Really need help. going downhill

Hi everyone,

Well I'm seeing another practitioner. This person uses desbio and some supplements and tinctures. Nothing has worked so far and it cost a lot of money (what else is new). Each day I feel worse, I don't know what is going on in my brain. Haven't been able to tolerate any treatments due to sensitivities. I'm done with everything. The suffering is too much. I feel like throwing in the towel. Quality of life is extremely poor. I don't know what to do and no one can figure out what is wrong.

Has anyone had success with anyone who knows what they're doing?

I'm so sorry you're feeling this way. Many of us (too many!) have been in a similar situation. Which sensitivities and brain issues are most troubling lately?

For what it's worth, the DesBio Bartonella kit truly made me think I might die - horrible vertigo, encephalitis, etc. - worst herx ever. All of that, and I was only taking a half-dose of it, alongside many detox protocols, and honestly didn't really believe homeopathy could have a real affect. I only made it to the third vial before I had to stop. Took me a while to get back to baseline, and didn't try any more DesBio kits.

I've said this often here, so forgive the broken record, but the only time I felt like a doctor understood my level of sensitivity and how to navigate it was when I read Toxic by Neil Nathan. My kind, smart, experienced LLMD just couldn't figure out how to adjust protocols for such a sensitive individual, nor could the LLMDs I saw before him. But when reading that book, finally I felt like someone who had seen people who genuinely were as sick and reactive as I was actually knew how to help them, and I was able to cobble together a life-changing roadmap for myself based on the information in the book. Maybe that's worth a try, if you have not read it, in case some of it resonates for you as well.

sunfun - There's probably very few people on this site who can't relate to what you wrote. I'm one of them. What it boils down to with me is "I don't have a choice but to keep trying." And yes, there is a choice, but that is not really a choice when you consider family, friends and the thought that somewhere there has to be an answer, even if it doesn't seem like it. It's just hell trying to find it.

At minimal, sareli's suggestion is worth a try. Right now I feel overwhelmed, but I never stop looking for a solution, though I get weary of it and life. I plan on ordering Toxic.

I'm taking Desbio Cyto vials. I doubt this is the cause of my problems but the practitioner did a test on me (distance) and said this came up. Cytomeglovirus or whatever its called lol. Keep hitting walls with each practitioner. On top of this I've had difficulty swallowing since 2018. I attribute it to a homeopathic remedy I took which changed my swallowing back then. But every homeopathic dr says it doesn't have such a strong and long lasting effect. So I'm stumped. I will buy that book Sara, thank you.

Most of my symptoms are neurological. No one can figure out what is going on. Mainly severe hypersensitivity to all sounds. Been in my room, self isolation since the last 2 yrs because I can't tolerate any sound, not even people talking to me. Overall weakness which worsens each day with each sound trigger.

I don't know how much longer I can go on. Everything is too much and I can't do it all myself, yet no one else understands my case more than me.

When it rains it pours. Everything is just adding up, cant do anything until I get some relief.
Thank you all for your input.

sorry to hear you are going through a tough time

quiet a few people hear, and others i have seen report their stories elsewhere, suffer with the extreme sensitivities stuff. its a big barrier to treatment and often v difficult to manage.

most report that they have to kind of work on that first to get some headroom to allow them to start treatment - otherwise everything pushes them over the edge and its unmanageable

it does sound like desbio is aggravating it - so i would be included to stop that and focus on trying to get the sensitivities under control and my condition stabilised as the first priority

a practitioner "doing a test on you from distance" sounds a bit new age or dubious to my mind
i do not believe there is any credible technology that can support this type of thing

if you are going to use a practitioner ( if you can access one, i think its a good idea - but hard to find one that understand sensitivities) i would tend to steer towards one that uses more scientifically supported techniques - too many cookes out there that will willingly take your money

i am moderately sensitive and am self treating due to total lack of suitable practitioners in my country
my approach has been to learn everything i can and to be ultra systematic.

there were no magic bullets - only things that helped a little bit ( many people want and look for magic bullets or miracle cures - or quick fixes - but with these chronic illnesses they often took years to get a hold and do their damage - so it may well just be a case of gradual 2 steps forward 1 step back type work )

there was a lot of trial and error involved in finding what helps - even if only a little bit

but i gradually got better by layering more things that helped a little bit together

first i worked on lifestyle stuff to get my body in a place where it could respond more normally and tolerate treatment better

for me this was a focus on getting good sleep, switching to a ketogenic diet, managing my stress leve/s / thought processes and doing mild exercise.

next i added some of Buhner's herbs for lyme - mainly the immune regulating and anti-inflammatory ones - these were the easiest to tolerate
when that was stable - i very gradually started to add the more antimicrobial herbs on top of those other things - and started to make some more progress

this is just an example - your plan may look different - but the principles should probably be the same
-a long term systematic approach
-starting with the lifestyle things that help you no matter what the cause of your illness
-layering in things that help gradually

for instance - you may well be able to find suitable approaches for super sensitivities in the Rawls book - i am sure diet and lifestyle will be a part of it.

i found the changes were very small at first - and i had to track these carefully in a chart in order to know what things were helping and what were hurting.

i highly recommend this to anyone who is self treating.

hope this is of some help

all the best!

I think you need a LLND or LLMD to guide you. One that has a lot of experience.
It can be difficult to self treat.

Sorry you have been suffering so much!

Sunfun what happens when you hear sounds? Is it like a sharp pain, physical weakness or something else? Hang in there.