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Anyone with Bartonella Had This Type of Foot Pain?

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Posted 3/12/2023 3:19 AM (GMT 0)

Garzie said...
yep, almost always - quin may have been making some kind of joke

Getting bit by a sick cat which dies a few days later isn't a joke when rabies might be suspected.
Posted 3/12/2023 4:05 AM (GMT 0)
My neighbour was bit by a bat (this is like over 40 years ago) and he ended up having to get shots in his stomach.
Posted 3/12/2023 12:40 PM (GMT 0)

Quin said...

Garzie said...
yep, almost always - quin may have been making some kind of joke

Getting bit by a sick cat which dies a few days later isn't a joke when rabies might be suspected.

i agree getting bitten by an sick animal - esp. one which dies a few days later should be taken seriously

i had thought you must most likely be joking about rabies though as rabies is known to be rapidly fatal in near 100% of cases once symptoms appear - whereas this person is still alive some years later.

And, in this case, there are also other munch more likely candidate that is commonly transmitted by cat scratches or bites, is able to kill cats, and fits the symptoms picture much better - eg bartonella

in this context a suggestion of an invariably fatal disease like Rabies is likely to alarm the poster unnecessarily - which is why i thought i would contribute to the post

the WHO says
"Rabies is a vaccine-preventable, zoonotic, viral disease affecting the central nervous system. Once clinical symptoms appear, rabies is virtually 100% fatal. In up to 99% of cases, domestic dogs are responsible for rabies virus transmission to humans."

[url/]https://www.who.int/news-room/fact-sheets/detail/rabies#:~:text=Rabies[url]
Posted 3/30/2023 4:34 PM (GMT 0)
I am not good at tech. Hopefully someone will read this and get back to me. My Name is Sick2long.
I found a 5 day supply of azithromycin. I don't even remember who prescribed it for me but expiration date was still good. One day after the first 2 pills I got so much worse in my ligaments and tendons not to mention all the other lyme or bartonella symptoms. My right ankle and foot got so bad I was limping all week. A day after finishing the antibiotic
I still felt pretty bad but for the next 2 1/2 days my energy came back, no cracking of my joints and it just felt great to feel almost normal. Was this a herxheimer? Does this suggest I have bartonella instead of lyme or does azithromycin kill both bacteria? I am now back to my old sick self. Very discouraging. I want to have more days like I just had.
Maybe I have to be on azithromycin for a much longer period of time. It definetly helped me somehow.
Posted 3/30/2023 6:59 PM (GMT 0)
hi

most people here find that their treatment for lyme and co infections via antibiotics lasts many months.

often / usually more than one antibiotic is needed in 2, 3 or 4 drug combinations -

azithromycin is active for both lyme and bartonella - and many other bacterial infections - its a pretty broad acting antibiotic

yes a worsening of existing symptoms during antibiotic treatment - and new symptoms appearing - especially if improvement is felt after while is typical of a herxhiemer reaction

do not be discouraged - getting any form of positive reaction after only 5 days of antibiotics is very encouraging and is evidence that you are likely to respond to that form of treatment

plenty of people who are tough cases have treated for 5 months and made little headway
Posted 3/30/2023 8:41 PM (GMT 0)
Than you for the information. Hopefully my regular MD will be open to what happened to me with azithromycin. I want to try a much longer dose as Dr Burrascano said is needed in his Bartonella webinar. A good friend who had Lyme got much better with ivermectin. Maybe a combination of both will help me. In Europe ivermectin is standard protocol for Lyme.
Posted 3/31/2023 11:07 AM (GMT 0)

sick2long said...
In Europe ivermectin is standard protocol for Lyme.

i don't think this is necessarily true

there are some LLMD's using it, mainly based on the belief that lyme is theorised to potentially live inside and be protected by nematode worms inside the human host - based on work on nematodes by Eva Sapi - but this is theoretical and not mainstream in the LLMD community.

There are also some references to LLMDs believing the immunomodulatory effects of ivermectin can be helpful in chronic lyme - there is scientific evidence for immunomodulator effects of ivermectin in the scientific literature - but not specifically for lyme disease - and the evidence supporting its use in lyme for this purpose is anecdotal based on a comments by LLMD's - and information is very sparse ( if you have sources please do share them )

however, as far as i am aware, there is no evidence that ivermectin is directly active as an antimicrobial for borrelia(lyme) ( again if you know of any studies please do share them)

fortunately, we do not have to guess which antibiotics ARE active for lyme as most antibiotics have been tested against borrelia and there is a substantial body of knowledge to draw on here.
as well as the articles in scientific journals - many respected LLMD's publish protocols which are based on this evidence and backed up by their clinical experience eg
- Horowitz in his books - "How can i get better"
- Dr MR on his website https://www.treatlyme.net/
- Dr SP in his book - Chronic
- Dr J in his presentations to ILADS and AONM etc

I just wanted to highlight that there are plenty of tried and tested protocols out there from respected sources - which are likely to be more successful than an ad hoc approach
Posted 3/31/2023 1:20 PM (GMT 0)
If you check the internet there is a quote that Ivermectin is a standard treatment protocol in Europe with excellent results. I don't know how it works but a good friend of mine has been taking it for years and was never vaccinated.
She was exposed to covid many times and has never gotten it. It also helps the body fight certain cancers. I suggest you read as much as you can about ivermectin.
Thanks for your support
Posted 3/31/2023 3:10 PM (GMT 0)
actually, i have read a huge amount of the available material on Ivermectin, both in peer reviewed scientific journals and in alternate sources - i have also been using it myself for over 1 year. What i wrote above is a fair summary.

