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Bartonella symptoms success?

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Posted 7/7/2022 4:53 PM (GMT 0)
Anyone here clear bartonella and got rid of the depersonalization, intrusive thoughts , and 24/7 being scared of death ?
Posted 7/7/2022 6:05 PM (GMT 0)
I believe I am in remission
I treated bart extensively and am now on a maintenance program.

I had a Bartonella focussed protocol that I followed for 6 months (after treating Babesia for several months prior)
Posted 7/7/2022 9:47 PM (GMT 0)
Did you have the neuro symptoms?
Posted 7/9/2022 7:34 AM (GMT 0)

Saultarus said...
Did you have the neuro symptoms?

Yes, I did.

I had brain fog, short term memory issues ( still struggle with that but getting better)

My head was actually sore to the touch at times.

Also had a pressure feeling behind my eyes.

But the mino side effects itself was likely contributing to it too.
Posted 7/9/2022 3:26 PM (GMT 0)
Saultarus,
There was an old member here named Jackie Moon, who had severe Bartonella. Jackie recovered after several years treating with Dr. M. He/She came back a few years ago to post a success story:

https://www.healingwell.com/community/default.aspx?f=30&m=4127235

Post Edited (WalkingbyFaith) : 7/9/2022 8:56:01 AM (GMT-7)

Posted 7/9/2022 3:37 PM (GMT 0)
Hi, Saultarus. I'm sorry you're dealing with some of the most awful symptoms. Are you asking if it's possible for those to go away? Absolutely. Don't give up.

I can't be positive that my symptoms were from Bartonella specifically because I tested positive for several other infections and mold toxicity, but I had what you describe, as well as many other neurological symptoms.

Treatment helps, but sometimes people have lingering conditions and damage that can contribute long after the infections themselves have been addressed. In my case, I needed to rewire some of the parts of my brain that were primed to over-react and cause a wide variety of symptoms, genuinely address stress, and address mast cell activation syndrome (which caused neurological inflammation symptoms). That said, I know people whose neurological symptoms subsided after antimicrobial treatment only. I just point out that other things can be necessary so people don't get discouraged, and keep trying things until they find what helps them!
Posted 7/9/2022 7:27 PM (GMT 0)

Girlie said...
I believe I am in remission
I treated bart extensively and am now on a maintenance program.

I had a Bartonella focussed protocol that I followed for 6 months (after treating Babesia for several months prior)

Girlie, did Dr. J combine Rifabutin with Claithromycin like Dr. M does?

Also did he start you off with Rifampin and then work up the dose to get to Rifabutin? I felt like Rifabutin was going to literally kill me. I jumped right into it combined with Claithromycin and MB. Was scary as hell.

I know that Dr. J and Dr. SP in CT both are big fans of pulsing for all of these germs. Dr. M is not a fan of pulsing and does continuous therapy.
Posted 7/9/2022 9:23 PM (GMT 0)
“ Girlie, did Dr. J combine Rifabutin with Claithromycin like Dr. M does?

Also did he start you off with Rifampin and then work up the dose to get to Rifabutin? I felt like Rifabutin was going to literally kill me. I jumped right into it combined with Claithromycin and MB. Was scary as hell. “

I think Dr J uses Azithromycin instead of Biaxin.
I wasn’t on either under his care.
My core abx were mino, Rifabutin and Ceftin.
He did not start me on Rifampin.
Straight to Rifabutin.
My previous LLND had me take Rifampin.

I do know other patients that he prescribed Rifabutin and not Rifampin.
Posted 7/9/2022 10:52 PM (GMT 0)

Girlie said...
“ Girlie, did Dr. J combine Rifabutin with Claithromycin like Dr. M does?

Also did he start you off with Rifampin and then work up the dose to get to Rifabutin? I felt like Rifabutin was going to literally kill me. I jumped right into it combined with Claithromycin and MB. Was scary as hell. “

I think Dr J uses Azithromycin instead of Biaxin.
I wasn’t on either under his care.
My core abx were mino, Rifabutin and Ceftin.
He did not start me on Rifampin.
Straight to Rifabutin.
My previous LLND had me take Rifampin.

