Trauma from Dr. S.P. office

Haven't been on here in a while. Thought I'd share this before another poor person makes the mistake like I did in hopes of being treated or heard or seen by Dr. S.P. office in CT. PAID $1,375 for first initial appt. which was over the phone. The nurse Caitlyn or whatever her name is( can't remember from being so pissed) was okay with the testing at 1st appt. Right after that she was always rude to the extreme , pushy, and seemed a manipulator or narcissistic. Never thought someone working g in an LLMD office would treat a patient like this. I was with this office for 1 year and WAS NEVER started on antibiotics or any type of treatment. She Insisted I start monolaurin even though my doc advised me not to because of my coconut allergy. This office is not knowledgeable at all and claimed sweating or saunas, MTHFR gene and detox was irrelevant and didn't matter. I was shocked but kept it easy and friendly. She kept threatening me more or less and told me right after the 1st visit, "Now we have an offer, this is like once in a lifetime, I talked to Doctor S.P. and he says he'll offer you a full refund right now and you can go to another office because "I may be a complex case" mind you they didn't even give me a diagnosis yet lol" and I'm thinking why on earth would she say that to me?? Of course I need the help and want to get better. Next excuse was "You are hypervigilant, I can't answer your questions, we are butting heads" 2nd time "She says This is the 2nd time we've butted heads , I already had this conversation with you and made it clear, we pick and choose who we want to work with" I recorded the whole convo and my partner and mom were right next to me. Still I held my composure and felt I was being a sucker. She just wanted to be In control! She proceeded to say "If I have to have this convo again and we butt heads again, then I am discharging you from this office so I told her to find a new field of work. She even admitted I didn't make any progress with this office in 1 yr and says that's a red flag on my end if no doctor wants to work with me and kicks me out of office! I only explained ai was kicked out of doctors appts. at times all because they tried to tell me there's no possible way I had lyme and needed help !! I simply defended myself and just self advocate. She really made it personal and was literally telling me " you give off a snotty disrespectful vibe in emails" but but proceeded to say "yes it's true , you did keep up with appts, info, and were very friendly and communicative for an entire year with us so I know how you feel" I told her she was cruel and had no right to discharge me because I had questions. The nurse was all just "well I actually do have the right to discharge you if I don't want to work with you and I don't want to work with you "!!!! Not every doc and pat will get along or hv same opinions but it's the docs just to keep it strictly professional. Needless to say she was a you know what from the beginning and contradicted herself quite often and I didn't think it would be an issue. What's worse of the waisted money is the waisted time and trauma. Imagine a whole year without any type of treatment . Not to mention I have all the emails and they asked for all of my docs info at least 4 times because they seemed to have been to careless and lost it or just didn't care.I was discharged from this office even though I was never seen in office. The nurse claimed they didn't hear from me since last year or a year ago! So who th sent me an email trying to start me on monolaurin in Dec then? Proceeds to say "we talked about starting antibiotics bk In Sept. 2021 and I'm not sure why we never started you on then, because the deal was to keep up with appts. with your neurologist, have you done that?" Of course I did..... still didn't matter this office will give you the run around not to mention their star ratings .she said she would send me a discharge letter, and I still haven't received one until this day. I told her straight up, that I was giving this office 1 star and it would have been 0 if I had the option. People are suffering from lyme and all they did wad make me waist a whole year with the waiting game and giving me the run around. Now I'm awaiting to get Into Dr. T.M in Berlin , CT. He has lots of bad reviews too lol idk what's going to happen. I'm I'm going to do my Igenex testing today because we think I have babesia and also TBRF. If you have different strain of Lyme it won't show up on a regular Lyme test so we're testing for the tbrf group. I hope this message helps warn someone not to waist their money or time at this office, it was extreme upsetting that I just cried. It's very difficult to deal with this never-ending trying to deal with the illness at the same time. I honestly felt attacked it sucks.

Post Edited (MedicalNerd) : 5/16/2022 11:23:41 AM (GMT-6)

Sunflower1920 said...
Is this doctor in Connecticut? No I've never seen them however I believe I know who you are talking about. I've seen a post about this doctor before and their hefty fee.

Yes Dr. S.P is in Wilton, CT

I just went through something exact a week ago with Dr k, IN CT!!

I wasn’t disappointed that it cost $1500 I was upset because he didn’t even have my mri or file I sent 2 months earlier and confirmed received with the office manager and when we got on the FaceTime call he said he didn’t have anything and wanted to reschedule the appointment, finally after 15 minutes he at least found the mri in the wrong place but still had no history or previous medical records to prepare for this very important appointment. I was there for an MRI showing cerrabellum damage caused by mold, and I have lyme and possibly heavy metals but thats beside the point.

He ASSUMES it’s genetic before even sending me for genetic testing and even after I told him I was exposed to mold for 10 years, and he said he is not a mold specialist, but he is a NEUROLOGIST. He is referring me for genetic testing, at least I can rule it and the testing and neurologist he is referring me to takes insurance.

