Pain swelling on one side of body vision loss and cognitive decline

Please anyone answer if they can its horrible

I have had mris cat scans bloodwork spinal tap I've been to nerologist every doctor imaginable. The only test that came out positive was the lyme. And they said it shouldn't cause all these symptoms. So I continue to suffer and Noone will tell me what to do. I have been put in a mental ward because they said I'm mentally making up these symptoms. Then released me saying something is wrong we do not know. Many doctors have thrown there hands up and said I dont know. So I suffer every day with this sheer pain and confusion. I don't even recognize myself in the mirror. I cant stand the twisting and horrific pain and the memory loss. I don't even rember anything. I was fine 2019. And it's progressing every day. I'm at my wits end. New York I'm from

I have tried to get one and Noone knows I even tried the Dr Cameron and none of them take insurance. It's horrific living this way. Do you have symptoms like this. Does anyone on this forum have it. I'm to the point I don't want to live this way ;(

Hi Christine,

When lyme bacteria die off (naturally, herbal remedies, antibiotics, etc.) they leave neurotoxins and one of the worse toxins is ammonia. I'm not a doctor just someone who's been through the lyme journey and I suggest getting tested for ammonia levels. Ammonia can cause all the symptoms you are describing.

Detoxing also helps (epsom salt baths with hydrogen peroxide), dry skin brushing prior to bath, drinking lots of lemon water during bath. If one does not detox where do the toxins go unless one has a great detoxing system.

Diet also plays a huge role.

You will get through this,
Denise

Hi Christine,

First of all I'm sorry about the loss of your Mom. My Mom also has dementia and is elderly (in her 90's). Anyway, I had severe brain fog, I would get angry for no reason, and confused.

I took a supplement called Neuro-Antitox CNS/PNS formula developed by Dr. David Jernigan and that helped me (I took it for about a year). I also know others who has horrible symptoms due to excess ammonia and they also took the same supplement as I did and it helped them.

From Dr. Jernigan's blog:

Hyperammonemia (excess accumulation of ammonia in the brain and tissues of the body) in combination with cerebral venous circulation disturbances, microbial issues and metabolic pathway dysfunction are largely unaddressed components that cause:

Muscle weakness, muscle wasting, profound fatigue, mitochondria damage, tremors, brain dysfunction, depersonalization, depression, neuropathy, and muscle fasciculations (involuntary movements of muscles) seen in MS, ALS, and Parkinson's disease.

Of course, poor oral bite/TMJ dynamics, environmental electro-polution, dental mercury and environmental heavy metals, dietary and environmental toxins, also play an important role in the development of these illnesses, however this article focuses on the huge problem of excess ammonia. Stopping the accumulation of ammonia often stops the progression of these illnesses.

http://davidjernigan.blogspot.com/2018/05/addressing-ammonia-toxicity-lyme.html

Note: I am not affiliated with Dr. Jernigan or his supplements, just a person who took them years ago.

Hang in there and please get tested for ammonia. If your levels are too high that would explain all your symptoms. The good news is you can get rid of these horrible symptoms!

Denise

Hi Christine,

I don't know the answers to your questions. When I had severe pain it migrated around my body, especially my legs to my hips, etc. so yes, the pain can go to one side which are usually caused by toxins.

Are you taking antibiotics? If so, I suggest seeing a naturopath doctor who specializes in lyme if you can afford to do so. How long have you been treating if you are treating?

Hopefully someone else will come along who may know the answers to your questions.

Hang in there okay?
Denise

Maybe you can see if anyone on these forums is suffering this. I can hardly remeber where I look the pain is unbearable in my eye ;( thank you for responding

Have you been checked by a biological dentist? Do you have root canals? Have you had your wisdom teeth pulled?
My LLMD start in the jaw.
It worth getting checked by a biological dentist.
Google dental meridian chart

I have tried so many drs. Dr Rawls Dr Cameron so many.i don't have the money they want. I applied for the financial and no answers. I know you all can't give me answers cant fix me I know that. I'm done. I cant keep searching and wishing the physical and mental dibilating symptoms away. I tried so hard begging Dr after Dr test after test 100000 tests. No answers just your making it up in your head. I cant make up tremirs swelling vision loss racing twisting pain on one side of my body I can't make up memory gone and pain. It's unbelievable and unbearable. It really is I'm not a mentally making it up who would do that to themselves. Shrinks telling me take anxiety meds it's anxiety. Anxiety doesn't make ypur body swell and your vision gone all on one side. Its horriblev

i don't think you are making it up Christine - i have seem many of the same things with my own eyes.
most people here have been brushed off by doctors also - its very common.

Dr Cameron and Dr Rawls are both LLMD's - so, just to clarify, was the issue there that they could not help you - or that they did not believe you had lyme disease and so did not want to treat you - or that you could not afford to pay them?

by answers - i thought you had a positive lyme disease test already - can you help me understand what more answers are you hoping for?

there is no easy path for most people with chronic lyme and co-infections I'm afraid.

the easiest is via a LLMD - which is why i suggested that first - but as you have found these are typically expensive - and yes, i imagine there are many more applicants than there are grants available.

the other options like self treatment are much harder - but can be done - many here are doing so.

there are herbal approaches that work for many people, as well as pharmacological ones.
each has different advantages and disadvantages and a different risk profile - and some learning is required to figure out the best approach in each individual.

There is a huge amount of support and knowledge in the people on this forum - there may not be someone who has experienced the exact same symptoms as you at the same time - but lyme presents with a highly variable set of symptoms that are different in each person with just some general patterns that can be noticed, so this is to be expected, many people will share similar experiences with pain, swelling, vision issues, cognitive function deficits etc etc - so you are in good company.

we all want to help - in order to get specific input its usually best to ask specific questions.

all the best

Im.sorry

I am finding a way... thank you for always answering and trying to help a stranger