little doubtful as I have no other symptoms or behaviours that suggest anxiety (could be wrong). The swollen glands in addition to the breathing issues lead me to believe it’s infection over mentality. I know little about things like lymes etc until I discovered this post last night. I don’t even know if my (uk) doctor can actually test for parasitic diseases or infections.

Any advice is greatly appreciated.

it may not be babesia. I also have terrible breathing for years and finally figured out its actually from lyme- the new person I see told me it is that the lyme aggrevates the nerves aorund my heart and causes the nerves to squeeze this is why none of the babesia treatments helped. I am doing chinese medicine approach now look up Gu syndrome and classical pearls- but you have to do it with someone trained in it. I feel for you- I can relate it is hell. I wil let you know if I get better I have just started this new treatment. I tried buhner herbs and antibiotics prior for years and it didnt help.

Girlie said...

Slth33 said...
Hi!

Thanks for your message. I’ve had an ECG and my lungs checked. Getting enough oxygen and nothing to do with heart or lungs or so it would seem. Got a covid test when I first got symptoms (breathlessness and swollen glands) last year (negative), also tested for glandular fever (negative).

Also been told it’s anxiety however I’m a little doubtful as I have no other symptoms or behaviours that suggest anxiety (could be wrong). The swollen glands in addition to the breathing issues lead me to believe it’s infection over mentality. I know little about things like lymes etc until I discovered this post last night. I don’t even know if my (uk) doctor can actually test for parasitic diseases or infections.

Any advice is greatly appreciated.

Welcome to the forum!

Your Dr should be able to test you for tickborne diseases - via Armin Labs.
I will look up the contact info and post it for you.

Here it is
https://arminlabs.com

Many forum members get the Elispot and the Immunoblot.

@Slth33 - unfortunately, UK GP's ( primary care physicians ) will only test via Borrelia C6 Elisa at a UK central Lab
if that is positive - then they will order a western blot from the same Lab

this test method does not reliably detect the most common species of borrelia that cause lyme in Europe B. Alfezii or B. Garinii and is established to have only 20-50% sensitivity by multiple studies ie misses 50-80% of cases.
( so even if you have lyme your chances of getting a positive test via this method are worse than a coin toss )

UK GP's are essentially clueless about Lyme and know absolutely nothing about co-infections or other Lyme-related complications.
They follow guidelines written by their governing organization NICE and those are based on the USA's CDC guidelines which in turn are aligned with the flawed and now withdrawn IDSA guidelines.
The logic is flawed and it's a complete mess.
if you had a known tickbite with a bulls eye rash you may fare slightly better - as that is considered diagnostic in the current guideline.

I did manage to get a UK GP to prescribe 3 months of doxycycline - but only after 2 specialists wrote letters to them saying that they thought it was the best course of action in my case - and I had a positive test result from Armin labs ( which they viewed with suspicion ) - they played pass the parcel with my case as no -one wanted to be the person prescribing long term antibiotics as they can get in trouble for deviating from the (very poor) guidelines.

there are private doctors in the UK who treat Lyme - but have to keep a low profile because of the above situation.
it really is a messed-up situation. i think its ultimately an overflow of the USA controversy - but because there is strong centralized control of NHS primary care - its actually worse in the UK.
lists can be obtained I think through Lymenet.org

You can get tested at Armin without a UK Doctor - see their site for details - via a UK company called IONM - that's what i did.
be prepared to do several tests for Lyme and co-infections
i had some negative Lyme results and some positive - so its worth using several tests for Lyme due to the sensitivity issues that exist with all tests
i was positive on the tick plex test which does include antigens for B. Garinnii and B Alfezii - but not on the tests that use only B. Burgdoferi - i was negative on the Elispot and Elisa - positive ELISA for Mycoplasma Pn.
Armin labs have a symptom checker questionnaire which is used to help you decide which co-infection test to go for

i am happy to help in any way i can as navigating this in the UK was a nightmare

Post Edited (Garzie) : 3/4/2021 11:48:56 AM (GMT-7)