Lyme N

hello and welcome to the forum

i do not know anything about the treatment you mention - Lyme N - but thank you for documenting your journey with it and good luck.

for info - a ketogenic diet (a diet that restricts carbohydrate and uses healthy natural fats for energy instead) has many documented research studies behind it for improving brain health and even treating brain disorders such as autism and epilepsy - going back around 200 years.

it is not only helping me improve my CNS symptoms - but my overall symptoms of fatigue and pain have improved steadily since changing to this way of eating.

I agree with FeelingLymey, with my overarching objection being that I will not put anything into my body that does not disclose ingredients, but I also understand that when we are desperate (as many of us are at various points!!) sometimes we have to try things that don't quite feel right. Sometimes we are pleasantly surprised, although usually not. I will be interested to read what Wanda reports, and definitely hope everything works out!

Monday 11/22/2022

Reporting diary in hopes to encourage others! Lyme N is a 60 day protocol at home daily use. Dr's clinic will also give her Hyperbaric Chamber, Ketone DeltaG Performance Liquid 3.5 oz, and Lymph massages starting on 11/28/2022 first dr's appointment

First use, on 11/18/2022, daughter was given a small bottle dr sample use of Lyme N in the dr's office to set up nebulizer (brought from Amazon) and shown how to use it. Important to note, dr told daughter to find her time to nebulize.
She wants her to be on a consistent schedule. Daughter chose 3 p as her schedule. Later on that night (after 11 pm), I noticed that daughter had slight more energy and TALKING more than usual without realizing. When I asked her how she felt, she said, not sure.

11/19 First full day of 20 to 22 small drops in the nebulizer. The first time full use will cause scratchy throat but dr said -it will pass. Drink distilled water. OMG! At 5 a. m, daughter WOKE me up grinning, saying that one persistent concerning symptom is GONE. She said, I GOT MY LIFE BACK!

So far, so good. I will keep posting on Mondays of my honest observation and my daughter's reactions to Lyme N.

(I am not promoting or paid to report Lyme N) My daughter and I wish to help others find their treatment. My daughter's journey has been a nightmare, and my prayer was -God send help! The newest doctor is a believer and she gives hugs and told my daughter... I got you!

See you on next Monday!

God heals!

Post Edited (Wanda22) : 12/20/2022 10:08:31 PM (GMT-8)

Looks like a scam to me

https://drcremers.com/new-lyme-treatment-lyme-n/

It's Monday!

In the last week, my daughter cleaned up with more energy before Lyme N (prior to Lyme N, she was mostly in the bed and would force herself to do something). Concerning symptom (hot flashes), was present but not as intense before Lyme N. Ate something and got a little hot (working through it) also a scratchy throat, onset, of inhaling gas to expect (dr said it will pass). I gave her gargle with salt water and I purchased Ceparol sore throat lozenges she has not used these.

With Lyme N, dr has recommended additional services starts today 11/28/22.

* Hyperbaric Oxygen Therapy 10 session package.
*DeltaG Ketone Performance Liquid 10 bottles. I will take a picture today.
*Lymphatic Massage Therapy 8 sessions for 60 mins each

Important to Note: Before Lyme N, 2 tests were recommended. Daughter started Lyme N and the results are not in as of today. 1) DNA Connexions $400 ((not yet taken)). MacTech Imaging $275 (taken. this one looks for parasites/spirochetes). This test will be retaken after 60 days to see if parasites are still in the body along with the DNA.

Okay, see you on next Monday!

Post Edited (Wanda22) : 12/30/2022 12:15:00 PM (GMT-8)

At the onset of the bite 2018, my daughter was undiagnosed. It was all in her HEAD until we met a functional doctor who tried; he ran multiple private test one of many was called, Cyrex Lab $350 named the spirochetes you mentioned by name. The dr was unfamiliar with tick bites. He was treating my daughter for an allergic reaction to a medication. When he could not help her further, WE searched for help! Throughout the years, daughter had spiral out of control mentally, physically, and emotionally. During her dark journey, we met a naturopath ((at the onset of finding out (aforementioned) about Lyme)). This naturopath meant well but she was not versed in aggressive bacterias and neither was I. In her program she did weekly spit test. It was useless.

Now in November of 2022, with the Lyme N protocol, and to answer your question, when I heard spit test, I thought how would it identify co infections or help? The dr explains that the spit is videographed of the human micro biome and unwanted pathogens in the body (it will not name but it will show pathogens). At the end of 60 days, re tested to see if negative pathogens are gone. Again, It doesn’t identify the culprits but Lyme N does. I hope this helps! If you or anyone have any further questions, please ask warrior!

Best to you strong souls!

Wan

Post Edited (Wanda22) : 12/30/2022 12:20:10 PM (GMT-8)

Wanda22 said...
At the onset of the bite 2018, my daughter was not diagnosed. It was all in her HEAD until we met a doctor who tried; he ran multiple test one- Cyrex Lab $350 named the spirochetes you mentioned by name. The dr was unfamiliar with tick bites. He was treating my daughter for an allergic reaction to a medication. When he could not help her further, WE searched for help! Years later, daughter spiral out of control mentally, physically, and emotionally. During her dark journey, we met a functional naturopath who did a spit test. It was useless.

