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IV Rocephin and anxiety and symptoms seem worse

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Posted 12/21/2022 11:21 PM (GMT 0)
I just recently started IV Rocephin for my Lyme. Lyme hits me with anxiety and overstimulation in public and muscle twitching and a weird dizzy, rocking on a boat feeling normally. My LLMD said the IV should help a lot. However, it seems to be worse at times now. I now have one numb and tingly foot along with much worse anxiety that I cant stand. I thought I should be getting better, not worse and it is hard to understand the concept of worse before better. Does anyone else have any experience with this? Is the numbness normal? It has really become debilitating to me and makes it uncomfortable to even go out. It is scary to think I will be this way forever? Does this get better?
Posted 12/21/2022 11:33 PM (GMT 0)
Iā€™m sorry šŸ˜ž

I guess I have neurological Lyme as well but my DR just gave me doxy and herbs

Did your doctor mention why IV R was better for neurological L?

Thanks!
Posted 12/21/2022 11:34 PM (GMT 0)
Hi,

Not necessarily better but just that it goes straight to the brain I guess.
Posted 12/22/2022 1:44 AM (GMT 0)
i did a year on rocephin. holy basil helped with the debilitating anxiety. i may have nibbled a xanax to get by . it hit the borrelia and seemed to put my bart on pause but dizzy and panic was definitely bartonella symptoms for me . it does get better . figure about 1 month of hd treatment for every year you were sick... and just think of it as a really long bad trip , none of the terror is real .... some of my numbness was nerve related but most was structural. a good chiro got my atlas and shoulder back in and tingles went away . the sciatic nerve goes deep into the legs fwiw....

Post Edited (bluelyme) : 12/21/2022 5:47:00 PM (GMT-8)

Posted 12/22/2022 5:29 AM (GMT 0)
My LLMD told me to expect the worse herx reaction to IV Rocephin around the fourth week after starting this protocol. The extreme herx didn't happen to me, and progress was very slow over a 16 month period on IV. I've stated many times here that IV Rocephin should be used for the most severely ill patients who cannot tolerate any oral ABX. The cost and high risks of IV most often out way benefits. Most health care insurance plans only cover a few months of IV Rocephin, and longer treatment may be needed.

What other oral abx are you taking? And are you taking Actigal to protect you gall bladder?
Posted 12/23/2022 1:27 AM (GMT 0)
IV Rocephin sent me in a crazy place twice. Fever shot up to just under 106, shaking (whole body) violently, dazed.

That happened twice, so the doctor changed me to Bicillin.
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