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Posted 2/4/2022 7:35 PM (GMT 0)
Rosi: I'm glad you have had good success. I hope MB continues to show good results for you. That's crazy about the central line and breast cancer. I suppose that was a blessing in disguise.

carlnpa: I have been doing LDN and Allicin over the last month. I have taken them previously as well. It's tough to tell what is working when you are on multiple things. I need more time to see if LDN is going to make a difference. In my case, I've never had noticeable improvements without a potent antimicrobial. My last semi-success was Disullfiram. I've never heard of fenbendazole. That's interesting.

ltc1225: Thanks for the response. I'm glad his clinic is helping you so much. I need help badly. My condition has deteriorated badly over the last year and a half. That's why, like yourself, I'm sucking it up and heading up there. I need a new set of eyes to look at me. It's going to be rough. Right now, I'm having a hard time doing anything but laying on the couch, but it will be worth it if I can make some progress.

What made your case extreme? What kind of abx are you getting through IV? Perhaps I need IV. I have been at this whole garbage situation for years. I don't think I can do ceftriaxone. Literally the only med where I had a fairly clear allergic reaction to was Ceftin. If I was going to do IV I'd probably do it through my local LLMD. Likely cheaper and much more convenient. But who knows, maybe I could be convinced through Jemsek. Going up there once a month would be tough. I cam't make that trip by myself at this point.


I got my appointment moved up to next week. Hopefully, since I'm not new to any of this, it won't take the two hours they are saying it could. I'll come back and update this thread and let everyone know how it went.
Posted 2/4/2022 7:48 PM (GMT 0)

Lymie24 said...
Rosi: I'm glad you have had good success. I hope MB continues to show good results for you. That's crazy about the central line and breast cancer. I suppose that was a blessing in disguise.

carlnpa: I have been doing LDN and Allicin over the last month. I have taken them previously as well. It's tough to tell what is working when you are on multiple things. I need more time to see if LDN is going to make a difference. In my case, I've never had noticeable improvements without a potent antimicrobial. My last semi-success was Disullfiram. I've never heard of fenbendazole. That's interesting.

ltc1225: Thanks for the response. I'm glad his clinic is helping you so much. I need help badly. My condition has deteriorated badly over the last year and a half. That's why, like yourself, I'm sucking it up and heading up there. I need a new set of eyes to look at me. It's going to be rough. Right now, I'm having a hard time doing anything but laying on the couch, but it will be worth it if I can make some progress.

What made your case extreme? What kind of abx are you getting through IV? Perhaps I need IV. I have been at this whole garbage situation for years. I don't think I can do ceftriaxone. Literally the only med where I had a fairly clear allergic reaction to was Ceftin. If I was going to do IV I'd probably do it through my local LLMD. Likely cheaper and much more convenient. But who knows, maybe I could be convinced through Jemsek. Going up there once a month would be tough. I cam't make that trip by myself at this point.


I got my appointment moved up to next week. Hopefully, since I'm not new to any of this, it won't take the two hours they are saying it could. I'll come back and update this thread and let everyone know how it went.

Lymie - He won’t recommend it abx unless he feels you absolutely need it. He has a criteria for them.
I thought he might recommend them for me - but he didn’t - and now I believe he was right.
I had a lot of symptoms.
It wouldn’t have been feasible in my case anyway - literally flying across the continent to the clinic.
I have done well on the orals.
Posted 2/4/2022 9:01 PM (GMT 0)
Yeah, for me it's a 10 hour drive, and I'm not in a great condition right now.