if that does not match with your present beliefs, it could be that all of that peer reviewed science is in error - or alternately, your present beliefs about ivermectin could be somewhat mistaken....

i was doing my best to help you steer away from random people stating random things on the internet or N=1 examples of treatments as there are much better evidence based sources now available to base your decisions upon.
Posted 4/4/2023 6:06 PM (GMT 0)
I feel that I need a much longer time period of taking azithromycin. It was giving me the worse herxes but after stopping I had 2 1/2 days of feeling almost one hundred percent normal. Tinnitus was less, mid spine and other joints all stopped hurting. My strength in my legs returned and malaise was gone. That two and a half days is the first time I have felt "normal" in over 20 years. I am hoping my MD will try a longer dose for me. I have spent tens of thousands at Lyme literate doctors. Not one of them would accept Medicare with supplement or for that fact any insurance.
As far as the ivermectin I'm giving it more time to see if there is any positive results. Only been on it for a few weeks.
I just beat prostate cancer. I told my oncologist Lyme is worse. The technicians treating me saw me on days with lyme flare ups. They were kind enough to dim the lights as much as possible and helped support me walking in and out of the proton unit. It just makes you suffer every day with no magic bullet for mis diagnosed patients or late neurological lyme patients. With cancer you either beat it or it kills you. Lyme just tortures you and death is usually self inflicted. Sad comment but it's true. I'm never giving up but many days it really is hard.
Posted 5/12/2023 9:21 PM (GMT 0)

I know exactly what you’re talking about, it went on for effing years. I was diagnosed with babesia microti( a parasite) for PCR which is a big deal for Lab Corp.
I would scream in pain every single night because my feet are in so much pain( which went up to the tibia and groin) l and then one summer. I did a round of antibiotics and the foot pain got worse and I figured it was the Babesia because you can have a Herxheimer reaction.
But then the babesia came back! (Near impossible)
And I went anabiotic’s and anti parasiticals again.
The next time I was really struggling and I got tested for the babesia microti IGG again, but it came back negative, but something that came up positive was something called a C6 peptide, which I was very lucky to have a doctor even do. He figured it was probably Babesia because I’ve had a positive Babesia IGM for some time now, (should only be 6 months, means latent infection) so I decided to listen to what everyone was saying and I got tested by a igenex
I found out I had a recent infection for babesia AND BARTONELLA.
The reason I got tested for igenex is because I had this foot pain that would NEVER EVER EVER EVER go away and I couldn’t find pain doctors willing to prescribe enough pain meds to make it go away.
Sadly, I have two children and they need their mom on their feet! Anyways my PCP prescribed me Doxycycline the pain was so bad while taking it I could barely get through it! I don’t know how I did, and that’s how I knew I definitely had bartonella. Because I herxed so bad…..!@£&@@$8&!(!!!!!
Please take my advice and don’t get tested by a regular lab. Get tested by Galaxy testing or igenex that’s what they specialize in .
I wouldn’t do it because of the money for so long!!! BUT the amount of money that I dished out on my feet going to a podiatrist, and getting MRIs, and X-rays, going to the hospital over 20 times, please just do what works.
I’m going to cycle off of doxy for every two weeks.
This all started in 2019
It RUINED MY LIFE AND HUSBANDS..
Especially these drs won’t prescribe opioids ds but Steroids! Which just make it worse!!
I took my igenex paper to the hospital last night they gave me babesia antibiotics.. that’s how ligit this lab is
I got the 41? I think the co infection base if panel
Posted 5/12/2023 10:46 PM (GMT 0)

Jnameless said...

I know exactly what you’re talking about, it went on for effing years. I was diagnosed with babesia microti( a parasite) for PCR which is a big deal for Lab Corp.
I would scream in pain every single night because my feet are in so much pain( which went up to the tibia and groin) l and then one summer. I did a round of antibiotics and the foot pain got worse and I figured it was the Babesia because you can have a Herxheimer reaction.
But then the babesia came back! (Near impossible)
And I went anabiotic’s and anti parasiticals again.
The next time I was really struggling and I got tested for the babesia microti IGG again, but it came back negative, but something that came up positive was something called a C6 peptide, which I was very lucky to have a doctor even do. He figured it was probably Babesia because I’ve had a positive Babesia IGM for some time now, (should only be 6 months, means latent infection) so I decided to listen to what everyone was saying and I got tested by a igenex
I found out I had a recent infection for babesia AND BARTONELLA.
The reason I got tested for igenex is because I had this foot pain that would NEVER EVER EVER EVER go away and I couldn’t find pain doctors willing to prescribe enough pain meds to make it go away.
Sadly, I have two children and they need their mom on their feet! Anyways my PCP prescribed me Doxycycline the pain was so bad while taking it I could barely get through it! I don’t know how I did, and that’s how I knew I definitely had bartonella. Because I herxed so bad…..!@£&@@$8&!(!!!!!
Please take my advice and don’t get tested by a regular lab. Get tested by Galaxy testing or igenex that’s what they specialize in .
I wouldn’t do it because of the money for so long!!! BUT the amount of money that I dished out on my feet going to a podiatrist, and getting MRIs, and X-rays, going to the hospital over 20 times, please just do what works.
I’m going to cycle off of doxy for every two weeks.
This all started in 2019
It RUINED MY LIFE AND HUSBANDS..
Especially these drs won’t prescribe opioids ds but Steroids! Which just make it worse!!
I took my igenex paper to the hospital last night they gave me babesia antibiotics.. that’s how ligit this lab is
I got the 41? I think the co infection base if panel

///////////////////////////////


Welcome to the forum.


What meds were used for the Babesia infection?

Mepron or Malarone are two favoured meds to treat Babesia.
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