Your best eye protection with bartonella?

My daughter has Lyme and her vision issues may be what upset me the most. She can’t read or drive and lately her vision just grays out for a few seconds every few minutes. She is on treatment for Lyme and Bartonella but can’t seem to go up on dosage much due to horrible herxing.

We did try Stephania in the beginning but I didn’t know any better and she herxed too badly so we quit. I may go back and try that again.

As far as protection, idk, Blakeley takes biotin, collagen support, vitamin e, and just continues to treat. She dies take zinc and a zillion other things it seems. We are praying that is enough to one day see her normal vision return. So I am also interested in any thing anyone can share about vision issues.

I have severe vision issues due to probably a pathogen, I am positive for Lyme Babesia and bartonella.
Best guess is bartonella caused an optic edema - and vision loss.

Inflammation in the optic nerve and eye are what you are trying to avoid.

Bosch & Lomb has a supplement called AREDS formula, specifically for vision, the primary active ingredient is lutein.

I take a very high lutein supplement Puritans Pride with 40mg lutein/capsule.

The pharmaceutical fenbendazole is uniquely specific to vision for some people, like me. I credit it to my vision improvement.

Blakeleysmom said...
My daughter has Lyme and her vision issues may be what upset me the most. She can’t read or drive and lately her vision just grays out for a few seconds every few minutes. She is on treatment for Lyme and Bartonella but can’t seem to go up on dosage much due to horrible herxing.

We did try Stephania in the beginning but I didn’t know any better and she herxed too badly so we quit. I may go back and try that again.

As far as protection, idk, Blakeley takes biotin, collagen support, vitamin e, and just continues to treat. She dies take zinc and a zillion other things it seems. We are praying that is enough to one day see her normal vision return. So I am also interested in any thing anyone can share about vision issues.

I'm so sorry to read this, my heart goes out to your daughter and you. No one deserves to go through this.
Does your daughter have MCAS? I suffer from it myself as many others on here seem to as well and it looks like it makes many tolerate the Buhner protocol less good and herx worse, especially from tinctures made with alcohol as they have more histamine. I'll try tinctures made with glycerin next time myself. Anyhow, I also read serrapeptase is supposed to help with MCAS as well as medical cannabis, but I gotta read into that first. I don't know if that's what your daughter is dealing with of course, but maybe it's why she can't tolerate going up in dosage like me, so maybe it's worth to consider looking into that. This site might be of interest to you too https://www.treatlyme.net/guide/cytokines especially step 3 for severe situations like herxing, the glutathione IV or glutathione by nebulizer, something I'll definitely give a try myself. There's more useful informations on that website, so I hope it's useful to you. And I hope your daughter will be able to tolerate stephania if you re-introduce it and it will help her heal! All the best to you and her.

“ Girlie, yes, she has regular check ups with local eye doctor and also neuro opthomologist. They find absolutely no problems: no optic nerve swelling, no physical reason at all for any of her vision issues. Supposedly it is a Neuro reason such as her brain not telling her eyes what to do. We were doing vision therapy but had to pause due to needing to adjust treatment which has put her back in the bed due to herx. “

Sorry to hear treatment has hit her so hard. How are you doing?
It must be difficult for you when she is herxing!