Previously, I told my LLMD I had concerns with IV due to exercising and sauna/epsom salt baths being things that kept me from falling off the deep end. Basically, if I can't sweat I worry about becoming over "toxified" quickly.
Posted 2/4/2022 9:42 PM (GMT 0)

Lymie24 said...
Rosi: I'm glad you have had good success. I hope MB continues to show good results for you. That's crazy about the central line and breast cancer. I suppose that was a blessing in disguise.

carlnpa: I have been doing LDN and Allicin over the last month. I have taken them previously as well. It's tough to tell what is working when you are on multiple things. I need more time to see if LDN is going to make a difference. In my case, I've never had noticeable improvements without a potent antimicrobial. My last semi-success was Disullfiram. I've never heard of fenbendazole. That's interesting.

ltc1225: Thanks for the response. I'm glad his clinic is helping you so much. I need help badly. My condition has deteriorated badly over the last year and a half. That's why, like yourself, I'm sucking it up and heading up there. I need a new set of eyes to look at me. It's going to be rough. Right now, I'm having a hard time doing anything but laying on the couch, but it will be worth it if I can make some progress.

What made your case extreme? What kind of abx are you getting through IV? Perhaps I need IV. I have been at this whole garbage situation for years. I don't think I can do ceftriaxone. Literally the only med where I had a fairly clear allergic reaction to was Ceftin. If I was going to do IV I'd probably do it through my local LLMD. Likely cheaper and much more convenient. But who knows, maybe I could be convinced through Jemsek. Going up there once a month would be tough. I cam't make that trip by myself at this point.


I got my appointment moved up to next week. Hopefully, since I'm not new to any of this, it won't take the two hours they are saying it could. I'll come back and update this thread and let everyone know how it went.

So there is a set of antibiotics Jemsek uses for IV, very planned out for specific infections (babs, Bart, Lyme). Ceftriaxone isn’t used. My problems with seizures, intense neurological symptoms, struggling to walk etc. also my duration of illness, age and situation All played a factor in him deciding I should do IV, it was a decision we basically agreed on that it was the best move for me. It’s of course expensive and a huge commitment. You can’t swim, you can’t sweat, you give up a few things but it’s worth it to me. Who are you seeing for your first appointment? The first appointments for patients can take a while, mine was almost 4 hours in total, but it was the most detailed and thorough appointment I’ve ever had. You won’t have to go every month to the clinic for appointments. But they will tell you what they think is the best option for you oral or Iv. If you truly believe you need IV given your history I would mention it to them. They still give you the equipment to detoxify through the IV because one can’t sweat and detoxify that way. Certain types of fluids

Post Edited (ltc1225) : 2/4/2022 2:46:37 PM (GMT-7)

Posted 2/5/2022 8:40 PM (GMT 0)

ltc1225 said...

Lymie24 said...
Rosi: I'm glad you have had good success. I hope MB continues to show good results for you. That's crazy about the central line and breast cancer. I suppose that was a blessing in disguise.

carlnpa: I have been doing LDN and Allicin over the last month. I have taken them previously as well. It's tough to tell what is working when you are on multiple things. I need more time to see if LDN is going to make a difference. In my case, I've never had noticeable improvements without a potent antimicrobial. My last semi-success was Disullfiram. I've never heard of fenbendazole. That's interesting.

ltc1225: Thanks for the response. I'm glad his clinic is helping you so much. I need help badly. My condition has deteriorated badly over the last year and a half. That's why, like yourself, I'm sucking it up and heading up there. I need a new set of eyes to look at me. It's going to be rough. Right now, I'm having a hard time doing anything but laying on the couch, but it will be worth it if I can make some progress.

What made your case extreme? What kind of abx are you getting through IV? Perhaps I need IV. I have been at this whole garbage situation for years. I don't think I can do ceftriaxone. Literally the only med where I had a fairly clear allergic reaction to was Ceftin. If I was going to do IV I'd probably do it through my local LLMD. Likely cheaper and much more convenient. But who knows, maybe I could be convinced through Jemsek. Going up there once a month would be tough. I cam't make that trip by myself at this point.


I got my appointment moved up to next week. Hopefully, since I'm not new to any of this, it won't take the two hours they are saying it could. I'll come back and update this thread and let everyone know how it went.

