I need help!!!

Its been a while since I've posted here. I once again fooled myself into thinking I was going to get better. As of the last few weeks I've started to tank again. My air hunger has ramped up a lot...to the point where my chest now feels heavy/tight all the time. I have been treating lyme, bart and bab since January of 2017. Im so financially and physically exhausted. I really don't know how I'v lasted this long. I can't take this anymore. Since I have been on a LOT of antibiotics my doc stopped them a few months back. I was doing methlyne blue and clotrimazole last. Now I'm just on cryptolepis and artemisinin for babs. Air hunger has been my worst and and longest symptom. It's making everyday hell again. I have tried so many herbs, antibiotics, rifes and of course vitamins/minerals/ supplements over the years I just don't know what to do. Im 32 and can't imagine living my entire life like this....please someone give me some guidance.

Did your doc try bactrim on you? It did wonders for me, particularly my breathing. It’s for bartonella but I think it also get babesia and maybe a little Lyme. If insurance doesn’t cover it it’s super cheap. I think some pharmacies even have it on their free med list.

Thanks for the replies As for going back on antibiotics...I don't know that I will. I've done every combination in the book and never accomplished full health. The plan as of my last appointment was to take artemisinin and cryptolepis for any remaining babesia. In addition the plan was to rebuild my immune system with various supplements.


Bailey, yes I have done Bactrim at some point but I couldn't tell you what year or what it was paired with.

I have an appointment tomorrow so I can write an update. After 4 1/2 years of treatment I just don't get hopefully anymore though.

Hi Wisco woman,

I'm so sorry to hear that you're going through this.
I'm close to the same age as you and have been struggling with Lyme for years too.

When you said: "yes I have done Bactrim at some point but I couldn't tell you what year or what it was paired with."

That really felt like a sentence I could have written myself.

Ever since I got Lyme I have no idea of time and date recall. For example, I think I got Lyme 6 years ago, but it could easily have been 7 too, maybe even 5 and a half. I can't recall. I also can't recall a lot of the medication I've been on, when I took them and what combination I took them with.

It's not even really recalling the events itself that's the problem, it's putting a date to it that's difficult.

I totally understand being reluctant to go back on antibiotics. I've been on so many and they never really helped.
Have you considered Disulfiram? It got me in remission for 3 weeks.
I think I stopped prematurely because I relapsed. But nothing got me as far as disulfiram.
It might be worth talking to your doctor about.

The other thing that helped me was Bee Venom Therapy. Be sure to have an epi-pen on hand if you try that.

Hang in there! Hug.