Lower Back Pain - Kidneys? Bladder?

Not sure what variety of physiology you have, but I experience what you describe when I ovulate and menstruate. If you have ovaries and a uterus, then could those things coincide?

I am a male, so ovulation/menstruation is out, but thanks for the idea!

And @dcd, yep - I'm pretty sure thats whats going on. It usually hits the same time my flare-ups do (usually every 2 weeks to a month). It's sort've nerve-wracking, and I often wonder if I should go the ER, but ¯\_(ツ)_/¯

I have dealt with bladder symptoms, low back pain, and hip bones that were sore to the touch.

I have recurring episodes where if I mash with my fingers in certain places, it feels very sore - along hip bones, upper ribs under armpits, muscles in upper chest, back of ribs (if I reach my arms across like I’m hugging myself and my hand slides across under my armpit and fingers mash that outer rib area).

I had low back pain for a long time while in my parents’ moldy house and after moving to a relative’s house where I slept on an air mattress. After I started treating with Mimosa pudica seed and passing ropeworm, the back pain got better. It flated up again when I was expelling ropeworm again. After that, I associated it with either ropeworm or something else amiss in my gut.

Then I moved into a house that had been remediated for mold. First night, I had horrific low back pain and immediately started getting worse again.

So . . . I can associate the low back pain with either ropeworm/gut issues or mold exposure.

The soreness in my hips and ribs is most likely pain from toxins in the bloodstream.

And to answer your first question, I'll give you some context.

I was diagnosed with Lyme (and possible co-infections) a year ago after a couple years of increasingly debilitating symptoms. I spent about 6 months treating with a combination of doxy/buhner herbs, and although I made very slight improvements, nothing was really changing. To make things worse, MCAS is definitely a component of my illness, as I've been very sensitive to antimicrobials.

I was diagnosed with mold exposure about 6 months ago (high mycotoxin levels on a urine test) and immediately remediated my current living area. (We got about 75% of the mold on the first pass, although we will soon have to remediate again to get the remaining 25%).

When the house was remediated (in late June), I moved back in and continued to take activated charcoal and G.I. Detox daily (which I had been taking all year) in hopes that a cleaner house would make me better. The first couple months I experienced a 10% reduction in fatigue/aches/immune sensitivity, but seemed to plateau really quickly.

The past couple months I've started to add in more mast cell stabilizers (perimine, ketotifen) and Bentonite Clay, and have noticed another slow decrease in symptoms (maybe another 10%-15% reduction). I can tolerate full capsules of charcoal and G.I. detox with no problem, but can only take a tinyyy amount of clay without exacerbating my symptoms (100mg, to be exact).

I suspect the clay is more effective at binding the particular mycotoxins that are contributing the most to my symptoms, for its the binder I've seen the best results from, and the binder that I am most sensitive too.

Overall, I've knocked about 25% off my symptoms since June, but still have a long way to go. However, I'm excited about my results with the bentonite clay so far, and suspect that as I work up the dose my improvements will come faster and faster. Eventually I'm sure I'll add in things like cholestyramine, phosphatidylcholine, etc... as I get more and more mold out of my system.

I hope this helps!

A number of things that have been mentioned - back pain, frequent urination, kidney issues, are ones that have really been around for a wile with me. Then Fishing mentions having Lyme and Bart, which I just had positives on Igenex. Add in neuropathy, particularly in feet, and it seems Lyme and Bart are playing big roles in it all.

The new orthopedic doctor I just went to said my x-rays show degeneration in my lumbar region, but not to the extent the other ortho I did not have a lot of faith in said. It feels, much like Fishing, like muscles are involved. I just had an MRI and will know more next week. If it doesn't show a whole lot, then my guess would be Bart or Lyme causing problems. I don't know that candida, which blood test showed on me, or mold, like Fishing, would. I'll follow up on what they do or do not find.

I've had these symptoms and was diagnosed with interstitial cystitis,
On a scan they noticed that my bladder walls were twice as thick as normal due to the built up scar tissue from low level infections that do not show up on a urinalysis.
In some cases it's Bart but also proteus Morabilis.