So there is a set of antibiotics Jemsek uses for IV, very planned out for specific infections (babs, Bart, Lyme). Ceftriaxone isn’t used. My problems with seizures, intense neurological symptoms, struggling to walk etc. also my duration of illness, age and situation All played a factor in him deciding I should do IV, it was a decision we basically agreed on that it was the best move for me. It’s of course expensive and a huge commitment. You can’t swim, you can’t sweat, you give up a few things but it’s worth it to me. Who are you seeing for your first appointment? The first appointments for patients can take a while, mine was almost 4 hours in total, but it was the most detailed and thorough appointment I’ve ever had. You won’t have to go every month to the clinic for appointments. But they will tell you what they think is the best option for you oral or Iv. If you truly believe you need IV given your history I would mention it to them. They still give you the equipment to detoxify through the IV because one can’t sweat and detoxify that way. Certain types of fluids

Thanks for the all the useful info! My appointment is next week and I believe I see Rachel. Holy moly!: 4 hours is incredible. I'm hoping since I'm not new to this disease or LLMDs it won't take that long. I want them to be thorough but I can't imagine needing 4 hours to get all our communication done.

Maybe I do need IV. I've been sick a long time and have gotten much worse lately. There seems to be differing opinions on IV. Marty Ross thinks the difference between oral and IV is so neglible it doesn't warrant the cost, risk, inconvenience of IV. I can't help but wonder if something like IV is as or even as effective of something like Disulfiram. Disulfiram is a fraction of the cost. I'm just thinking out loud.

I'm planning on going in with an open mind and let them establish my care. I've lost confidence in my current LLMD and I'm constantly tweaking his recommendations. Last appointment, I went in and told him what I was thinking and he pretty much just prescribed what i asked him about. I wanted it to be a back and forth. I'm excited that Jemsek has been around a long time and hopefully I can use that vast clinical experience and knowledge to help me along. I'm planning on putting my health in their hands. Fingers crossed.

Thanks again for all your info.
Posted 2/5/2022 9:13 PM (GMT 0)
“ 4 hours is incredible. I'm hoping since I'm not new to this disease or LLMDs it won't take that long. I want them to be thorough but I can't imagine needing 4 hours to get all our communication done. “

They do a thorough physical and test you as well. (Not lab work)
Eg: they weigh you, check your reflexes with a hammer, check your arm and leg strength, walk a straight line,
Palpate the abdomen.
They have a list of questions as well.
They called my husband in when asking the questions.
They asked me to rate my cognitive ability on 1-10
with 1 being the worst.
I think I said “4” (or maybe “5”)
They asked my husband and he said “1”
I wanted to kick him.
The Practitioner said that a “1” would be pretty much non functional and she could tell I wasn’t that bad.

Then they go over all your symptoms.
They look at your paperwork - ie pertinent labs, and Lyme and co test results.

Then they briefly discuss the treatment plan, give you prescriptions…

If you need lab work done - there’s a lab upstairs.
Posted 2/5/2022 10:47 PM (GMT 0)

Lymie24 said...

ltc1225 said...

Lymie24 said...
Rosi: I'm glad you have had good success. I hope MB continues to show good results for you. That's crazy about the central line and breast cancer. I suppose that was a blessing in disguise.

carlnpa: I have been doing LDN and Allicin over the last month. I have taken them previously as well. It's tough to tell what is working when you are on multiple things. I need more time to see if LDN is going to make a difference. In my case, I've never had noticeable improvements without a potent antimicrobial. My last semi-success was Disullfiram. I've never heard of fenbendazole. That's interesting.

ltc1225: Thanks for the response. I'm glad his clinic is helping you so much. I need help badly. My condition has deteriorated badly over the last year and a half. That's why, like yourself, I'm sucking it up and heading up there. I need a new set of eyes to look at me. It's going to be rough. Right now, I'm having a hard time doing anything but laying on the couch, but it will be worth it if I can make some progress.

