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Anyone have severe Costochondritis?????????!

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Posted 1/16/2016 8:04 PM (GMT 0)
Started my lyme IV treatment on monday and my costochondritis has come back severe. In agony. Does anyone else have this and any recommended pain relief? Ibuprofen and naproxen arent working for me
Posted 1/16/2016 10:29 PM (GMT 0)
Bump
Posted 1/16/2016 10:32 PM (GMT 0)
After I bumped this I realized I should have mentioned detoxing.

I don't have any specific remedies for relieving that particular symptom...but all symptoms of die off can be reduced or eliminated with effective detoxing.
Posted 1/16/2016 11:06 PM (GMT 0)
Costochondritis is inflamed cartilage. I always use ibuprofen and supplement with a cartilage maker of gelatin. It can take up to 6 weeks to heal so do not be anxious.

I know how badly this hurts and the first time I had it I went to the doctor thinking it was a heart attack.

Mine was from heavy lifting, and I'm a girl.

No straining or lifting and patience. Sorry, I know how badly this hurts.

~Annette
Posted 1/16/2016 11:36 PM (GMT 0)
I can only help you by saying that you are not alone. It's a horrible symptom I've had since starting treatment years ago.
It comes and goes. I also get it while not on medication, haven't figured out what triggers it.

I take large doses of NSAIDs because of a spinal problem, but it still comes through. I started taking Zyflamend again (I am in no way connected to this brand, solely mentioning it out of own experience), I hope it'll work.

I can only confirm that painmeds do not help me either. Try to find a comfortable position, and if you are a woman, it is best to take of your bra if possible, it only makes it worse.

Thank tou for that supplement tip PeteZa, I'll try to find it.

I hope the pain calms down quickly Leelee...
Posted 1/16/2016 11:41 PM (GMT 0)
You can buy gelatin in the grocery store. It comes in packets and is the same Knox gelatin you make jello out of. However this is plain, individual servings and is unflavored. You can just put it in water and chug it down. Your hair and fingernails will thank you at the same time your cartilage is being helped to heal.

When I have extra money I buy the gelatin that Stephen Buhner suggests Great Lakes brand.
Posted 1/16/2016 11:51 PM (GMT 0)
Oh ok, just plain gelatin! Very easy :-)
Thank you!!!
Posted 1/16/2016 11:52 PM (GMT 0)
You are so very welcome. Happy hair growing and nails too!! An added benefit. LOL!
Posted 1/17/2016 12:37 AM (GMT 0)
Hi leelee,

So sorry you're dealing with this issue. It really sounds like a herx and I agree with Girlie about upping your detox. I was pleasantly surprised at just what increased detoxing could do for me. Maybe you can find a few things to add to your daily protocol here:

www.tiredoflyme.com/detox-methods.html


One of the things I like about Buhner's protocols is that they incorporate supplement suggestions, immune support herbs as well as recommendations to address specific symptoms.

Lyme loves our collagen. Doing things to rebuild collagen will help us heal.

Buhner recommends 1 tablespoon daily Great Lakes gelatin (he prefers pork) as part of the collagen support protocol in his new Lyme book.
Posted 1/17/2016 1:10 AM (GMT 0)
Thankyou everyone for the advice!
Girlie, thanks always for the bumps! Yeah i think detoxing will 100% help. Good job i just bought some epsom salts! Thing is, im on so many meds plus the IV abx, im on a strict protocol and im not sure what other stuff im going to be able to take! So i will have to ask my doctor!


Peteza thankyou for your reply, but im from the UK, will they sell it here?

I had costochondritis a year ago but it cleared up with naproxen. This was way before i got diagnosed. This was probably caused by lyme! This time is much much worse, i was hospitalised with it in september with the pain!

Also id like to ask, is anyone short of breath with it? My oxygen levels were extremely low so now i have to go on an oxygen machine everyday
Posted 1/17/2016 1:16 AM (GMT 0)
MarieLS thankyou for the bra tip!
Posted 1/17/2016 2:13 AM (GMT 0)
leelee

Yikes about your oxygen levels!! So sorry you need to use an oxygen machine every day.

Would you describe your breathing issue to be more like the inability to take a deep breath?
Posted 1/17/2016 3:54 AM (GMT 0)
leelee costochondritis made it horribly hard for me to breathe. It hurts to stretch your rib cage with a deep breathe because the cartilage is torn.

I had my daughter wrap an ace bandage around my chest so I would not take a deep breath. Otherwise it hurt horribly.

I have had pleurisy and I don't know which one hurt more. Pleurisy got better with antibiotics. Costochondritis just took time.

I do know that lyme loves our previous owies. It went right away to my knees because they were injuries and then it went to my lymph because that is my weak spot.
Posted 1/17/2016 3:57 AM (GMT 0)
This is the label that Buhner recommends and it is Amazon UK

www.amazon.co.uk/dp/B005KG7EDU/ref=pd_lpo_sbs_dp_ss_1/275-0955206-6900737?pf_rd_m=A3P5ROKL5A1OLE&pf_rd_s=lpo-top-stripe&pf_rd_r=14RDAA0FKS1CSXNQTYX2&pf_rd_t=201&pf_rd_p=569136327&pf_rd_i=B0008D6WBA
Posted 1/17/2016 1:33 PM (GMT 0)
I get chostocondritis when ever I herx. It makes my chest muscles so tight that it is hard to take a deep breath. I herx with everything I try. Sometimes I have to back off the treatment and let it settle.
Posted 1/17/2016 3:38 PM (GMT 0)
"leelee costochondritis made it horribly hard for me to breathe. It hurts to stretch your rib cage with a deep breathe because the cartilage is torn. "

In costochondritis, the cartilage may feel like it's torn, but it's not necessarily. It's due to inflammation:
www.mayoclinic.org/diseases-conditions/costochondritis/basics/definition/con-20024454 or just go to any online health site and look up costochondritis.
Posted 1/17/2016 4:01 PM (GMT 0)
Absolutely Traveler! It can just be stretched so it feels torn, but it is inflamed. Thanks for catching this and correcting.
Posted 1/17/2016 4:49 PM (GMT 0)
I think we all need to be checking on each other (in a gentle way, of course) to be sure that we are only putting out information that is good and solid. This forum is building it's reputation out there for such things - and how nice is it to know that's how we are seen?
Posted 1/17/2016 10:10 PM (GMT 0)
Cd3764 i can take a deep breath but the oxygen just isnt going round my body properly (well it feels like that) it was okay up until a few days into treatment so its probably just a herx!

Thanks traveler for the info
Posted 1/17/2016 10:13 PM (GMT 0)
I have asthma and suffer from panic attacks and anxiety so it could also be due to this too. I have high levels of mycoplasma pneumoniae but im not entirely sure what this is
Posted 5/21/2021 9:52 PM (GMT 0)
I thought I would add to the costochondritis notes. My first symptom was pain so severe I was in the Cardiac Care Unit for a week and they told me every day that if I lived through the night I would live through the day. I was put through every test imaginable and they could not find a problem with my heart (I believe it was Lyme) but new something was wrong since I had a massive die off of cells around the heart. I would be in and out of hospital for this pain 6 more times without any diagnosis. Finally I realized I would have to learn to live with it. I saw a physiotherapist and started doing exercises for the chest, various types of wall pushes and ultimately the problem became manageable. As I got older the problem became more problematic and the only thing that worked was chiropractic treatments on the frozen rib joints in my back. A few years ago I discovered the Backpod which for me keeps me pain free most of the time. It does basically the same thing as my chiropractor was doing. The reason I wanted to mention this is pain killers did not work for me and only the stretching of my rib joints helped.
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