Congenital Lyme

Hello, new here. My daughter was diagnosed with lyme disease when she was 11 after a long and drawn out process trying to uncover what was causing her medical issues. I'm not one to just accept a band-aid to cover symptoms, I wanted to get to the root of WHAT was causing them. Finally through a functional medicine doctor, after an ana blood test result (they thought she had lupus, I knew better when she wasn't displaying any symptoms), we uncovered the lyme diagnosis. She had more neurological symptoms that include panic attacks, anxiety among others, but also has a lot of debilitating GI stuff as well. During our many visits to doctors, including a gastro doc that did a blood panel and endoscope, we discovered she also has celiac disease which I've read has a connection to lyme.
As we moved through her treatment (years now and she is much better), and reading lots of information on lyme disease I started seeing a lot of symptoms in myself: brain fog, extreme fatigue to the point I'm tired after very little exertion. I can only work part time because I get so drained after a few hours. When I worked full time I would come home and sleep much of the evening. I question whether or not I have lyme as well, and could my daughter have acquired it congenitally. So many signs point to it: rough pregnancy, low birth weight, premature, etc.

I am looking for advice and have many questions. Does anyone have experience with congenital lyme? If so, do you have any thoughts or advice? Was treatment effective? If I end up having lyme too, it will be very late stage, I'm not tested yet. I'm considering starting herbal treatment outside of seeing a doctor since I've learned so much about lyme through my daughters treatment. Has anyone had success going that route? I don't want to start anything that will make life worse if there isn't light at the end of the tunnel for late-stage lyme. Thanks for taking the time to read this.

hello and welcome

for what its worth - i think its always worth treating lyme and co-infections

2 main reasons -
- it can improve your quality of life and level of functioning in the medium term
- although it might feel like it - lyme is not really a steady state illness - that is to say the longer we have it untreated - the higher our chances of developing some more life changing symptom that we had not anticipated - heart issues - neurological conditions - brain issues - auto-immunity - etc etc

as long as you are still around there is hope - many people have got their lives back after years of illness or even being bed ridden - some people here have had lyme or suspect they have had lyme since they were children and have still improved with treatment

herbs have helped many people - and its a reasonable place to start - to se how you respond -
if you don't progress as well as you hoped - you can always try the other options

Hello! I am one of those individuals who suspect I have had Lyme since childhood. I am now middle aged and have been treating solidly with biomagnetic pair therapy for three years. Although I am not where I’d like to be, I am not getting worse. If you suspect LD in yourself as well, I would trust your instincts/intuition firstly, and secondly seek treatment in whatever form that looks like for you. There are many differing opinions here on treatments, but treatment suitability is as individual as the patient..