What made your case extreme? What kind of abx are you getting through IV? Perhaps I need IV. I have been at this whole garbage situation for years. I don't think I can do ceftriaxone. Literally the only med where I had a fairly clear allergic reaction to was Ceftin. If I was going to do IV I'd probably do it through my local LLMD. Likely cheaper and much more convenient. But who knows, maybe I could be convinced through Jemsek. Going up there once a month would be tough. I cam't make that trip by myself at this point.


I got my appointment moved up to next week. Hopefully, since I'm not new to any of this, it won't take the two hours they are saying it could. I'll come back and update this thread and let everyone know how it went.

So there is a set of antibiotics Jemsek uses for IV, very planned out for specific infections (babs, Bart, Lyme). Ceftriaxone isn’t used. My problems with seizures, intense neurological symptoms, struggling to walk etc. also my duration of illness, age and situation All played a factor in him deciding I should do IV, it was a decision we basically agreed on that it was the best move for me. It’s of course expensive and a huge commitment. You can’t swim, you can’t sweat, you give up a few things but it’s worth it to me. Who are you seeing for your first appointment? The first appointments for patients can take a while, mine was almost 4 hours in total, but it was the most detailed and thorough appointment I’ve ever had. You won’t have to go every month to the clinic for appointments. But they will tell you what they think is the best option for you oral or Iv. If you truly believe you need IV given your history I would mention it to them. They still give you the equipment to detoxify through the IV because one can’t sweat and detoxify that way. Certain types of fluids

Thanks for the all the useful info! My appointment is next week and I believe I see Rachel. Holy moly!: 4 hours is incredible. I'm hoping since I'm not new to this disease or LLMDs it won't take that long. I want them to be thorough but I can't imagine needing 4 hours to get all our communication done.

Maybe I do need IV. I've been sick a long time and have gotten much worse lately. There seems to be differing opinions on IV. Marty Ross thinks the difference between oral and IV is so neglible it doesn't warrant the cost, risk, inconvenience of IV. I can't help but wonder if something like IV is as or even as effective of something like Disulfiram. Disulfiram is a fraction of the cost. I'm just thinking out loud.

I'm planning on going in with an open mind and let them establish my care. I've lost confidence in my current LLMD and I'm constantly tweaking his recommendations. Last appointment, I went in and told him what I was thinking and he pretty much just prescribed what i asked him about. I wanted it to be a back and forth. I'm excited that Jemsek has been around a long time and hopefully I can use that vast clinical experience and knowledge to help me along. I'm planning on putting my health in their hands. Fingers crossed.

Thanks again for all your info.

No problem, I had experience with several LLMDs and had been dealing with Lyme for years before coming to Jemsek and my appointment remained long. As Girlie mentioned all that detailed stuff is included in the appointment and it will be a bit overwhelming once they start to tell you the tentative plan for you, including meds to stabilize your system before digging into rough treatment, at the point I saw them for my initial appointment I just let them run the show for me, although I still did ask questions where I thought necessary and didn’t just accept every prescription without questions. But I followed their instructions to get me started on their protocols
Posted 2/11/2022 6:16 PM (GMT 0)
Update:

I'm back from DC. My wife and I drove up and drove back. It was 10 hours, without stopping, each way. To say the least that is hard on anybody. Y'all can imagine how it is on a chronically ill body lol. We were planning to stay only one night, but we stayed an extra night to rest and recuperate. One of my wife's best friends lives in Northern Virginia so if we have to come back we will probably fly and stay with her. After my appointment I wasn't feeling extra bad and we decided to do some sightseeing. My wife was using apple maps and thought she was using walking directions when it was actually set to driving directions. Landmarks that we thought were only a 10 minute walk away were over 30+ minutes. After 2+ hours of walking my symptoms screamed in intensity and I was the walking dead. We had to stop several times before we made it back to the hotel. Oops lol. I was done for at that point. Didn't move until we left the next morning.

