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Heart Stopping Feeling/Palpitations, Babesia Die-off?

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Posted 7/2/2020 7:11 PM (GMT 0)
Hey all, so grateful that this community is here! I have been having a hard time and wanted to see if anyone else has experienced what I have been lately...

I think I have a hard time with die-off, but I don't have an issue with MTHFR.
I tried to introduce malarone two months ago and had trouble taking even one pill every day because I would feel awful--so I did every other day. Just to get an insight on my situation, I rarely get out of bed except on occasion if I feel I can, I go to the couch and lay down or sit with family in the kitchen for meals if I'm able. I've tested positive for both bartonella and babesia, but not lyme--if that means anything.

I've now started taking 1/4 of an azithromycin pill every day upon my doctors instructions with the malarone, and have been having horrible palpitations. If I get up out of bed at all, even to use the bathroom it feels like my heart stops for a few seconds and then starts again. This happens multiple times throughout the day, even sometimes when I am laying down. I am also experiencing typical babesia symptoms, with shortness of breath, fatigue, dizziness, headaches.

This has happened to me before, but not on this level. I have had a whole heart workup done before starting the azithromycin, and there were no abnormalities. My doctor says it might be from food, but I eat fairly clean, mostly whole foods and no dairy, gluten, sugar, soy. I'm assuming these palpitations/heart stopping feeling is from die-off? I am already on such a low dose of medication, I don't know what to do. I can't handle increasing, but this sucks.

Is this familiar to any of you guys? Any advice? How did you guys handle it?
I'm doing epsom salt baths, lemon water, glutathione, juicing, and fish oil.
Posted 7/2/2020 10:02 PM (GMT 0)
I think there's even a risk of long qt even if you don't have a heart issue....just not as high risk.


All antibiotics have some risks - it's good to know what they are...and make a decision based on the information.

I will not take the fluoroquinolone antibiotics - because there are several risks...attached to them....even though they are apparently the best for bartonella.

Bactrim scared me - after I read many personal accounts about Stevens Johnson syndrome.

So, you weigh the risks with the benefits...and decide.
Posted 5/21/2021 3:11 PM (GMT 0)
Hi I'm new and experiencing this now. Did it resolve for you?
Posted 5/21/2021 4:57 PM (GMT 0)
Mepron and I think malarone lower your coq10 levels. I think supposedly coq10 might be contraindicated with mepron, but my doc doesn’t think much of that though other respected docs make more of it. Anyways for me taking coq10 on days when I didn’t take mepron (which I think is sort of partially the same med as malarone) helped with the added lethargy. But I have documented issues with my mitochondria (which coq-10 helps). I mentioned coq10 because some people take it to help their heart. I just take it for mitochondria.

Binders for die off also helped some.

Post Edited (Bailey) : 5/21/2021 11:01:20 AM (GMT-6)

Posted 5/21/2021 5:07 PM (GMT 0)

stobes said...
Hi I'm new and experiencing this now. Did it resolve for you?

Some of my dysautonomia issues/pots issues got better, but none of them have completely resolved. From what I gather, I’m an unusually complex case and most people in my local Lyme support group and other patients at my doc office get much much better. The three other cases in my Lyme group who were probably as sick as me have become healthy and gone on to return to pretty normal life, two to very athletic lifestyles.
Posted 5/21/2021 8:20 PM (GMT 0)
stobes, I actually still have dysautonomia and heart palpitations, but not nearly as bad as when I posted this a year ago. I think it depends on how sick you are and how you handle die-off. My heart palpitations have improved very slowly over time and with a lot of ups and downs. Some days are still better than others, but I'm able to get out of bed and do things without too many heart issues--but they will pop up with more intensity every now and again or when I increase my medications. I still get tachycardia and heart squeezing/stopping sensations, but not to the point where I think it might be an emergency. I still get up sometimes from a sitting or laying position and my heart goes crazy, but its not as intense as it used to be, and isn't a daily thing anymore. It took months for me for it to get to a place where its not constant, but it may be different for you. I'm also still fighting these infections. Given how sick I was before I was diagnosed and the speed of progress I've made over the past year and a half, I would say I have another one to two years before I'm really able to function normally, but who knows. My heart goes out to you and your struggles because I completely know how it feels to be where you're at. Unfortunately these infections can take a long time to heal from, but you're not alone. It's hard to say how long you will have these issues, but this has been my experience so far.
Posted 5/21/2021 8:22 PM (GMT 0)
Thank you all for your responses...I'm praying for all of us every day.
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