Urgent help needed

Sorry I don’t have any experience with this type of thing, so feel free to completely disregard my advice. Would icing your arm help? I mostly struggle with extreme ocd over cleanliness brought in by general COVID concern and my mcas. Even items I’ve washed I get scared to touch. My newest strategy is to keep yelling “washed” in my head every time I touch it over and over till my brain sort of moves on. It sort of works with repeated use.

burning neuropathy usually indicates nerves are being damaged. by what is the real question? many of my psych symptoms when away after adequate bartonella treatment. ...but holy basil literally saved my life more than once until you u can handle the root of the problems ...

Thanks everyone for your replies.

I am not certain, but I think I had a severe die-off of bacteria, literally I was feeling myself like dying.
I made a science based mix of natural oils that would attack about 9 different mechanisms of the bacteria. And I took a lot of it in (not thinking it through/too lenient). about 20-25 drops in 1 day. While 1 of those oils you can take just 1 or 2 drops `or 2 times a day, according to packaging. Also, I was taking in Doxy about 125 mg twice a day for 2 days. The 2nd night hell started; literally making me feel like dying. Than psychological issues popped up, severe ones.

Herx can be dangerous, if it was Herx. It can kill a person according to Bühner and other literature.
But I also read in books and LLMD-webpages about yeast causing Lyme-like symptoms. And I notice I've developed a thin white layer on my tong as well. So, it is probably a yeast overgrowth as well. Will ask my doctor if I can get fluconazole for 25 days + Nystatine (Dr. Marty Ross on his webpage recommends it).

I feel very thirsty very fast, by the way. Does that say anything?

To detox I take:
Chlorrella 6-9 tabs a day with 1 meal. ( I now read this is too little; should be 3-4 times a day)
Sida Acuta 5:1 (0.5-1 mL; 3 times a day) (Seems to me now, this is too little for neurotoxins, or... ?, but it attacks Bartonella too)
Gou Teng (35-50 drops; 3 times a day) for neuroborreliosis
L-Gluthatione powder; 750-1500 mg a day (not every day)
Silybum marianum aka Milk Thistle (1 caps, 1-2x a day)
Cynara scolymus aka Artichoke (1 caps, 1-2x a day)

Bühner mentioned Bai-Hu-Tang (Chinese medicine) in his book. I bought that. It stopped the burning feeling in my brain quite fast, that ensued after hell-night (after 2nd day of Doxy and the accidental excessive amount of essential oils + herbs. But I could not find the research behind it. And Buhner does not provide a reference.

For Lyme and Co I take
Cryptolepis 2:1 (0.5 mL 3 times a day) (intending to increase)
Stephania 2:1 (0.5-1 mL 3 times a day) for eye problems/infection, etc.
Salvia 2:1 (0.5 mL 3 times a day) for Demylineation of neurons
Berberine HCL (started recently; experimenting with doses; should lower probably to 250 mg or less 2x a day)
Baicalein (500 mg; 2-1-2, changed into 1-0.5-1)

Note: I stayed away from CatClaw for a while as it was said it could cause Anxiety like symptoms in some.
So I tried to pick it up again but at 20-30 drops + 1 capsule. Maybe I should cut it out ??

Also, I don't remember the reason but I also stayed away from Japanese Knotweed lately. Maybe because the chinese medicine Bai-Hu-Tang also modulates brain inflammation-like symptoms. The two seemed too much to me.

last night I skipped doxy and quit it, worried about visual problems (stars/shaky vision/tunnel vision/staring/stings) and other physical problems being caused by it. what are your thoughts?
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I found a study indicating Doxy is good at killing spirochetes of Lyme but results in excessive growth of round bodies. But combined with Baicalein, it kills half of the round bodies in 72 hours (in vitro/petri-dish study)
So, I took several grams a day of Baicalein to build up. And than took 125 mg Doxy twice a day. Forgetting the study mentioned, with baicalein the amount of Doxy could be halved (in vitro). I had increased Doxy.
On top of that, the oils I use are used to have the following modes of attacking bacteria:

Efflux Pump Inhibition
Cell division Inh.
Disrupt. Cell membrane Integrity
Protein and DNA Synth. Inh.
DNA Synthesis Inh.
Lossing membr.-bound [..] enzymes
Cytoplasm leakage & Osmoregulation Disruption
Cell membrane disturbance
Inhibiting ATP-ase in Cytoplasmic Membrane

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Sorry if I'm writing a bit dis-organized

And again, thank you for taking out the time to reply. It is much appreciated.

bluelyme said...
[...] ...but holy basil literally saved my life more than once until you u can handle the root of the problems ...

thanks BlueLyme...

