How would you know if you have MCAS? Im so confused and so overwhelmed. JUST started to work with a clinic. My MAIN problem is that I have symptoms ALL the time so I never know what is doing what - I am always activated and its sending my body into constant over-drive. I have to seek out medication I wouldnt normally take because my body is in hyper-drive and wont settle down...
This is what they told me to do for now:
Take CoraCalm
Resveratrol
NeuroProtek
Also - WILL marshmallow root help absorb toxins?
saraeli said...
I believe it is neurological inflammation. The things that have helped me the most with neurological inflammation are curcumin and DNRS limbic system retraining. Others rave about magnesium (especially magnesium threonate) and L-theanine. I also benefit from ashwagandha, although different adaptogens work better for different people. CBD and other cannabis products can have huge benefit, once you find the right strain and dosage.
I have much worse inflammation when my immune system is being stimulated. People talk sometimes about the distinction between immune-boosting supplements versus immune-modulating supplements, and for me it's important to stick with the immune-modulating category. Vitamin C, various medicinal mushrooms, bromelain, and zinc work well for me. Immune-boosters like elderberry and echinacea cause cytokine activity for me.
Another thing to look into is whether you have mast cell activation syndrome (MCAS), which can cause tingling sensations and strong reactions to supplements, and is relatively common with Bartonella and mold exposure. Symptoms can include skin symptoms, nervous system symptoms, anxiety, digestive upset, respiratory symptoms, brain fog, unrelenting herxes, sensitivities to supplements, and other issues. If these happen in response to common histamine triggers (fermented foods, heat or cold, showers, stress, exertion, mold, allergens, environmental toxins and fragrances, high-histamine foods or supplements, etc.) then it could indicate MCAS. It took me years to figure out I had MCAS because I was constantly exposed to triggers (certain supplements and foods I consumed every day) and therefore constantly had the symptoms. Plus people think of MCAS as skin symptoms and traditional allergy symptoms, whereas for me it's primarily brain fog, nervous system issues, and GI issues, so I didn't recognize it right away. Treating it was simple once I figured it out, so it's worth looking into.
Have you looked at the Neil Nathan book Toxic? I recommend it to anyone who suspects Bartonella or mold exposure. Recommendations from that book took me from 25% to 85% reliably.