Bartonella and Lyme treatment length

How long did treatment take to get to 90% or better for people with lyme and bartonella? Ive been treating for 3 months and not sure if im getting better.

Thanks for the reply astroman, I had it for about 1.5 years before I was diagnosed which is long but I feel like people have had it much longer. Are you in remission or are you still treating?

Bartonella is a b--ch.

Plan on years, not months....

bro123 said...
Girlie, are all your bart symptoms resolved? how long did it take you

I have a few left - had 30 something

I don’t know if the leftovers are active infection or just need more healing … or permanent damage.

My memory has gotten somewhat better but not sure if this is as good as it gets -
Maybe needs more healing time.
I also still have pain - left shoulder blade, arm and hand - maybe it’s permanent damage. It was my first symptom area back in 2013.
.. a few more minor symptoms as well.

bro,

I treated with herbs instead of antibiotics, but I have been on this forum almost daily for a few years now. I have read a lot of posts. My impression from what others have been through is that 3 months is not long at all, especially for bartonella treatment. I know you have only had this 1.5 years and everything about Lyme/co and treatment thereof is very overwhelming. It’s a lot to take in.

It sounds like you have a knowledgeable doctor. I would trust the doctor’s treatment plan at least for now, and try to set your mindset to patiently see this through. Both patience and perseverance are required.

If I remember from your posts, it sounds like you might have some herxing (worsening or new symptoms after starting treatment). This is par for the course for most people, it seems. Not always, but usually. It might take a while before you notice improvements. Be sure to clearly communicate symptoms and changes with the doctor, as that will help them know what changes may be needed in treatment as you go along. If symptoms become unbearable or interfere with the ability to work or function, the doctor needs to know that.

Detoxing can help. I found TUDCA Plus to be very helpful in regards to my ability to detox.

Orbitingaround, thank you for the reply, what did your treatment plan look like?

Runningwild, I occasionally go to the gym but the anxiety has just been terrible. If I leave the house, ill feel panicky and this is so frustrating because I've been a social butterfly all my life. Even going and sitting in a car gives me anxiety. I need treatment, its the only way I can get rid of these symptoms. I don't plan on taking breaks from it but I have the time to stay home and rest and work on my mind and body for at least a year because I took a year off from school. Im hoping in that years time, I will be able to function somewhat and get on with my life. Im so young and lyme has humbled me in ways that has matured me

I've been treating Lyme and bart very aggressively with abx and herbs continuously for four years. No where near 90% but have made some progress. I was bed bound for the first two years. Not trying to discourage you just some perspective. I posted a very similar message when I was first treating. I expected to be well in a month or two. Everyone is different. You may heal faster. Hope for a fast recovery but plan for the possibility of a long one. Good luck.

Girlie said...
Bartonella is a b--ch.

Plan on years, not months....

It is more than a b--ch. You think its gone and it always comes back and attacks your bones, joints and makes your shins and tops of feet feel like they're exploding. No pun intended for my girlfriend who cheated on me years back.

i have been ill for just over 6 years - Lyme and suspected Bart (hard to get a +ve test)

4+ years of that was undiagnosed - doctors said post viral syndrome/cfs/fibromyalgia - this is the usual path in the UK - unless you have very obvious Bulls Eye rash and even then its a lottery.

the first 4 years was mostly buhners herbs and trying various other things, tests and umpteen doctors visits - the buhner herbs helped a little
then tried around 9 months of antibiotics - was impossible to get GP to proscribe more than Doxy
so then started self medicating with doxy, azithro, rifampicin - worse for a few months - then some improvement but had to stop with liver issues
also strict Keto diet helped a lot - esp fatigue and gut issues
and combination t3/t4 thyroid medication for hashimotos - helped
and LDN for immune function

last 2 years on extended buhner herbs for lyme -
plus herbs for co-infections incl bart ( sida, houtt, etc )
methylene blue for bart persisters
ivermectin - for immune function

i am now making progress steadily - am perhaps half way back - but it is still slow progress
its a long road back for many
i have tried tried treating even more intensively - but found it just made me too ill to function and even when i did - it did not help in the long term

you may find you have a more favourable response - but i was v strong and fit before getting ill and would have thought i would recover from anything quickly - does not seem to work that way.

Have had Lyme for 6 or 7 years.
Tested positive for many bands on iGenex.
Have been treating for 3-4 years.

Antibiotics: did barely anything besides make me feel bad, especially Dapsone which was awful. They did make me herx sometimes, but not often.

Buhner herbs: helped a bit, made me herx (especially Japanese Knotweed), but not much progress.

Banderol/Samento: nothing.

Bee venom therapy: got me to 60% better, but relapsed when I stopped.

Disulfiram: got me into remission for 3 weeks, but also relapsed when I stopped.

Currently treating mold, but it's not doing much besides setting me back with Lyme.

I also did a bunch of Bartonella and Babesia herbs, but it did nothing, sometimes I wonder if I might be one of the few without co-infections.

So yeah, 6-7 years gone and back to feeling awful every day, again.

Post Edited (RainyCloud) : 6/12/2021 2:43:05 PM (GMT-6)

NorthCountry said...

OrbitingAround—
I also have C Diff in my past, and have been dealing with gut issues. I just found out Lyme can cause “Bells Palsy of the Gut” and I think this is at the root of things for me.

Do you feel Lyme impacted your gut health? For me, it’s the most major thing. If so, are you having relief with GI issues?

So I got c diff in 2002 and again in 2010, the first time from Clindamycin and the second time from Augmentin, both prescribed by dentists (the 2nd time I did not even have an infection, the dentist screwed up). This was a case of both dentists overprescribing strong antibiotics. The first time in 2002 I was in the hospital, but I felt like my primary doctor was more being cautious than anything. I was put on Flagyl both times and it healed the c diff and I had absolutely drenching night sweats and brain fog, and this smell that I describe as "the dead body/decay smell" -- it just so happens that I also get that smell now from taking Cistus tea and colloidal silver. I believe the Flagyl killed a bunch of Lyme bacteria back then, since it's a biofilm buster. I absolutely had Lyme then and just didn't know it, I was mostly fine, I'm sure it was dormant.

Since then my stomach is actually fine, I do not have GI issues, it's the one thing that is not affected by Lyme for me. I take probiotics daily and eat mainly Paleo. If I eat wheat now I will get terrible bloating and stomach pain. But I was not going to risk antibiotics again. I was put on tons and tons of antibiotics as a kid for strep, ear infections, etc. Sometimes I wonder if that kept the Lyme at bay.