Post Edited (sdarrah) : 5/16/2022 12:50:35 PM (GMT-6)

Not all LLMDs are like this just FYI. Please don't knock *most* LLMDs as quacks.

My first one wasn't a good fit for me. I now have a new LLMD whom I adore. Praying she'll help me really turn a corner.

Where do you go other than an LLMD (or a LLNP)? Who else will run these tests, prescribe meds and guide you that could save your life or a family members? I agree its good to have social outlets via Facebook, this board and other lyme forums but this disease is very complex, what works for one might not for someone else, that's where you find a professional. I myself don't believe in trying something new or different unless I have the supervision of an Lyme literate physician, call my "old fashioned" I guess.

And yea its horrible the dreaded costs out of pocket to get them. I'll never get over that and yes this is just one of many reasons the CDC hates them.

Dr P is not a quack and has helped many many lyme patients get well. Like anywhere else, front office help is very difficult to find and retain. Also all this Covid tele-treatment crap has broken the doctor patient relationship from developing. Dealing with his nurse gatekeeper in voice-mail and e-mail only makes things more difficult. Dr P and his staff may not be a good fit, and you should have moved on long before getting to this point. I'm not defending his office person, and never met with either one them. Maybe Dr P is past his prime, and lost his bed-side manner, but definitely not a quack or a gold digger.

tickbite666 said...
Dr P is not a quack and has helped many many lyme patients get well. Like anywhere else, front office help is very difficult to find and retain. Also all this Covid tele-treatment crap has broken the doctor patient relationship from developing. Dealing with his nurse gatekeeper in voice-mail and e-mail only makes things more difficult. Dr P and his staff may not be a good fit, and you should have moved on long before getting to this point. I'm not defending his office person, and never met with either one them. Maybe Dr P is past his prime, and lost his bed-side manner, but definitely not a quack or a gold digger.

So did he help you? His nurse was definitely a quack, Ive never met Dr. P but by the reviews I'm glad I was discharged out of that office no offense. The nurse had no bed side manner to begin with.Im not the 1st person that has had that experience with his office unfortunately.

MN,

I never was a patient of Dr P. But, he was my first choice when I started treatment back in 2010. Got in to see Sam Donta instead, which was a much less driving distance given my condition. I stayed with him for only one year as well and left to go to another specialist who treated co's more aggressively

I want add to all of you that many of us may never reach remission, and will have to live with some level of treatment for the rest of our lives.

Thanks for that negative spewing tickbite666. Thanks for making us feel so much better and add hope to our future NOT!

Also medical nerd I believe the "established medical community" probably sees us as victims to these LLMDs with the very unorthodox ways they treat LD and the $ they charge with alot of us getting sicker and taking longer to heal. They believe we dont have LD/ Cos in the chronic state with what "evidence" they have and that we're harming ourselves more. 28 days of Doxy ( if that) and you should be good to go right? ha! And when we are still sick in their eyes it cant be proven it's still lyme. Some may want to help and support us but know their medical license can be on the line they may struggle with that morally and ethically, they are still human. I dont knock or hate all mainstream docs, I refuse to do that. Thats what I believe that member was trying to say.

Not constant day to day treatment, some do get into remission and are fine. Others it may be more than just LD/Co's.

Maybe some need to treat forever but not most. I could careless what Dr H says in his guidelines. That's just opinion. He is not God. I bowed down to my first LLMD and caught her in a few mistakes later on down the road. No llmd is perfect not even Dr H

No you Said *many* of us will need to treat forever and won't go into remission

tickbite666 said...
MN,

I never was a patient of Dr P. But, he was my first choice when I started treatment back in 2010. Got in to see Sam Donta instead, which was a much less driving distance given my condition. I stayed with him for only one year as well and left to go to another specialist who treated co's more aggressively

I want add to all of you that many of us may never reach remission, and will have to live with some level of treatment for the rest of our lives.

Hi tickbite,

That's not true that MANY of us may never reach remission. I'm 16 years in remission with absolutely no maintenance treatment unless you want to count that I still take detox baths just to get rid of daily toxins.

I'm still in touch with people from this forum who have also healed and don't take any type of remedies/medication. They do what I do which is eating healthy, detoxing, exercising, watching stress levels, etc.

I met Dr. Burrascano (at a social event on Long Island) and later on I met some of his patients. All I can tell you is that the patients I met and tried to help were in very bad shape from his treatment plans. I wouldn't put this doctor on a pedestal, in fact, just the opposite. When I mentioned detoxing to his patients they said to me "wow, Dr. B. never mentioned that"...

Medical Nerd, I'm truly sorry for your experience, it shouldn't have to be that way.

Sunflower1920 said...
Girlie you don't need to clarify and quote what he said....I know what he said. I'm not looking for a fight. I'm stating what I infact read.

I know I don’t need to - but I wanted to.
You don’t need to tell me what I don’t need to do