HGH Therapy for Lyme?

I don't have knowledge of using HGH for tick-borne disease, so forgive the tangent, but....

When people mention chronic connective tissue problems, I wonder if one of the forms of Ehlers-Danlos might be at play. Have you ever been evaluated for that, including genetic testing? There's no cure, and you'd just treat symptoms and take preventive measures anyway, but it might be good to know (have it in your chart for medical visits, take it into consideration when deciding to have your own genetic children and/or preventive care for children you might already have who could have inherited it form you, know another piece of the puzzle, etc.).

Hey,

Thanks for your input.

Yah I have been evaluated for all the connective tissue disorders and done genetic EDS testing. All normal. It's weird, growing up I was very athletic, but became increasingly hypo-mobile as I got into my 20's & 30's, not hyper-mobile...like happens to some. Then treatment inflames the tissues so much that it exacerbates/induces fibrosis, but no signs of autoimmunity....ANA/scleroderma/UCTD work up always negative (fortunately).

If anything, it seems like my immune system was under-active for so many years that it let these infections get deep before I became very symptomatic. Then treatment "wakes up" the immune system to the infections. I usually bounce back to some degree from the most vicious flares or herxes that will make me temporarily have to limit walking to like 50 steps per day or be totally bedridden. But the fibrotic changes seem to be progressive with a new small layer of dysfunctional muscle & crunchy tendons each time it happens. Auto-immune treatments (prednisone, high dose IVIG, only so far) don't do much to limit herxing. I have thought about trying rituximab.

Now electing to try mildish treatment (Japanese knotweed + cryptolepis + half-dose zithromax ramp up + lumbrokinase + maybe mepron). Tamper down or up based on feel. Experiment with HGH now. Low doses of hydrocortisone. Infared sauna. I have a cold plunge too, which is tremendously beneficial for temporarily improving cognitive and psyche issues. I can't tell if its detrimental or beneficial for my muscles/tendons long term though.

Kind of seems "out there" but I am hoping there is some powerful synergy between artificial intelligence and medical research that leads to "next generation" advancements in controlling chronic inflammation and immune dysfunction as well as regenerative medicine and fibrosis-reversal. It seems all these are necessary in mine and other severe cases and that current research in these areas is moving slowly.

JaSon2233 said...
Hey garzie,

Saw ur post second. Yah I definitely herx massively to both traditional bartonella meds and to babesia meds. Tafenoquine was the latest very severe herx.

my thinking would be that this points to infections still being present as the driver for the ongoing inflammation then.

i guess you are thinking along the same line as this - as your post above proposes an antimicrobial treatment plan

while we all seem to manifest the effects of inflammation slightly differently - frank mental illness for some - overwhelming fatigue for others - pain syndromes in others - mainly rheumatological symptoms in others - i think it all stems from the same underlying cause - ie infection and inflammation - and just shows up differently in each person probably mainly due to genetics.

we have quite a few members that are somewhat limited in how hard they can treat by how much it flares their symptoms - seems to be a pretty common thing - esp if bart is in the picture - the flares can get out of hand.

i am in that camp myself - i get all over pain, stiffness, fatigue and sleep problems to the point i cannot look after myself

i have had some success in ramping up treatments over time - so i think that approach can be valid

the use of corticosteroids seems to be a double edged sword - i know some LLMD's do use then to try and reduce symptoms / reactions to treatments - Dr M the bart guru for instance uses cortisol - but its also been known for some time that use of these with chronic infections tends to make treatment more difficult and long term outcomes worse (there were definitely trials done with lyme in the early days - and i think it has been demonstrated in babesia also).

i can see why you/ your MD would use them and maybe you had no option - but i couldn't help wonder if that might have contributed to it being more difficult to get to remission.

i dont think it makes it impossible - but perhaps makes the process longer as the bugs have more of an upper hand - and the immune system has further to go to get back on top.

if it were me i would focus on a long term strategy to gradually wear the bugs down - something i could stick to for 12 months or more - so it would have to be maintainable - pulsing probably - include biofilm disrupters and fibrin enzymes ( needed for chronic bart and babs i think).

i would make sure i covered Lyme - even if i hadn't tested positive for it - as Babesia is sufficient evidence of a tick bite - and if you have tick bite history and chronic illness - its odd on lyme is there too.

so i think you are better off ensuring you treat it - as its a big hitter in terms of hobbling the immune system - which as per the above - is most of the battle.
the HGH may help in some way with the immune recovery - if the literature suggests it does that - eg things like raising immunoglobulins - or NK cell counts - then i think it has a place in a supporting role.

just my rambling thoughts based on what i have synthesised from all the LLMD's i have researched books etc
hope its of some help !

I’ve pondered trying the same. Also Cjc and ipamorelin as a peptide therapy to raise hgh without giving hgh.

Haven’t tried either.

I do respond well to tongkat Ali which is an adaptogens know for boosting test and hgh.

👍