I forgot to mention I was using Ashwaganda. Should I stop that and use Holy Basil instead?
Maybe 2 will be too much?

wow - it sounds like you were doing a huge amount at once

no wonder things got scary and distorted reasoning got in

I'm not sure which natural oils you used - but i have experience with oregano oil recently.

i am half way recovered, or better than that some days - and function reasonably well now - for instance i am able to exercise etc
but a single drop of oregano oil a day caused noticeable herx - sleep disturbance - all over pain increase - mood disturbance etc

i am pretty confident 20 drops would put me in the hospital - even at this stage
i have been surprised how potent they are

just a warning to others experimenting with these - start lower than you think you need and work up gradually

if you know you are prone to phycological disturbances - these are likely to flare when treating so i think it would be good advice to plan ahead
1, go slow and low to give yourself a chance to adjust before hitting the stage where you might harm yourself

2, make an emergency plan before hand and be prepared to enact it easily
2.1 the plan can include things like emergency remedies you know help you in these circumstances ( rather than random new ones to try )

2.2 have prearranged signs / symptoms to use to trigger the plan
eg its never a good idea to start cutting/harming yourself - as soon as you notice these thoughts - trigger the plan

2.3 plan to not be alone if these thoughts start to arise - prepare a friend or family member for what might be needed in advance and get their buy in to help - or use a telephone help line - or any other means of not being alone if you start having distorted reasoning to the point you may harm yourself

that would be my advice on the topic - and what i would do if i were in this position -
basically be systematic and planned in approach to avoid severe and unpredictable results

Just to chime in -- please do not assume that a thin white layer on your tongue is automatically yeast. Just from a quick internet search:
"Candidiasis (“thrush”) is a yeast infection that may look similar to coated/
hairy tongue but is almost always sensitive or painful, and it
will also usually affect other parts of the mouth in addition to
the top of the tongue. Your doctor may perform a laboratory
test to rule this out by scraping your tongue to look for yeasts"
Source: https://www.brighamandwomens.org/assets/BWH/surgery/oral-medicine-and-dentistry/pdfs/coated-hairy-tongue-bwh.pdf

When I had acute illness due to Lyme (103.5 Fever and "scary" blood work), my tongue was white as snow. The ER doctors did not find that result surprising with Lyme. A couple days of doxy is not enough to push your body towards candidiasis. It's possible you were already there if you eat a diet of junk food, but otherwise unlikely. Keep in mind candida overgrowth never happens overnight; it takes months to years to get there and months to years to undo the damage. You can try berberine (goldenseal or phellodendron preferably) if your history indicates candida to be likely.

Also, unless I misread it looks like you already have a lot of detoxing going on but I recommend going slow with detox. Introduce one thing at a time. Wait at least 3 days before introducing something else. Detox can sometimes aggravate symptoms. I seem to be dealing with that right now and from browsing the forum, that seems to be common.

Garzie said...
wow - it sounds like you were doing a huge amount at once

no wonder things got scary and distorted reasoning got in

I'm not sure which natural oils you used - but i have experience with oregano oil recently.

You can temporarily download an overview I had made, based on science. These constituents of herbs/oils were tested on various bacteria and yeast, and their effects noted. I put them in an overview. The assumption I made is that if it had X effect on some bacteria or yeast, it might have the same effect on Lyme (&Co). Part of it is Dutch. It was meant for personal use. I took about 25 (or 20; forgot the exact number) drop of the mix on the day, before the night all went hell mode.
https://ibb.co/68xshyW

Post Edited (UnicornMadness) : 9/13/2022 11:00:34 AM (GMT-7)

Garzie said...

curious as to what made you go for the zero-to-hero approach to dosing ?
seems like you have been around long enough to know it was asking for trouble ....