I do know other patients that he prescribed Rifabutin and not Rifampin.

Interesting. I found that Azithromycin was not helpful for my Bart - I took it with Rifampin and Pyrazinamide. My symptoms came back very strongly on this combo.
Posted 7/10/2022 12:24 AM (GMT 0)
“ Interesting. I found that Azithromycin was not helpful for my Bart - I took it with Rifampin and Pyrazinamide. My symptoms came back very strongly on this combo.“

The Zithromax does work on Lyme though.
Posted 7/10/2022 4:31 AM (GMT 0)
Azithromycin did nothing to my bartonella infection, until I took it with mepron. Then suddenly I got a herx.

I found bartonella less resistant to minocycline, but minocycline is immunosuppressive which became a problem. I also had problems with rifampin stressing my adrenals.
Posted 7/10/2022 1:58 PM (GMT 0)

Quin said...
Azithromycin did nothing to my bartonella infection, until I took it with mepron. Then suddenly I got a herx.

I found bartonella less resistant to minocycline, but minocycline is immunosuppressive which became a problem. I also had problems with rifampin stressing my adrenals.

I have been on Rifampin / Bactrim / Minocycline / Mepron for a while now. Seems to work the best for me. I am slowly integrating MB into the mix with good results. I have a strong herx every time I increase the dose. Sometimes at night its like I am plugged into an electrical socket!
Posted 7/16/2022 5:39 PM (GMT 0)
I believe that most of my bartonella symptoms have gone away. I still have some kind of scar/rash on my back, but I don't think I have any other symptoms.

(I've been dealing with effects from covid/covid vaccine for about 6 months so it's kind of hard to tell what is what).

I used to also be afraid of dying 24/7 and while I know it was mostly from the bartonella, it started to go away when I came to terms with the idea of dying, and was at peace with God.

Once I realized that Jesus paid for my sins, I wasn't so afraid of dying, but it was still hard because I wasn't thinking straight at all from all the infections, I was just in a constant state of feeling nervous. But between a whole bunch of herbal things I was able to eventually recover.
Posted 7/16/2022 6:30 PM (GMT 0)
NotimeforLyme,
Good post. One real positive for me through all this ordeal has been how God has used it to absolutely break the stronghold of fear off my life. I can remember even in childhood hearing adults talking about someone with cancer or hearing about some awful disease on tv and feeling worried about whether something awful could happen to me.

Really awful things have happened to me, and I have survived them all. In the process, I have gained more freedom, joy, and peace than I ever had when things were good and I had a cloud of “what ifs” hanging over me. Even this past year, which has been ridiculous in terms of hardship, my faith in Jesus and the knowledge of Him and His ways has grown exponentially.
Posted 7/17/2022 11:09 PM (GMT 0)
I still have some sensitivities and symptoms now and then, especially when herxing, but I feel more functional than a lot of “healthy” people around me. Going very well at work and I'm starting to tolerate being a lot more active. Went mountain biking today and will hopefully try bouldering next week. But it has been 9 years and a lot of hard work.
Posted 7/17/2022 11:24 PM (GMT 0)
Deep sleep,

Glad to hear that things are going very well at work. That alone is a great stress relief and a positive change for you that you can feel excited about.🙌
Posted 7/18/2022 2:32 AM (GMT 0)

Deep_sleep said...
I still have some sensitivities and symptoms now and then, especially when herxing, but I feel more functional than a lot of “healthy” people around me. Going very well at work and I'm starting to tolerate being a lot more active. Went mountain biking today and will hopefully try bouldering next week. But it has been 9 years and a lot of hard work.

Wow, 9 years! I’m at about 71/2 years - so I feel your pain!

I’m finally feeling well enough to feel like a “normal” person.
In the past I’ve hesitated to make plans with friends as I never knew how I would be feeling.

Great that you are able to do physical activities again!!
Posted 7/18/2022 12:24 PM (GMT 0)
Thank you Girlie and WalkingByFaith. Yeah, that work is going well is the most important thing so that we can spend more money on my girlfriend's health which is lagging behind mine.
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