The appointment went well. Everything I've read about here was pretty much my experience. The PA evaluated me and asked a bunch of questions. I'm in the "stabilization" phase right now. Mostly that is meds to try to control histamine and PRN meds for pain and neuro issues. Probably the most interesting thing they want me to do is a HIDA scan to check to gallbladder issues. My current LLMD never brought this up and I'm curious to see if I need it to come out or not.

The appointment lasted 2 and half hours. I felt it went well. I liked that they looked at me both in a more traditional medicine way and in a Lyme/Co way. She assured me there were strategies they use to treat that I haven't tried yet. A new perspective is what I'm really looking for. I'm going to try to turn my mind off and let them handle my care. It's an expensive office visit plus the money to get to DC + hotel + food. The next "appt" is a phone consultation that is fairly expensive. However, after that, visits are pretty much in line with what my other LLMD charges. The biggest expense is getting there. To be honest, my mind is open and I'm going to give them a fair shot, however, on the other hand, I'm not going to spend 5 years like I did my other LLMD. Obviously, I'm hoping for some positive progress.

Post Edited (Lymie24) : 2/11/2022 11:19:01 AM (GMT-7)

Posted 2/11/2022 6:24 PM (GMT 0)
One last unrelated to Lyme point I forgot to mention. I don't know if it's me getting older, becoming more laid back, or this illness has made me put a high value on peace and quiet (prob a combo of all), but there is no way in hell I'd want to live in DC. I can't stand the hustle and bustle. The unrelenting culture of impatience and go-go-go. However, to each their own.
Posted 2/11/2022 7:30 PM (GMT 0)

Lymie24 said...
One last unrelated to Lyme point I forgot to mention. I don't know if it's me getting older, becoming more laid back, or this illness has made me put a high value on peace and quiet (prob a combo of all), but there is no way in hell I'd want to live in DC. I can't stand the hustle and bustle. The unrelenting culture of impatience and go-go-go. However, to each their own.

Lol - I live in a smallish city on an island (Vancouver Island) with a population around 45,000.

My first trip to DC I was excited and decided the next trip we’d stay a few more days to see the sights.
I found DC to be all business - everyone in suits - literally speed walking past us on the sidewalk.
Now - I’m done with it.
Back to short duration trips.

… or maybe after the appointment fly to New York City - that would be fun.
Posted 2/11/2022 8:58 PM (GMT 0)

Girlie said...

Lymie24 said...
One last unrelated to Lyme point I forgot to mention. I don't know if it's me getting older, becoming more laid back, or this illness has made me put a high value on peace and quiet (prob a combo of all), but there is no way in hell I'd want to live in DC. I can't stand the hustle and bustle. The unrelenting culture of impatience and go-go-go. However, to each their own.

Lol - I live in a smallish city on an island (Vancouver Island) with a population around 45,000.

My first trip to DC I was excited and decided the next trip we’d stay a few more days to see the sights.
I found DC to be all business - everyone in suits - literally speed walking past us on the sidewalk.
Now - I’m done with it.
Back to short duration trips.

… or maybe after the appointment fly to New York City - that would be fun.

Yes!

When I was younger I liked to vacation in bigger cities. The reality is I was mostly just partying. This was fun but wasn't an accurate interpretation of what it's like to live in cities like this. Then, as a youngster, I was exposed to media's romanticized version of these cities. Also, I think I am just heading towards old man curmudgeonedy and don't do well with my illness being over-stimulated. But just being there for 36 hours I can see why people get so impatient and frustrated.
Posted 2/12/2022 3:36 PM (GMT 0)
I was an infusion patient there, they wrecked my health by not correcting methylation and detox during the stabilization phase. I spent over a year, and $15k trying everything I could to reverse the damage, in that time I had a consult with a doctor who said I was the second patient of Dr. J they had with serious fluoroquinolone toxicity. For the infections their protocol is good, but if you have underlying health problems don't depend on them to manage it.
Posted 2/12/2022 3:39 PM (GMT 0)

ltc1225 said...
They still give you the equipment to detoxify through the IV because one can’t sweat and detoxify that way. Certain types of fluids


The IV detox is lactated Ringer's or saline, it is nowhere near enough if you have a serious detox problem (I did, and learned this the hard way).
Posted 2/12/2022 6:24 PM (GMT 0)
acarined,

Thanks for sharing your experience. How were you diagnosed with methylation and detox issues? I do wonder how many chronic patients suffer from "detox" issues? It certainly feels like I do, and it seems most do. I've tested negative for the MTHFR gene. I totally understand the feeling of not knowing whether you feel bad because of flaring of infection, herx, or side effects from daily antibiotic dosing. I'd probably refuse fluoroquines. I've read too many horror stories.