Now in 2022 and to answer your question, when I heard spit test, I thought how would it identify co infections? The dr explains that the spit is videographed of the human micro biome and unwanted pathogens in the body (it will not name but it will show pathogens). At the end of 60 days, re tested to see if negative pathogens are gone. Again, It doesn’t identify the culprits but Lyme N does. I hope this helps! If you or anyone have any further questions, please ask warrior!

Best to you strong souls!

Wan

i am sorry to say - that test sounds entirely bogus to me - and i have done a great deal of digging into conventional and unconventional forms of testing.

i hope your daughter does well - but i am concerned that Lyme N and many of the other fringe treatments could just be a way for other people to empty your bank accounts while promising the earth.

what is the bill for that program ?

hi Wanda

i totally get there is no price that is too high for good health - on that we agree

the only difficulty i have is spending what little i have left of my life savings on treatments that are at best unproven and at worst, straightforward exploitation of the sick an suffering.

As no lyme treatment is fully effective for every patient it can be very difficult to fish apart the legitimate from the illegitimate.
indeed as far as i can tell - the practitioners themselves may be well-meaning but taken in - or believe themselves in unproven treatments - their genuine belief and confidence can then be quite compelling - all of this makes it a minefield to navigate for all of us with chronic lyme.

i do not know what category the Lyme N treatment fits into - but there are some concerning warning signs.

in any case - i wish you and your daughter every success in you journey though

and please do feel free to continue to document your experiences here.

all the best

Please keep reporting on treatment progress regardless of methods utilized. There are many of us out there who do not use standard antibiotics and who appreciate learning about other options.

Wanda22 said...
Hello.

I agree to finding a treatment that works. Kara, I am glad to hear that you are considering it based on your dr’s office + feedback! And yes, Margarita!

Unfortunately, these bacterias are military grade no pun intended.

My daughter is early on with the Lyme N treatment 14 days (as of 12/2/22) as aforementioned she too has tried different protocols. Today was a yucky day. It seems like she is herxing and energy crash.

The Lyme N instructions reads not to take any supplements or herbs to help through this process; Dr said usually start feeling better should manifest within 30 days; drinking plenty of water (drinking distilled water) to flush toxins...so far, improvement mid energy compared to the beginning low and reduced Lyme hot flashes.

In day 14, still feeling unwell despite observing the above improvements. Also, still waiting on pathogens spit test results (did this before Thanksgiving) This test will show spirochetes pathogen only and will be re tested after treatment for clearance.

I will post the last treatment service update on Monday 12/5 and her further experience.

Lyme N is an option. If you have questions, concerns, or just to vent -I am here!

Best

Wan

Wanda -
i am still somewhat perplexed by the "spit test"

its well established that many species of dental spirochete occur naturally in the mouths of healthy persons - these are in the genus Treponema, for example Treponema denticola.
These are not the same as the spirochetes that cause lyme disease - which are all in the genus Borrelia.

so i do not follow what relevance looking at them would have for Lyme disease diagnosis or treatment.

can you shed any light on that ?

My doctor said it’s his preferred method of treatment and helps in 75% of cases and has the best chance of being curative. He has treated hundreds with it.

Post Edited (Kara NH) : 12/3/2022 5:08:03 PM (GMT-8)

Hello Garzie,

As agreed with you earlier, I, too, was perplexed because of an early journey experience with a naturopath, now hind sight is 20/20, she was not in-tune to Lyme or it’s aggressive nature, she gave my daughter regular spit tests on every visits; detox ideas and supplements. I did NOT know what I know today.

My hope in sharing my daughter’s experience is to hope to help others on this same journey to seek out options.

This is what I wish I had (a Lyme flashlight) in the darkness of Lyme HELP! So yes, I was very perplexed, and the first visit with the newest dr. The first question asked was regarding the western blot test because my daughter has never taken one. Important to note for this conversation, my daughter has had blood draws, every test imaginable to include CAT/MRI scans, energy work, biofeedback, allergic to bees, seen 1 infectious control dr who tested my daughter for Lyme Disease and gas lit us in the denial of co infections of Lyme and the proof of bacterias from private lab results that were refused.

The only private lab in her five year journey was Cyrex Lab (2020) who confirmed co infections of Lyme.

In her journey, the medical traditional community and antibiotic is to say the least, useless! The functional and natural community has helped in getting her to the next person of care and treatment.

So finding Lyme N and my daughter’s current dr has been a breath of fresh air!

This is the dr’s explanation regarding her process and recommendation to Lyme N...

The western blot test involves separating blood proteins to find those that suggest an infection is present. Too many false negatives exist. Therefore, the western blot test should not be considered the only indicator of whether someone has Lyme disease. Even with adding the C6 peptide ELISA with the two-tiered western blot, the sensitivity for identifying Lyme improves only slightly.

The dr recommend two tests. One is DNA Connexions, a urine test ($400) The other is MacTech Imaging ($200+), a saliva test.

The DNA Connexions test identifies co-infections common to Lyme disease. MacTech Imaging picks up where the DNA Connexions test leaves off by giving doctors an idea of a patient’s overall microbial load. Each saliva sample is scanned for spirochetes and then given a graded score.

At this date, her results are not in and the dr recommended to start treatment because my daughter was in a chronic state.

I hope this helps! If you have any questions, please continue to ask!

Best,

Wan

Post Edited (Wanda22) : 12/22/2022 7:21:39 PM (GMT-8)