Hi there, I'm new here and I read a lot on here already, so I decided to join. I suffer from a bartonella infection, MCAS, emf sensitivity and mold probably also plays a roll, maybe heavy metals too. I went misdiagnosed for more than a year and it would've gone on even longer if the emf sensitivity didn't bring me to the right doctor who said it's probably bartonella and MCAS and so on and he was right. I went poor on the search of getting a diagnosis because I had an expensive surgery done that I didn't need because of a misdiagnosis. And I can't tell how many times I heard that my issues are only psychosomatic during last year while I was still searching for an answer. It's been a marathon of hospital stays and visits at all kinds of doctors until I finally made a lucky hit. The doctor prescribed me doxycycline which I took for maybe two months, which didn't cure me of course, I only felt a little better. Then we added in rifoldin as I stumbled across a site of a LLMD who said you need to use a combination of two antibiotics and something that breaks up biofilms, in my case that was oregano oil. That didn't go well for long and I quit the rifoldin again and just continued on the doxy and the oregano oil, but I was left with some damage to my gut health, so I needed an alternative and my research brought me to Buhner's protocol. So I decided to give it a try and with the help of my family I ordered my first three - japanese knotweed, houttuynia and sida acuta (and I gotta say, I'm happy I found a source where I can order them in Europe) I anxiously quit the doxy, and not knowing what I was doing, because all I had as an instruction was what the bottles said, I started with the full dosage. I had the worst herx ever the same day, while on the abx I never herxed even a little. Anyhow, so I started to research more and bought Buhner's book on bartonella and bought the whole core protocol, those for CNS issues (except for greater celandine as I can't seem to find it anywhere) and stephania as I read it helps with eye issues. Over being impatient I made another mistake and started all the tinctures at 1 drop each. I herxed again, just a little though, but not long after taking them. The funny thing is, I feel kinda okay as long as I stay away from emf exposure as much as possible, but as soon as I walk outside I get a flare (we live in a cellar apartment pretty much in the middle of three mobile phone masts that are about
1-2km away) but the worst flares I get is when I'm on my phone or anyone else has it turned on when I'm close by, all my bartonella/MCAS issues go crazy and it makes me want to stay inside under my emf protection blanket and destroy those masts. I can't sleep in my bedroom because at some point my lungs started to burn in there until I couldn't take it anymore and switched to sleeping in the living room, where I also found a spot where you have a bad connection. In my bedroom, exactly where I used to sleep, I had the best connection and some slight mold spots in one corner. We have a room upstairs free from mold in our house that I could make my new bedroom, but you get in the wifi signals from the neighbours all around and on the roof of that room is the mast that brings electricity into our house which I can feel too, just not as extreme as the emf of mobile phones and such, but staying in that room for too long brings me to my knees and I can't afford to make it emf safe and I can't work as long as my condition is that bad, so I'll be stuck in the cellar for now. For the MCAS I take ketotifene, that's supposed to help, but it only helps with the food allergies I developed, but not the emf sensitivity. Nothing seems to help with it other than staying away and that's almost impossible. I'm at my rope's end at the moment. I still take a very low dose of all the herbs at once out of desperation to get better and do something in the hope that the symptoms will wear down once the bartonella dies, and partly out of worrying that the bartonella will form resistance if I quit it all now and start again with only one tincture. I'm not even sure if it does something other than that my emf sensitivity got worse and my other symptoms too, I think my heart issues decreased a little and fatigue too, though that also might be all the green tea that I drink now. I can't work with my doctor as I seem to be one of the first two of his patients who use Buhner's protocol and you wait for 4 months for an appointment with him, plus he's expensive. I don't know where exactly the connection in between the emf sensitivity, bartonella and herxing, MCAS and the possible rest is, but I know it's all super stressful for the cells and immune system an my body can't protect itself anymore. I don't know if I'll ever get better and I have no clue what to do next. All I do is try and hope everything will work out and resolve if the bartonella dies and I can finally get out of here, but I know it won't be that "easy". I have too many symptoms to list them all, but today I got sudden rage again, at the moment my arms feel weak, my neck, face, eyes and tounge are burning right now (from the emf exposure) and I have numb patches of different size all over my body ever since I got my first symptoms. Detoxing helps, I even found an epsom salt bath that has vitamin C and E in it, which I hope will have some effects too (though our bathroom has high emf exposure, so I have the benefits of the bath, but the emf kicking my butt at the same time) Zeolith powder helps too, though activated charcoal seems to make me herx a little. I try to do intermitten fasting as well, which seems to be good. But best of all is sleeping, I even read it reduces cytokines big deal. I'd do it throughout the whole treatment if I could. Anyhow, that's a long post, yet I still feel I only scratched on the surface of everything. I can't deal with it alone anymore, so I hope to find some support from you people going through similar things, positive stories and good advice on here, and maybe even offer help myself if possible.
Post Edited (cherrycola) : 6/8/2021 12:32:55 PM (GMT-6)