Swelling / Edema

Swelling is now a prominent symptom again. It takes inflammation to another level. It’s most visible in my feet, ankles, and lower legs but also easily felt in the hands.

It went on for many weeks and then briefly backed off. about 3 days ago, it started up again. Last night it was so bad I felt scared and trouble going to sleep. My feet and ankles were quite swollen. I have noticed the right side swells more than the left.

In the past month, I had lots of labs including urinalysis from the Lyme doctor and a regular check up with the cardiologist. I told them both. Neither seemed concerned.

The cardiologist asked if I had changes in diet or eating more salt, which I hadn’t. He said my heart sounds good. He said it’s probably related to other symptoms (Lyme/mold).

The Lyme doctor asked if I had changed salt amount in diet. Nothing in my labs related to kidney function was abnormal.

Does anyone else suffer swelling with normal labs and no blood pressure issues?

This really got scary last night. I don’t know what to do.
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Other Stuff Going On:

- Several days ago, I started noticing UTI symptoms again, so I restarted the uva ursi supplement. I had taken it for over a month and tried to stop, but symptoms returned. (Original UTI symptom occurrence resulted in multiple normal urinalyses and multiple negative cultures.)

- Had a pretty bad rash that was a heat rash as far as I could tell that lasted all last week, spread over a number days, got better, then flared again and is still not gone. Rash has been very itchy and uncomfortable.

- Even though I am in the car instead of the house, I am exposed to mycotoxins outside and have noticeable reactions. I can’t help but think mold is the cause of everything. The UTI symptoms started in the house in January. First time I had ever had those symptoms. (The UTI symptoms started after my first and only few random doses of Alinia.)

- Have been pulsing Mimosa pudica for weeks now.

- Have been having a lot of EMF sensitivities lately with my phone. This is normally my lowest level sensitivity. It’s usually not noticeable but will flare at times. It has been flaring a lot in the past month at least.

- Saturday was full moon. I had wanted to take Ivermectin at full moon this month and last but couldn’t because I was having big issues with other symptoms/sensitivities.

I am wondering if mold or parasites are triggering my latest barrage of issues. I could argue for both sides. It seems no matter what I have going on, it always comes down to mold toxin exposure, though.

Any thoughts? Ideas? Suggestions?

I am more concerned about kidneys and bladder than about the heart in relation to the swelling.

"A 37-amino-acid neuropeptide CGRP is the most potent known peptidergic dilator of peripheral and cerebral blood vessels."

There are many reasons, and its not necessarily inflammation either, although it can be. I recently got mylower legs and ankles sunburned and they got all puffy too (more than usual)- per researching thats is not uncommon, so that was inflammation from burning.

The word Edema itself is kind of like fibromyalgia - its a broad term with out specifics.

I have written about my leg "Edema" experiences here, there can be quite a few reasons behind it. It can result in blood pooling, or water pooling or both. Individually they are different, yet some people get both, and some have no idea, and general medicine does not seem to care. You can also be athletic or a couch potato - it does not seem to matter.

I will add to this later.

Lymegirly,

What’s TRS?

Advanced TRS is from Cosēva, it’s a detox zeolite. my sister used it during and after doing lyme treatment and she barely herxed. I was slightly jealous because I had gone thru years of torturous herxes lol.

I have a friend who reversed autism symptoms in her son with it, and my mom insists it’s like the only thing that is gentle and powerful.

I just bought some i’ll let you know how it goes.

astroman - I never knew that before. When you mention "low total proteins," do you mean protein count in comp panel? This is interesting.

With swelling, the first step is to figure out if its:

1)blood - often related to veineous inefficiency, worn out vessel check valves, varicose veins or damage from blood clots in the various levels of veins and genes. Raising the limb will temp correct this condition- a means of identification too.
or

2)"body water retention". In this case drinking more fluid can lessen the retention. Repeating this serves as a home visual test in a way.

3)actual real inflammation- from infection, tough to figure out, try above first.

I guess the sencha tea didn’t help you like it used to help me with the hand feet swelling. Sometimes vitamin c used to helped me with it, but less reliably. If it makes you feel better I’m having the same issue now after trying to take small amounts of l theanine and I can’t take sencha tea anymore. I think my issue is in part needing more midodrine to raise my bp... which is complicated with my neuroinflammation making only so much possible. Oddly I’m also becoming suspicious because it also caused a good deal of itching that it might have increased my hsv viral load which there’s a paper saying increased gaba can do that.... but only 1 paper.

Anyways if it’s an mcas issue, maybe try vitamin c if you’re not taking it already.

WalkingbyFaith said...
dcd,

I think you nailed it. I definitely have been having MCAS symptoms. I wonder if my culture negative UTI symptoms may even be from MCAS. I recently added a third dose mid-afternoon of TUDCA, and it has helped. I can’t remember the details, but TUDCA affects histamine somehow. I suspect it is that factor more than what it does for liver detox that has made it a standout supplement for me.

I also suspect the histamine/mast cell issues are stemming from something in my gut as much or more so than from mold and mycotoxins in the environment.

Yup, this makes sense. Are you on a binder at night? Low histamine diet? Obviously i'd assume mast cell stabilizers like quercentin, etc?