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Hot flash, nausea and fast heartrate

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Posted 11/16/2022 3:47 AM (GMT 0)
I am new here, but have been lurking for years. Recently, I have had several episodes that have landed me in the ER. I have five strains of lyme, one of bartonella and I used to have babesia, but I tested negative a couple months ago. (Igenex) I know that test can be a false negative.

My recent episodes all happen when I am unwell. I get a massive, sudden hot flash, followed by a super fast heart rate. Is these babesia? I have a multitude of heart tests in a couple weeks to rule out heart stuff, as that runs in my family. I also started quintessence recently, so I wonder if I am causing a herx? Thoughts? It's absolutely frightening when it happens. I was driving with my young son the last time it happened.
Posted 11/16/2022 4:17 AM (GMT 0)
It is possibly babesia, but I've gotten these symptoms from borrelia too.

What I believe is happening is some toxin causing the sudden activation of the pxr/p-gp/cyp3a4 detox pathway. This results in a lot of flushing, and the drop in blood pressure causes the increase in heart rate.
Posted 11/16/2022 5:27 AM (GMT 0)

RachelWest said...
I am new here, but have been lurking for years. Recently, I have had several episodes that have landed me in the ER. I have five strains of lyme, one of bartonella and I used to have babesia, but I tested negative a couple months ago. (Igenex) I know that test can be a false negative.

My recent episodes all happen when I am unwell. I get a massive, sudden hot flash, followed by a super fast heart rate. Is these babesia? I have a multitude of heart tests in a couple weeks to rule out heart stuff, as that runs in my family. I also started quintessence recently, so I wonder if I am causing a herx? Thoughts? It's absolutely frightening when it happens. I was driving with my young son the last time it happened.

Welcome to the forum, Rachel.

It could be a herx or possibly “just” a symptom of one of the diseases - ie lyme, Bart or Babesia.

I had symptoms ramp up sporadically even prior to even treating the infections.

When I herxed after treating Bartonella it was a lot more intense than I had ever experienced before and lasted longer.
Posted 11/16/2022 6:50 AM (GMT 0)
Those symptoms together sounds like MCAS to me.
Posted 11/16/2022 1:46 PM (GMT 0)
MCAS caused me typical allergy symptoms, runny nose, itchy eyes, etc. What Rachel describes seems like just plain detox.
Posted 11/18/2022 9:54 PM (GMT 0)
MCAS can cause a wide range of symptoms, including what you describe, so it's worth considering. Loads of things can trigger MCAS.

You've probably ruled this out, so forgive me if so, but could you be having hot flashes as part of menopause or perimenopause? They can be quite severe and can start many years before menopause.
Posted 11/18/2022 11:11 PM (GMT 0)
I got hot flashes and I assume it was due to CYP3A4 messing with my hormones. So it has a similar hormonal mechanism as menopause, but the cause of the hormone disruption was something different.
Posted 11/19/2022 5:04 AM (GMT 0)
Thank you for the replies. I have had hot flashes as part of menopause but am currently taking estrogen and have not had those in a couple of years. I also get hot flashes as part of babesia. I recently cut back the drug I was taking for babesia, as I tested negative, and that is approximately when all hell broke loose with my heartrate and now these new hot flashes. I am going to go back to taking something for babesia daily and see if that helps. I also get a low grade fever when not on something for babesia, so my guess is that it's not really gone...I also agree that it could be MCAS. I think i had covid back in August as well, so that probably messed me up too.
Posted 11/20/2022 12:16 AM (GMT 0)
I get facial flushing, higher heart rate, hot/cold spells, etc. I think they are infection symptoms for me, and I plan to go after Babesia more soon as I'm suspicious that is what is causing it. Autonomic nervous system disfunction can cause the temperature dysregulation and fast HR.
Posted 11/20/2022 1:00 AM (GMT 0)
I had some of those same episodes all together in the past and for a while I was having them them at night, they would wake me up but I thought I was having a heart attack or something.

Being a guy you would think I’d be limited by hot flashes, but I think I got them from two things going on: the tick infections and when my thyroid would go crazy.

I can still get the ones from changing thyroid doses too quickly but those symptoms are very minimal hot flashes compared to the massive ones I had when the tick infections were raging.
Posted 11/21/2022 7:56 PM (GMT 0)
I just had my thyroid checked, and it wasn't too bad so I'm still 99% sure mine is infection.
Posted 11/22/2022 6:48 AM (GMT 0)
Yeah, I completely forgot about how bad my hot flashes were with babesia in the beginning because I had been treating for so long. It has taken me completely by surprise now that they are back. They are violent when they come on - way worse than menopause hot flashes. I would still take them any day over the racing heartrate though. Nightmares are back too, which should have been a telltale sign for me. I am on amoxicillin currently and it makes my brain so foggy - I think that is part of why I missed the signs.
Posted 11/22/2022 7:48 AM (GMT 0)
Hi Rachel,
I have babesia too as one of my coinfections and it effects me just like you’re describing except I also get horrible dizziness with it.
that may be my POTs as well.

what do you “treat babesia daily” with? thank you.
Posted 11/23/2022 3:11 AM (GMT 0)
I get really dizzy too! My doctor thinks I have mild POTS as well - it's worse when I herx. Right now, I am doing tinidazole twice per day. I am going to add Alinia soon. I had a horrible herx when I added herbs. What are you treating with? I have done Malarone in the past as well and that really worked too.
Posted 11/23/2022 3:27 AM (GMT 0)
Hi Rachel,
thanks for the reply. I am currently not treating with anything. I was technically in remission until a month or so ago. Things started slowly coming back. I haven’t treated since November 2019. So I guess i’ve done really good.

I treated for about 4 years straight before that. I had a stretch of about 9 years total chronically struggling with lyme and bab and chlamydia pneumoniae.

I originally had the “allowed” amount of antibiotics: they gave me three different spectrums of abx. I think it was 13 days worth. I felt great for a month then crashed even worse.

after that I had to travel out of state to find a lyme literate naturopath. the herbal treatments were extremely powerful but i am very sensitive. I herxed on super low doses. I tried to keep increasing and working thru the herxes but eventually had to stop due to being too toxic.

I found a local “underground” dr to help me (a dr who treats lymies but not advertise for it) and he is AMAZING. he helped me through the GAPS diet, set me up with cranial sacral, lymphatic drainage, FSM treatments, and helped me to find homeopathics that worked for me. We stopped killing snd started supporting.

I do “treat” I guess, just in a super supportive way. I do detox baths, cranial, FSM, castor oil packs, etc.

I find when I take a break from these things now I get symptoms the past two months. sigh. so yeah, it’s a full time job.

but i’m not taking a med or an herb to kill any pathogens right now. i’ve been experimenting with carnivore/ketovore diet and it’s extremely helpful. on the days I eat that way I have beautiful mental clarity and no joint pain.

sorry that was so long
Posted 11/23/2022 10:14 PM (GMT 0)
Everyone else has already said mast cells. But that was my first thought as well. I've seen people have those symptoms paired with digestive issues. Hope you're getting some valuable help through this thread.
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