My memory issues

I’ve complained about my memory here before …
Im concerned about it getting worse.

It’s time for me to do a round of my maintenance protocol.

M/W/F Ceftin/ Rifabutin/ minocycline.
Plus Tinidazole and diflucan on Th/F

I’m thinking of eliminating the mino - it hits my brain and I get very fuzzy.
Makes it hard to do my job.
Plus - I worry about permanent damage?

My memory has improved but still not great.
It was horrible a couple years ago.

Now what often happens is I’ll forget something - but if I try to remember and wrack my brain - it often comes back.

I was talking to my husband earlier and he mentioned going on a bike ride before we head out this afternoon.
I couldn’t remember where or what we had planned for the afternoon.
I pretended I knew what he was talking about and then wracked my brain trying to remember.
5 or 10 minutes later it came to me and I remembered we had planned to go for a swim at the lake.
A year ago - I’d likely not recall it at all.

Is it possible it can continue to improve?
At what point do I consider that this is as good as it gets?

I’m due to do a round of abx - I’m thinking of eliminating the mino because I really feel it in my head - so it wouid just be Rifabutin and Ceftin plus Tinidazole

Or should I take the mino too?
I’m worried about my brain getting assaulted again.

I know you can’t tell me what I should take - but just wondering what you think?

Hi Girlie,

I don't think this is as good as it gets at all.
I think your brain, like many of us, has (and continues to have) taken a big negative hit over the years, between infections and lots of medications.

Maybe I've mentioned this before, but have you looked into nootropics? They are specifically used for memory enhancement. I truly think it will help you.

There is a study about Lion's Mane for example, that states that even after quitting Lion's Mane, it will continue to have a positive effect on cognitive impairment.
(https://pubmed.ncbi.nlm.nih.gov/18844328/)

Also, a while ago I was looking at Cerebrolysin, it's very popular in Eastern Europe and Russia. It's an injection but I've read many good things about it. Maybe you can run it past Dr. J? Many people use it just to get an edge so the treatment indications certainly aren't a requirement in my opinion. https://www.cerebrolysin.com/

"Cerebrolysin is a multi-modal neuropeptide drug which improves the brain's ability for self-repair by stimulating neurorecovery."

You can buy it on rupharma.com (currently under maintenance).

I've also read good things about Alpha-GPC and Phosphatidylserine.

Here's an article that might help:

https://www.psychologytoday.com/us/blog/experience-engineering/202002/the-5-most-science-backed-nootropics-long-term-memory

Girlie said...
I’ve complained about my memory here before …
Im concerned about it getting worse.

It’s time for me to do a round of my maintenance protocol.

M/W/F Ceftin/ Rifabutin/ minocycline.
Plus Tinidazole and diflucan on Th/F

I’m thinking of eliminating the mino - it hits my brain and I get very fuzzy.
Makes it hard to do my job.
Plus - I worry about permanent damage?

My memory has improved but still not great.
It was horrible a couple years ago.

Now what often happens is I’ll forget something - but if I try to remember and wrack my brain - it often comes back.

I was talking to my husband earlier and he mentioned going on a bike ride before we head out this afternoon.
I couldn’t remember where or what we had planned for the afternoon.
I pretended I knew what he was talking about and then wracked my brain trying to remember.
5 or 10 minutes later it came to me and I remembered we had planned to go for a swim at the lake.
A year ago - I’d likely not recall it at all.

Is it possible it can continue to improve?
At what point do I consider that this is as good as it gets?

I’m due to do a round of abx - I’m thinking of eliminating the mino because I really feel it in my head - so it wouid just be Rifabutin and Ceftin plus Tinidazole

Or should I take the mino too?
I’m worried about my brain getting assaulted again.

I know you can’t tell me what I should take - but just wondering what you think?

this is happening to me now as well as the past, and it's so scary.what about herbs?or do u prefer antibiotics

“ have u ever tried l-arginine or l-ornithine? Doc says that's what's essential for removing ammonia from the brain,and I know lyme let's off tons of ammonia and so does bartonella I believe. I have not tried this yet,because if u have hsv1 or 2 or shingles, ebv it can be reactivated if u take l-arginine because that's what herpes, shingles etc. Need to multiply . I've heard ppl say they feel amazing and that their bart has greatly i.proved using l-arginine“

I took LOLA (aspartate and ornithine) quite awhile back.
That was when my ammonia tested a bit over range - that was prob about two years ago.
I can’t remember if I felt anything - good or bad after taking it.

i am not sure there is any direct toxic action on brain cells from minocycline at theraputic doses.

have not read that

on the contrary i think it has significant anti-inflammatory effects - that could be a benefit long term
some more recent research is also perhaps pointing to other anti-tumor effects that help stop the tiny tumours we all get day to day from growing and metastasising

i think the effects you are experiencing are more likely a form of herx / flare - that is so common to all of us - and not well understood.

i think if it were me i would be only marginally concerned about the possibility of long term side effects compared to the long term effects of lyme / bart infection and press on.

orbitingaround said...

Girlie said...


I took LOLA (aspartate and ornithine) quite awhile back.
That was when my ammonia tested a bit over range - that was prob about two years ago.
I can’t remember if I felt anything - good or bad after taking it.

I thought you were taking this the entire time? If you're not doing anything to combat brain fog regularly then I would definitely take at least L-Ornithine. I take 500mg a day, every day. At times I have taken more (I use the NOW brand and it says to take 1500mg a day) and didn't notice a difference when I increased. My LLMD knows I take it. It's great for brain fog, but Burbur Pinella is too.

Then you could try other things for neuroplasticity...even just jigsaw puzzles, crosswords, reading more, learning a new language, stuff like that. Try doing things with your non-dominant hand, like brushing your teeth -- all of that helps your brain.

Have you ever taken SPM Active? It repairs injuries. Or what about something like Microbe Formulas MitoRestore, to help mitochondria? I've only been able to use it a couple times because I herx like mad from it.

I was waiting for someone to bring up burbur pinella, so it is good for brain fog, I'm suppose to get my 1st bottle today. I'm scared to try l-arginine which is needed to remove the ammonia from our brains, bt I know it can also bring out herpes , shingels, ebv even more , that's how they multiply