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BVT, CPAP, Pre-work out supplements, and Exercise

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Posted 5/31/2022 10:45 PM (GMT 0)
Hey everyone. It's been a while but over the past year I have had massive successes in my recovery and wanted to share the key aspects of my recovery with you in hopes that it will help some.

First off, I am about 90% or more of what I was prediagnosis. However, I am better than I was in some areas too.

BVT was my foundation for getting better. I followed Ellie Lobel's protocol for just over 3 years. I stopped stinging a couple months ago.

I started noticing improvements shortly after starting BVT. But would continue to go up and down in my recovery for almost 2 years. Late 2020 I discovered I was suffering from sleep apnea. I suspected this for a while but failed an at home test in 2018 so wrote it off. Started CPAP therapy in December 20 after failing an improved at home test through the VA. After starting CPAP therapy I noticed an instant improvement. First thing I noticed was that my night time bathroom visits went from 3-5 times a night to 0-1. But I still would have bouts of sickness and extreme fatigue every month or so. I started working out in May 21. Started feeling better but still had occasional bouts of fatigue. Started regularly using a pre-work out supplements at the turn of this year and I have had no bouts of sickness or fatigue. My mobility is still not up to par, but that is to be expected with how lyme attacked my back and nerves for the past several years.

Anyhow, I believe exercise with pre-work out supplements are a major component for overall wellness. A good pre-work out supplement is designed to help with blood circulation, endurance, and focus. It really opens up your blood vessels and keeps your energy up. Which in turn aids in recovery. If you are well enough to get to a gym and do light cardio and weight training, a pre-work out will really help you. Of course, don't over do it and get plenty of rest. But it has helped me tremendously!!

Just thought I'd share.

I pray you all are getting better. If there are any questions regarding my recovery I'd be more than happy to discuss them.
Posted 5/31/2022 11:06 PM (GMT 0)
That’s great news, Hoagie!

Glad to hear you’re doing so well!
Posted 6/1/2022 2:29 AM (GMT 0)
Hey, Hoagie! Glad to hear you’re still doing well. What pre-workout supplements are you referring to?

I remember you had mold in the house and lived in a tent for a while. Then, I remember you went back to living in the house. Did you ever move from that place or have it remediated?
Posted 6/1/2022 3:20 AM (GMT 0)

WalkingbyFaith said...
Hey, Hoagie! Glad to hear you’re still doing well. What pre-workout supplements are you referring to?

I remember you had mold in the house and lived in a tent for a while. Then, I remember you went back to living in the house. Did you ever move from that place or have it remediated?

Hi WBF!

I moved back into the house after some remediation. We moved out of that house at the end of 2019. We ended up finding mold in the air handler of our ac earlier this year in the house we are at now. I believe it had been there for a while. I had it cleaned and refuse to go any further with it. The whole mold thing has caused a bit of PTSD with me. The way I handled it at our old house was not the best. If I'm getting better now, I'm not going to stress about it here. I cleaned it up and was done worrying about it. This is a rental anyhow. So as soon as the housing market gets better, we will be moving on.

As far as pre-work out supplements, I take one that has a host of vitamins, amino acids and such in it. It's called Nitraflex. It contains boron, beta-alanine, l-theanine, citrulline, and a patented mix of some other things that aid in blood circulation and recovery....plus a load of caffeine which helps me through my workouts. I had pretty poor circulation for a while. The workouts have been key in getting me better.

Great to hear from you WBF! I hope you are doing well.
Posted 6/1/2022 3:22 AM (GMT 0)

Girlie said...
That’s great news, Hoagie!

Glad to hear you’re doing so well!

Thanks Girlie!

How have you been?
Posted 6/1/2022 6:14 AM (GMT 0)

Hoagie said...

Girlie said...
That’s great news, Hoagie!

Glad to hear you’re doing so well!

Thanks Girlie!

How have you been?

///////////////////////////////

I’m doing quite well - thanks for asking!
I finally felt well enough to go back to work (was off for over 5 years!)
I am quite confident that I am in remission.
I am stretching the time off of abx and I’m currently going to 5 … or maybe 6 weeks off.
And then will take abx for one week and take 6 weeks off.

I currently have lost all symptoms except for a few. I do have mild to moderate (depending on the day) thoracic back pain and sometimes my left shoulder blade gets tight and sore. (It is relieved when my husband massages it)
And I do struggle with my short term memory. It has improved tho and I am hoping it continues and it’s not permanent.

I don’t think it’s active infection - but just needs to heal - hopefully it CAN heal.
The memory loss is most concerning than the back issues.
Posted 6/1/2022 12:37 PM (GMT 0)
Great to hear Girlie! That is so awesome and encouraging!! I still deal with memory issues as well. We've bought those little tile devices to locate our keys and my wallet for when I forget where I set them. Lol. I don't think it's active lyme though.
Posted 6/1/2022 5:25 PM (GMT 0)
Hi Hoagie, I am currently treating with bio magnetic pair therapy and seeing improvement. I remain curious about other treatments. I have a few questions if you don’t mind…



Did you undergo pre treatment testing to ensure you weren’t allergic to bee venom?

How do you determine the correct number /frequency of stings?

Thank you.
Posted 6/2/2022 11:47 AM (GMT 0)
Hoagie, can you work out often and hard without increased die-off or similar? I have been working out 4-5 times a week for a while but most sessions have been quite short at home with small dumbells. I recently started at a gym and I'm able to push a lot harder with squats, deadlifts, weighted pull-ups, etc, but I'm getting very toxic and a small increase in symptoms because of that.