I wanted to do 5 drops, 3 times. Really pushing it. But than the dropper I put everything in dropped too fast too many drop. I was lenient and thought "let's just blow up these @$#%$ bacteria", I can handle this. Complete forgetting that not just the oils were too strong, just Baicalein herb alone would make Doxy kill 25-40x more round-body bacteria than it usually does (which is close to none), and one would need less Doxy. I was increasing Doxy. Hence I lost track of all the things I was doing and their single as well as synergistic effects and how extremely potent at killing the bacteria they would be. I probably needed to do a few things, maybe combine 3 things, not more. Now paying the price it seems. But I suspect Doxy was causing a lot of serious side effects as well, mainly with my eyesight; stars when closing/squinting my eye; vibrating vision; heart racing; pressure in the head... and many more. So, to be safe I quit Doxy. But I keep wondering, how do I know for sure which one it is? Herx or Lyme or Doxy?

Garzie said...
some recent research has identified fibrin and amyloid built up in micro clots in chronic disease patients actually contains trapped inflammatory chemicals - that when broken down cause an inflammatory flare in the patient
i suspect something like this is going on with these compounds also in biofilms
and also a ischemia reperfusion type injury in tissues that results in free radicals when biofilms are disrupted and blood flow improved - which could also be one of the mechanisms driving herx after biofilm agents so many of us experience

Garzie, do you have a link to the research? (If it is not too much hassle)

My plan was, at a later stage, to tackle damage at mitochondrial level, after cleaning up fibrin and biofilm layers. When bacteria swarm, and somehow you manage to kill them, still a part of biofilm/fibrin (of i.a. the swarm) remains in your tissue/body. This needs to be cleaned up. And after that comes fixing mitochondria. -- I think I got this from Dr. Marty Ross his webpage and a book from Dr. Kinderlehrer, and some research papers (don't remember which ones).

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Went to my neurologist today, just to hear she thinks my issues are remaining problems of a Lyme treatment that has finished. The Post Lyme syndrome... She suggested I take therapy to deal with the day-to-day physical issues I am facing.

Garzie said...

the neurologists advice sounds like a good idea to me

Thank you for the elaborate reply.

The last sentence however caused some confusion with me. I mean, isn't this entire (herbal) self-treatment 'scene' about rejecting the idea that there is such thing as a Post Lyme Syndrome (and that there actually should be long-term adequate treatment with Antibiotics and Antimalarial medicine)? To me it seems accepting the neurologists idea is like saying "Yeah, I agree, 10-12 days of antibiotics killed all the germs, and what I experience now, like you said Ms Neurologist, is post Lyme syndrome, so let's focus on therapy to help me deal with the severe daily impairments and quit looking for a treatment of the underlying problem."

Hence, I'm not really following why you agree with her idea. Maybe I am missing out on something?

“ Went to my neurologist today, just to hear she thinks my issues are remaining problems of a Lyme treatment that has finished. The Post Lyme syndrome... She suggested I take therapy to deal with the day-to-day physical issues I am facing.“


That is why it’s important to see (if you can) a Lyme literate neurologist!!

Sorry you had to listen to that drivel

Hi Garzie,

To be brief, I totally get where you're coming from.

And no, I was not exaggerating about the extreme physical sensations that lead to an extreme urge to cut my arms open. It felt uncontrollable, something psychological was going on as well.. ..that was the scary part, realizing the lack of control and rationality being shoved aside almost 100%.

And since I have a past of C-PTSS I am fully aware that these experiences with Lyme & Co not only will likely result in new psychological trauma (in case it hasn't already), but it probably blew up old trauma (that was treated, mostly).

If I may summarize your suggestion, you see going into therapy, as some way of getting help to get through this phase of hell I am going through. In that regard, it makes sense. I'm living on my own with no one to rely on, so you bet that makes everything I experience, esp. psychologically extra risky. And during the day, the ideas, the dangerous ones, really feel on the edge. I did order the 'Basil' herb one member suggested. I hope it works for me as well as it did for him/her.

And is it normal when you have psychiatric problems with Lyme & Co, the issues even when super severe, can go away in a split second? I notice this quite often. Suffering a lot psychologically (with physical stress in the head as well most of the time) and than 'poof' (or almost 'poof-like)' it is gone. That feels odd to me. Did you guys experience that as well? I'm asking so I can rule out some theories I have.
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Here's perhaps something else I'd like all of your views on. I'm kinda stuck with one thing for some weeks now.
Actually let me do that in another post. (In notice I need some break from the screen)