Hi Forest, I apologize for coming off rude as that was not my intention. I'm getting to know you and your problems and I am seriously trying to help you.
It's no one's fault when people get sick, no one gets sick on purpose, it just happens. I was shocked when I became sick because I was never sick so my life got turned around and I was also bedridden and lost the use of my legs. I went to many different doctors for 5 years trying to find out why I was sick and not one of those doctors could diagnose me. I ended up diagnosing myself using the internet as I gave up on the medical community.
Anyway, what I do know is what worked for me. We are all unique and respond to different supplements and remedies.
I am concerned about
your weight loss, anxiety, panic attacks, and your other symptoms. I experienced panic attacks since I was 5 years old but did not know they were called that. In my case it's mostly genetic as my Mom, sister, and all the females in my family suffer from panic attacks and severe anxiety. I went to many doctors for this as I didn't want to live with panic attacks for the rest of my life. I can go into more detail about
it but that's another story. I do know it's a horrible feeling as well as a helpless one. I don't wish panic attacks on anyone.
That said, I believe you were seeing doctors at Sojourns in Westminster. If you are still seeing them do you feel they are helping you? We had a member who went to Sojourns and she had good results.
It's also possible that you may have high levels of ammonia in your body. The article below talks about
this (I reference Dr. Jernigan a lot because it was his protocol that healed me):
https://biologixcenter.com/cognitive-neurological-emotional/neurological-lyme-disease-and-its-correction/Below is from the link above:
Symptoms Common in Neurological Lyme
Lyme rage, irritability, personality changes, emotional instability, seizures, tremors, hypothermia, migraines, headaches, POTS, vertigo, dizziness, neurocardial symptoms, not to mention cognitive dysfunction in the form of brain fog, brain fatigue, memory loss, dyslexia, systemic dystonia, paralysis and attention deficit, and many more symptoms are maladies often experienced by people with neurological Lyme disease. Some of these symptoms are also common to Multiple Sclerosis, ALS, Muscular Dystrophies, Alzheimer’s, and many other illnesses, because very often tick-borne microbial infections are found in the brain of each of these illnesses.
There are definite, and scientifically recognized causes of these many symptoms. This article will discuss the causes and new treatment options for people with Borrelia and coinfection-induced neurological problems.
The multiple strains of Borrelia spirochetes (spiral-shaped bacteria), most associated with Lyme disease, are closely related to the spirochete of Syphilis, another malady that was known in the medical community to cause predictable neurological problems. Other co-infections are always present in the brain or affecting the brain, such as Bartonella sp., Candida sp., etc.
Borrelia Are Shape-Shifters
One might say that Lyme spirochetes are the genetically-enhanced cousin of syphilis. Both are able to shape-shift in order to escape antibiotic treatment efforts. They are called pleomorphic bacteria, being able to change its shape to evade treatment measures. (Lida Mattman, PhD).
Research has been reported that within 20 minutes of infection from the bite of an infected insect the Lyme spirochetes can reach the brain. When this happens, very predictable problems begin to occur.
Ammonia Toxicity in the Brain
One of the very predicable problems to occur is the accumulation of ammonia in the brain. The spirochetes of Syphilis and LD are known produce urease enzymes which cause localized ammonia to accumulate (hyperammonemia) in the brain. The Lyme-induced ammonia causes inflammation and swelling of the astrocytes (brain cells) leading to numerous subsequent neurological symptoms.
The presence of the spirochetes and ammonia in the brain also cause the blood-brain-barrier to leak, allowing larger molecules to enter the protected inner sanctum of the brain. The brain essentially registers these substances, the increased swelling of the brain cells, and the excessive alkalinity of the ammonia, as a brain trauma. On MRI of the brain, longstanding Lyme encephalopathy can present like a classic traumatic brain injury from a car accident or other physical injury to the brain.
The prefrontal cortex, frontal, and temporal lobes, which are largely responsible for working memory and executive functions are most susceptible to alterations in brain wave patterns caused by these bacteria-induced insults. Random, often unexplainable neurological symptoms often are the result of these irritants.
Again, I apologize for my choice of words, I am not against you but want to help you.
Denise