I have backed down and go to the gym a bit less often and around 30 min, but would love to work out more as I don’t have any fatigue problems around working out. I take creatine as a pre work out.
Posted 6/2/2022 12:06 PM (GMT 0)
great to hear of your success!

I'm also a firm believer in exercise being important in chronic illness recovery

i am working out a few times a week and working my way up in intensity - typically 30-45 minutes
mainly dumbbells and body weigh exercises - press-ups etc

i am also experiencing herx like symptoms after workouts - especially when doing so while on antibiotics/herbal antimicrobials and proteolytic enzymes for biofilm/fibrin deposits

its as if the exercise forces blood to flow - and maybe abx tissue penetration and thereby increases killing and maybe releases toxins / bacteria - and i get more immune activation / herx effects

typically for me this is mainly being super achy ( many times normal for the exercise) - sleep problems the night after exercise - maybe somewhat increased headache - and a bit of increased fatigue the next day.

i do not know what citrulline does specifically - so that's interesting if it helps this particularly - but i am not sure supplements are the answer - my diet is pretty good - and my general function is improving generally
Posted 6/2/2022 12:42 PM (GMT 0)
Really happy for you Hoagie! I remember you helped me a lot in the BVT thread. So great to hear from you again.
Posted 6/2/2022 1:41 PM (GMT 0)

MargaritaLyme said...
Hi Hoagie, I am currently treating with bio magnetic pair therapy and seeing improvement. I remain curious about other treatments. I have a few questions if you don’t mind…



Did you undergo pre treatment testing to ensure you weren’t allergic to bee venom?

How do you determine the correct number /frequency of stings?

Thank you.


It is important to have an epi-pen before stinging. The first time I stung I stung once and waited 30 minutes if I remember correctly. Then I stung one more time. I was able to increase my stings by one every week. I stung along my spine, one inch off center each side. I worked my way up to ten stings and stayed at that amount. I would occasionally go up to 14 stings, but mostly stayed at ten. I was stinging three times a week. If you are interested I strongly recommend you join the BVT for lyme fb group. Ellie is very active on there and you'll get plenty of help through your therapy.

It's great to hear you are seeing improvements with your current therapy. I hope you come to a full recovery.
Posted 6/2/2022 1:47 PM (GMT 0)

Deep_sleep said...
Hoagie, can you work out often and hard without increased die-off or similar? I have been working out 4-5 times a week for a while but most sessions have been quite short at home with small dumbells. I recently started at a gym and I'm able to push a lot harder with squats, deadlifts, weighted pull-ups, etc, but I'm getting very toxic and a small increase in symptoms because of that.

I have backed down and go to the gym a bit less often and around 30 min, but would love to work out more as I don’t have any fatigue problems around working out. I take creatine as a pre work out.

I have gotten to the point where I can work out vigorously for over 2 hours. That's lifting heavy weight and adding cardio at the end. It was tricky getting there though. Definitely listen to your body.

Creatine is good, but I'd look for a pre-work out combo supplement. They usually have creatine as one of many ingredients. Recovery/rest days is super important too.

Post Edited (Hoagie) : 6/2/2022 7:53:49 AM (GMT-6)

Posted 6/2/2022 1:49 PM (GMT 0)

Garzie said...
great to hear of your success!

I'm also a firm believer in exercise being important in chronic illness recovery

i am working out a few times a week and working my way up in intensity - typically 30-45 minutes
mainly dumbbells and body weigh exercises - press-ups etc

i am also experiencing herx like symptoms after workouts - especially when doing so while on antibiotics/herbal antimicrobials and proteolytic enzymes for biofilm/fibrin deposits

its as if the exercise forces blood to flow - and maybe abx tissue penetration and thereby increases killing and maybe releases toxins / bacteria - and i get more immune activation / herx effects

typically for me this is mainly being super achy ( many times normal for the exercise) - sleep problems the night after exercise - maybe somewhat increased headache - and a bit of increased fatigue the next day.

i do not know what citrulline does specifically - so that's interesting if it helps this particularly - but i am not sure supplements are the answer - my diet is pretty good - and my general function is improving generally

Sounds like you are in the right track! Are you cycling off your abx? What is your schedule if you don't mind me asking?
Posted 6/2/2022 1:50 PM (GMT 0)

RainyCloud said...
Really happy for you Hoagie! I remember you helped me a lot in the BVT thread. So great to hear from you again.


Hi RC! How are you?
Posted 6/2/2022 3:00 PM (GMT 0)
Hoagie

no - I'm only taking Methylene blue for bartonella as an antibiotic at present
i had to work up to the current 120mg dose over several months - so i am not cycling on / off it

i used antibiotics for lyme and bart before for around 12 months ( doxy, axithro, rifampicin combined) - and had only moderate improvement - liver enzymes went high and i had to stop -

antimicrobial herbs seem to have helped me more - but i was v sensitive at first - and had to build these up v slowly to current doses - which are in line with or a little above buhner's suggested doses for bart etc
Posted 6/3/2022 6:42 PM (GMT 0)

Hoagie said...

I have gotten to the point where I can work out vigorously for over 2 hours. That's lifting heavy weight and adding cardio at the end. It was tricky getting there though. Definitely listen to your body.

That is great. I will get there one day and hope it's soon rather than later. I want to eat/drink quite clean so I won't try any pre work out mixes but will try red beet juice tomorrow. I can visually see that I'm getting more muscles after starting at the gym, so I will be taking it easier and giving it time, and hope that it works out better soon.
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