It's tough to parse out infection issues versus underlying health problems especially when being chronically ill, presumably with active infections, because those infections might be causing those health issues. I've been ill for 6 and half years now and I've only made any type of progress with antimicrobial therapy (assuming Disulfiram works by being antimicrobial). So I'm hoping Jemsek's protocol works for me. I'm hoping that the pulsing strategy makes therapy more tolerable. Time will tell. I'm going to give them a fair shot, but I'm not going to spend years and years spinning my wheels and losing hope like I have before.
Posted 2/13/2022 4:54 AM (GMT 0)

acarined said...

ltc1225 said...
They still give you the equipment to detoxify through the IV because one can’t sweat and detoxify that way. Certain types of fluids


The IV detox is lactated Ringer's or saline, it is nowhere near enough if you have a serious detox problem (I did, and learned this the hard way).

what do you mean by detoxing problem? MTHFR? which i have. but you really have loads of ways to still detox while doing IV
Posted 2/13/2022 5:00 AM (GMT 0)

Lymie24 said...
acarined,

Thanks for sharing your experience. How were you diagnosed with methylation and detox issues? I do wonder how many chronic patients suffer from "detox" issues? It certainly feels like I do, and it seems most do. I've tested negative for the MTHFR gene. I totally understand the feeling of not knowing whether you feel bad because of flaring of infection, herx, or side effects from daily antibiotic dosing. I'd probably refuse fluoroquines. I've read too many horror stories.

It's tough to parse out infection issues versus underlying health problems especially when being chronically ill, presumably with active infections, because those infections might be causing those health issues. I've been ill for 6 and half years now and I've only made any type of progress with antimicrobial therapy (assuming Disulfiram works by being antimicrobial). So I'm hoping Jemsek's protocol works for me. I'm hoping that the pulsing strategy makes therapy more tolerable. Time will tell. I'm going to give them a fair shot, but I'm not going to spend years and years spinning my wheels and losing hope like I have before.

Ive been in your shoes of being with a doctor for a while and realizing it was time to jump ship, but after hearing success stories, treatment types, reputation and being in the lyme world for some time it would be painful to move away from the jemsek clinic. I see them as the best hands someone can be in if youre suffering from lyme and co, they wont give up on you and Dr, J is arguably the most experienced with this disease. Going elsewhere would be detrimental in my opinion, you'd just be going to someone with less experience and knowledge. They had my gallbladder checked after years of me having stomach issues and they found i needed it removed due to the damage from lyme and my stomach is so much better due to the surgery, no other doctor ever mentioned this.

i know youre just starting out with them but just wanted to share that because theres nowhere else id go at this point, no other doctor or clinic id trust.
Posted 2/13/2022 6:54 PM (GMT 0)
ltc1225,

Oh, don't worry, I'm giving them a legit shot. I'm hopeful about working with them and I've been doing this long enough to know patience is a necessity. I'm just stating I'm not going to spend years and years beating the same dead horse as I have previously. I'm not really worried about that right now. If it comes to that I'll deal with it at that time. At the moment I am excited about possible improvements through Jemsek.
Posted 2/13/2022 7:12 PM (GMT 0)

Lymie24 said...
ltc1225,

Oh, don't worry, I'm giving them a legit shot. I'm hopeful about working with them and I've been doing this long enough to know patience is a necessity. I'm just stating I'm not going to spend years and years beating the same dead horse as I have previously. I'm not really worried about that right now. If it comes to that I'll deal with it at that time. At the moment I am excited about possible improvements through Jemsek.

