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Posted 8/5/2023 10:54 PM (GMT 0)
Hello fellow Bartonella members!

How to get relief from bartonella headaches without drugs?

also would like to hear some bartonella recovery success stories, I'm in the heat of the fight, feels like a losing battle some days but then I have a few good days or out of the blue feel good, up and down is my journey... can anyone one else identify with this?

thanks and lets not forget life is a gift!
Posted 8/6/2023 12:34 AM (GMT 0)
Headache remedies that don't involve drugs that helped me:
Acupuncture
Acupressure
Essential oils (my favorites for headaches are frankincense, peppermint, and lavender)
Curcumin
Magnesium
B2
Proper hydration and electrolyte balance
Yoga
Craniosacral therapy
Guided visualizations intended for headache relief
The Curable chronic pain app
Lymphatic massage https://www.youtube.com/watch?v=QA-wi0d7-Ro
Homeopathics
Adaptogenic herbs (ashwagandha, holy basil, etc.)

Improvement is very possible. Hang in there!
Posted 8/6/2023 9:52 PM (GMT 0)

Powermax said...
Hello fellow Bartonella members!

How to get relief from bartonella headaches without drugs?

also would like to hear some bartonella recovery success stories, I'm in the heat of the fight, feels like a losing battle some days but then I have a few good days or out of the blue feel good, up and down is my journey... can anyone one else identify with this?

thanks and lets not forget life is a gift!

I remember before I found out a had lyme and Bart, I'd lay in my dark room, no noise no light, for 3 days at a time when Tylenol, painkillers etc did nothing. Thought I'd die and felt my head got hit by a mack truck. Sida acuta took migraines away instantly, maybe because this plant is used as a natural for pain killer and for bart. I was super sensitive as sida acts as a stimulant and my heart rate quickly rises to like 180. I stopped this and now these are the things that definitely helped .
1. Magnesium
2. Naps or sleep schedule ( not staying up after 10:30 pm)
3.Electrolyte balance is a must
4. Detox
5. Low histamine diet, no soy, dairy, or gluten
6. Diet change made a huge difference ( chicken, fish and salmon, dark leafy greens, fasting and doing 2 meals per day.
7. Sauna when tolerated
8. Antibiotic treatment helps the migraines go away( at least for me it is working, knock on wood)
Posted 8/8/2023 12:09 AM (GMT 0)
Can anyone share their story of bart?

What is the recovery time using the combination of herbs and tinctures?

Does it ever feel like you’re 80% better one day and the very next day feel like you’re starting over at square one?

Is it worth going to a cardiologist for heart flutter and feelings in the chest a person should never be feeling?

I’ve been hammered this monster as hard as my body can take it, heavy metals detox, parasite cleanse, liver detox and also herbal products for Bart 5 months now and seems endless!

Anyone know what I’m talking about? 🤷🏻‍♂️
Posted 8/8/2023 6:16 AM (GMT 0)

Powermax said...
Can anyone share their story of bart?

What is the recovery time using the combination of herbs and tinctures?

Does it ever feel like you’re 80% better one day and the very next day feel like you’re starting over at square one?

Is it worth going to a cardiologist for heart flutter and feelings in the chest a person should never be feeling?

I’ve been hammered this monster as hard as my body can take it, heavy metals detox, parasite cleanse, liver detox and also herbal products for Bart 5 months now and seems endless!

Anyone know what I’m talking about? 🤷🏻‍♂️

Bartonella was brutal! My protocol was abx focussed with a few herbs.
Terrible herxing!
But I have recovered.

Keep at it!
Posted 8/8/2023 3:52 PM (GMT 0)
I did also successfully treat bartonella, but I used antibiotics, as described here:

https://www.healingwell.com/community/default.aspx?f=30&m=4315526

The herx was brutal, and unfortunately I've found borrelia even harder to treat than bartonella.
Posted 8/8/2023 5:47 PM (GMT 0)
Got fully recuperated here, it took a heck of a long time though.. I dont know how long you have been sick..?
Posted 8/8/2023 8:48 PM (GMT 0)

MooseSafari said...
Got fully recuperated here, it took a heck of a long time though.. I dont know how long you have been sick..?

I was sick for over a year before getting diagnosed and treated. (Not sure if you were asking me)
Posted 8/8/2023 10:35 PM (GMT 0)
I’ve been dealing with something for a few years but couldn’t really corner it, blood test always came back looking decent but January this year it really hit the fan and I desperately went from Dr. to Dr. Looking for answers and relief, finally found someone that recognized my symptoms and did a Galaxy and GeneX test, came back hot for Bart,. Been treating since April I’m seeing improvements but seems so endless and weekly roller coaster cycles, have a good day followed by low days then up again only to crash again… if i up the herbs i herx dearly so we go low and slow 🙇‍♂️
Posted 8/8/2023 10:37 PM (GMT 0)

MooseSafari said...
Got fully recuperated here, it took a of a long time though.. I dont know how long you have been sick..?


=============================

Nice to hear success stories! Glad you got better!
Posted 8/9/2023 1:05 PM (GMT 0)
Can you describe what your headaches are like?
Posted 8/9/2023 1:17 PM (GMT 0)

Powermax said...

Is it worth going to a cardiologist for heart flutter and feelings in the chest a person should never be feeling?

Yes. I would. You need to know the condition of your heart and may need to be monitored for changes. Be sure they do an echocardiogram. Bartonella, according to Buhner’s book, affects the entire vascular system and any heart valve issues can point to bartonella.

I had known mitral valve regurgitation since 1997. I had sudden, life altering symptoms in 2009. Didn’t know about Lyme and bartonella until 2017. In 2009, during sudden onset of Lyme symptoms, I had rapid heartbeat constantly, even at rest. Heartrate would increase while lying down if I even moved. At that time, cardiologist could find no abnormalities other than the mitral valve regurge/prolapse and said whatever was going on with my heart at the time was secondary to whatever was going on in my body.

Later, after being on this forum and learning a lot, I concluded that the rapid heartrate was likely due to dysautonomia. I was also experiencing other symptoms that were likely autonomic nervous system dysfunction, like trouble swallowing and temperature dysregulation.
Posted 8/9/2023 6:53 PM (GMT 0)
My experience:
Had it 24 years (I believe) since I got tested 24 years ago for Lyme symptoms but they only tested me for Lyme which was negative.
My symptoms come and go like you say. Memory is horrible, I don’t remember very important events( child birth, wedding, children being little, childhood). I had tinnitus, rosacea, SIBO, just random crap that comes and goes. Just started treatment so will see how it goes.
Posted 8/9/2023 9:39 PM (GMT 0)
Powermax, I second the idea that a cardiologist visit is worthwhile for an echocardiogram and possibly a stint on a holter monitor. It's good to know what's going on in there. If it's a harmless irregularity, like many of us have, then you can feel the weird feeling but not worry about it anymore. I found that extremely helpful for PVCs and POTS - knowing that my heart itself was fine, even if it was acting funny while my nervous system was dysregulated. I also like having a home ECG device, pulse oximeter, and BP cuff at home so I can monitor myself when something feels unusual.

I know how discouraging it is to endure chronic symptoms, and then feel even worse with treatment, for months! And no, like you describe, improvement isn't linear. It's not unusual for one day to be okay and the next to be hard. Hang in there and keep trying things until you find what helps. It's a really unpleasant marathon.
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