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Posted 8/2/2023 1:33 PM (GMT 0)
Has anyone had lyme and co’s get really bad during menopause? My symptoms are really flaring which I am tying to low estrogen. I recently started HRT but waiting to have another appointment with a functional doctor for BHRT. I am also taking herbs. I am not sure if it’s hormonal related or something else? Thanks
Posted 8/2/2023 1:48 PM (GMT 0)
I was also wondering that myself, Marcie12, because soon after I went through Menopause is when I started having issues…Bad rash, etc. However, I didn’t go on any hormone therapy’s.

MyJourney101

2 Chronicles 7:14
Posted 8/2/2023 2:15 PM (GMT 0)
Were you already dx with lyme? How are you doing now? Did you start any abx?
Posted 8/2/2023 3:03 PM (GMT 0)
My test was negative…not sure which test I got (this has been all new to me). However, another dr said the facility I went to gives the wrong test & that I should have gone to this different facility.

No, I didn’t do any abx treatments…I feel Lyme may have been in my body a long time…

I’m doing a lot of praying for direction, doing a lot of research and currently treating myself for leaky gut, parasites, Lyme/morgellons, and most recently MCAS.

After I started parasitic herbal regimen (3 days in 5 days off)…I finally started to sleep better). I’ve been doing this protocol for about 5 months now and still see things leaving my body…I’m exercising by lifting weights and walking…sometimes I’ll throw a little jog in there…very little.

I feel pretty good all except I can’t eat gluten or go in the sunshine or I’ll get a terrible itchy, red rash that takes a while to go away.

I also can’t seem to get rid of this rash on the palms of my hands including fingers…Lyme/morgellons.

I’m at the moment trying to research and perfect my Lyme procol…and accumulate/buy the herbs I need.

It’s a long battle, I know…but I am very optimistic…Everyone on this board has been So helpful and supportive and I’m So Very Thankful and Grateful for you All!

My Journey101

2 Chronicles 7:14
Posted 8/2/2023 4:20 PM (GMT 0)
My Lyme symptoms coincided with menopause.
I had been seeing my dr regularly because I had woken up from a nap with excruciating pain (ER worthy ) around my left shoulder blade and my arm was numb.
Then I started getting more symptoms that had nothing to do with my “injury”
My dr tested my hormones and determined I was in menopause.

Over the next several months she tested me for “everything “- all the autoimmune diseases - etc. blood work and mri’s, etc.
Referred to specialists - endocrinologist, physiatrist, etc
She even did a Lyme test but iit was negative (it was not a good test)
It was over a year before I did an Igenex test and received a positive result.

I don’t know if menopause - with the fluctuating estrogen had anything to do with it or if it was just a coincidence
Posted 8/2/2023 4:31 PM (GMT 0)
Hormonal fluctuations are powerful triggers for symptoms for many of us. I personally know a handful of people who have stopped their menstrual cycles altogether with drugs in order to manage chronic conditions (like Crohn's, ME/CFS, and MS) and chronic infections. Perimenopause can wreak havoc for people without any pre-existing conditions, but it's reasonable to expect that many chronic illness sufferers will have major symptom flares during this time.

Lara Briden's website lays out the connection between histamine and estrogen, explaining well how MCAS symptoms can flare as estrogen (and its proportion to other hormones) fluctuates.

I'm in perimenopause and doing a constant dance with vitex, selenium, omega 3 fatty acids, B vitamins, magnesium, ashwagandha, iron, zinc, iodine, and progesterone cream. I am having a lot of trouble finding a provider who can hold all the threads of what I need!

HRT seems like a reasonable thing to try to maintain some sort of stasis for your body and ease the transition.
Posted 8/2/2023 5:41 PM (GMT 0)
Girlie
Did you end up going on estrogen or did symptoms resolve from treatment of lyme and co’s? We had talked before and I have an appointment with Dr J office next week for the first time. I am hoping they can help.
Posted 8/2/2023 5:46 PM (GMT 0)
Saraeli
Is there anything to take for Mast cell activation? I think I went through that when I received my Covid vaccine. I had a huge flare that lasted for months. I think I took something by researched nutritionals?
Posted 8/2/2023 9:47 PM (GMT 0)
Below is a list of mast cell stabilizers. People also use limbic system retraining (like Gupta or DNRS), low-histamine diets, and avoidance of triggers (exertion, heat, cold, overstimulation, high-histamine foods and beverages, herxing, etc.) to manage MCAS.

DAO (porcine or from legumes)
L-theanine
khella
perilla
pine bark
luteolin
rutin
mangosteen
evening primrose
quercetin
curcumin
nettles
vitamin c
bromelain
ECGC/green tea
melatonin
milk thistle
butterbur
feverfew
baikal skullcap
DGL
cromolyn sodium (Rx)
ketotifen (Rx)
montelukast (Rx)
chamomile
moringa
NAC
cannabis (full-spectrum or CBD-only)
H1 blockers (Claritin, Zyrtec, Allegra)
H2 blockers (Pepsid, Zantac)
foods for DAO production (onions, green tea, galangal [thai ginger], peaches, Brazil nuts, fiber, sprouted lentils, sprouted chickpeas, olive oil, walnuts, omega 3s, saturated fat, avocado, almonds, white beans, leafy greens, legumes, cashews, pumpkin seeds)
supplements for DAO production (iron, zinc, phosphorous, B12, magnesium)
pomegranate
mango
Posted 8/2/2023 11:43 PM (GMT 0)

Marcie12 said...
Girlie
Did you end up going on estrogen or did symptoms resolve from treatment of lyme and co’s? We had talked before and I have an appointment with Dr J office next week for the first time. I am hoping they can help.

Yes I did go on estrogen - the one that you rub onto your arms and/or legs.
This was pre diagnosis.
My symptoms actually got worse after taking the estrogen.
Then a NP dr told me to take progesterone - that didn’t help either.
Posted 8/3/2023 4:28 PM (GMT 0)
in one of D J's videos he and his nurse practitioner answer questions from viewers about PMT making lyme much worse

Dr J said that for some it was a major impediment to recovery because their inflammation and other symptoms went into overdrive for 1-2 weeks of every month

he said in these cases they often find it helpful if the put the patient on contiguous birth control to stop the cycles for the duration of treatment - maybe 12 months

i know its not exactly the same thing as menopause - but it involves fluctuations of the same hormones - and shows how the hormones can interact with symptoms / recovery - and that normalising them in some way can be appropriate.

it was in one of his later 1hrs long Q&A videos on his youtube channel
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