Everbark said...
Thank you for this forum! I recently went through a very stressful period in my life and after that settled down I developed severe brain fog, migrating arthralgias, fatigue, and anxiety. I am one to ignore health issues but decided I had better do something. I am new to the area and do not have any health care established and can’t get appointments for months out so I went to an urgent care. They diagnosed me with Lyme based on symptoms and recent encounters with ticks (but no knowledge of a bite and no testing) and put me on one week of doxy. I went home to do research and realized that was completely inadequate. I called in that even the cdc recommends at least two weeks and they agreed to that. I had a very severe Herx reaction on the antibiotic that intensified all my symptoms for the entire two weeks. That level of intensity subsided over two days after completing the antibiotics but I never returned to my previous level of functionality before the antibiotics. I went to see an ND friend after that who is convinced I have chronic Lyme. She tested using the western blot through labcorps and I was positive only for IgG band P41. I also had a low nk57 (1.8% cd8-/cd57+ and 32 absolute) and positive IgG for EBV, but otherwise fairly normal blood results. I have had lots of strange health problems over the years and am now realizing they all can be found listed as potential Lyme disease symptoms (gastroparesis that put me in the hospital a few years back, IBS, chronic cystitis, sinusitis, burning pains and numbness in feet).
I have a few questions for this knowledgeable community:
1. Was my two-week long antibiotic reaction similar to what others have experienced with chronic Lyme Disease? And does the fact that it was still ongoing at two weeks indicate that I should stay on a much longer course of that antibiotic or some combination of treatments?
2. Is it worth investing in more testing through igenex (or anywhere else) to try to make sure this is the correct diagnosis? Is there any set of testing that done together is accurate enough (after some antibiotics) that it makes makes sense to try that?
3. Researching as much as I can has made me fearful of the financial impact to come. Has anyone had success treating within traditional medicine and having that covered by insurance, especially if they never test positive using a cdc-approved test protocol? I think I am going to have to give up on that hope based on everything I have read…
4. Does anyone have a recommendation for a doctor (of any sort) in the Sebastopol or Santa Rosa area that they can highly recommend? If necessary I can probably travel anywhere in the San Francisco area but that can be tough given my lousy brain function and fatigue.
5. Has anyone had experience applying for FMLA in California and have any advice on that?
I know that is a lot of questions for an initial post, but any and all advice or suggestions are welcome. Than you so much!
Welcome to the forum, Everbark
You should have treated until all symptoms subsided plus a few more weeks.
The best thing you can do is find a Lyme literate doctor to treat you. (Glad you are seeking one here)
I am in my way out - and don’t have time to answer all your questions - will try to later this evening.
My llmd doesn’t ask for more testing - but some do. I would wait until you see the Lyme doc - he/she will tell you what tests to have done.