Going backwards (Babesia herx?)

Have been treating Babesia for about a year. Had some harsh herxes and not much progress for awhile. I was continuing treating bartonella simultaneously.

By this summer I was doing better, not well but definitely better. Also stopped rifabutin sometime in the spring.

10% better, then 20% and then very briefly 30% better and then suddenly things started to crash.

July 4th I went up to 10ml of Mepron. Continuing clarithromycin, minocycline, oregano oil, allicin. I think that’s it for killers.

I thought maybe PT for herniated disc was the issue or glutathione IVs (that i have been doing all summer anyway) could be the problem but no, 3 weeks off and not bouncing back. And no, it couldn’t be this harsh.

This has been going on for about 5 weeks now and even more aggressively last 2/3 weeks. My dr is adamant that it’s not bartonella bouncing back to front but just Babesia gives these harsh surprises sometimes every 6/8 weeks. I am not convinced and we had reverse happen last year and took a few appointments to figure out that co-infection switch was needed.

These cycles happened before too with eventual need to switch treatment.

I had bunch of symptoms return and some got worse but nothing that I would definitely point to a specific infection.

One major symptom has returned that I haven’t had in 2-3 years is some kind of panicky “terror” at night. It’s hard to describe. It’s not a panic attack, and you just get really aware of your breathing. I have seen people describe it well. If I didn’t know any better I would be in total panic afraid my brain broke. It’s like you are jolted up from sleep or as you are trying to sleep. It is scary but I am not anxious. It is accompanied sometimes by feeling really sick. I had it years back but it must have dissipated with treatment.
I feel this symptom could be a key to which infection is dominant.

None of the detoxing remedies ever helped.

Thanks RainyCloud,

If you don’t have Babesia then this symptom points to bartonella and I am wasting time waiting for a supposed Babesia herx to calm down.

Our plan was to hit Babesia and keep opening up biofilms which would release trapped bartonella but I don’t think we have enough medicine to keep that in check. At some point situation flipped and bartonella became dominant infection. That’s my theory.

My dr is knowledgeable but he had been slow to react in very similar circumstances.

I wonder what can I do… this has been pretty harsh drop. I am pausing Mepron for a few days and if it helps maybe he is right. Otherwise how else can I gauge this?