Totally understand, they work with you and change things if you plateau with certain meds, some people it takes longer than others get to remission as you probably know. Depending on IV or orals, can be a year or two to full remission, anyone selling a 6 month cure is a liar
Posted 2/13/2022 9:16 PM (GMT 0)

Lymie24 said...
acarined,

Thanks for sharing your experience. How were you diagnosed with methylation and detox issues? I do wonder how many chronic patients suffer from "detox" issues? It certainly feels like I do, and it seems most do. I've tested negative for the MTHFR gene. I totally understand the feeling of not knowing whether you feel bad because of flaring of infection, herx, or side effects from daily antibiotic dosing. I'd probably refuse fluoroquines. I've read too many horror stories.

It's tough to parse out infection issues versus underlying health problems especially when being chronically ill, presumably with active infections, because those infections might be causing those health issues. I've been ill for 6 and half years now and I've only made any type of progress with antimicrobial therapy (assuming Disulfiram works by being antimicrobial). So I'm hoping Jemsek's protocol works for me. I'm hoping that the pulsing strategy makes therapy more tolerable. Time will tell. I'm going to give them a fair shot, but I'm not going to spend years and years spinning my wheels and losing hope like I have before.


I had the same attitude myself, I'm now in worse shape than I was to begin with. This is part of a review of the Jemsek Clinic from Google:

said...
Her abrupt discontinuation of her Parkinson’s medication put my mom in a life-threatening situation. She never left the hospital for four days and then was taken to a physical rehab center to where she had to learn to walk and brush her teeth and feed herself. All of those things she was doing perfectly fine before Jemsek insisted her to discontinue her medication immediately.I called the office back and told them that my mom had taken a horrible turn and based on the fact that they would not and could not provide any blood work results that they said they had to diagnose her with lymes disease that we would not be continuing treatment for lymes and I would return the anabiotic‘s and I wanted my $25,000 back.The staff showed no concern at all and Jemsek would never take my call. My mom never recovered back to the condition that she was the day that she walked on her own Into Jemsek’s office 4 days prior. His Decision to pretend to be both a neurologist specializing in Parkinson’s disease and a lymes specialist Killed my mama.The withdrawals of her Parkinson’s meds at the dosage that she was on did irreversible damage.Less than 1 year later I held my beautiful mama as she took her last breath. Jemsek...Your day is coming and I’ll be there.


That was my experience, when I complained that my health was in serious decline, they made no effort to investigate and told me to continue the antibiotic protocol. I did so, having invested over $30k in the treatment and not wanting to admit it was a loss. When I told Dr. J several times that I believed fluoroquinolone toxicity had led to my new symptoms, he didn't acknowledge the possibility. I later told them directly, in no uncertain terms, and did not get a response.

I'd worked with three LLMDs before Dr. J, one of them told me he tried Dr. J's protocol under his guidance, and found it didn't help his treatment-resistant patients. I didn't listen to him because of how good Dr. J's reputation is on the forums. Obviously he has successes, but he's also disabled people with his aggressive protocol.

ltc1225 said...
what do you mean by detoxing problem? MTHFR? which i have. but you really have loads of ways to still detox while doing IV


This blog goes into detail, MTHFR is one of many SNPs that can impair detox. An expert would take months to sort through a complex case of SNPs, which I have, and I did inform the Jemsek Clinic of my trouble with correcting methylation during the stabilization phase. They ignored the problem, and I trusted them that it wouldn't be a serious risk to treatment, it was.

The damage from Covid and many other illnesses is inflammation, I think we'll see breakthrough treatments in the next five years that will enable our bodies to resist being hijacked by infections - rather than attacking the infections themselves with anti-virals or antibiotics. Covid research has billions invested in it, they've already found drugs which could be used in Bartonella, I'm sure Lyme will follow.
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