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Posted 9/28/2023 6:56 PM (GMT 0)
I need help. My brain fog is so bad it literally makes me feel like my brain is over filled and has no room left. It's a wierd feeling. The brain fog makes me feel as if I'm going crazy , it's so bad. Idk what to do. Is there anything anyone has found helpful for the brain fog or brain inflammation?
Posted 9/28/2023 8:32 PM (GMT 0)
MedicalNerd, I’m sorry to hear that you’re having such a difficult time with brain fog.

You might want to try turmeric. It has many great health benefits.

“ Turmeric extract (curcuminoids) helps relieve symptoms of brain fog by combating oxidative stress and providing cleaner connections for brain cells. Turmeric helps fuel your brain – to put it simply, turmeric extract is excellent brain food.”

https://mefirstliving.com/blogs/turmeric-benefits-and-health-news/how-turmeric-benefits-brain-clarity-reduces-brain-fog

I hope you get relief.🙏🏻
Posted 9/28/2023 9:36 PM (GMT 0)

MyJourney101 said...
MedicalNerd, I’m sorry to hear that you’re having such a difficult time with brain fog.

You might want to try turmeric. It has many great health benefits.

“ Turmeric extract (curcuminoids) helps relieve symptoms of brain fog by combating oxidative stress and providing cleaner connections for brain cells. Turmeric helps fuel your brain – to put it simply, turmeric extract is excellent brain food.”

https://mefirstliving.com/blogs/turmeric-benefits-and-health-news/how-turmeric-benefits-brain-clarity-reduces-brain-fog

I hope you get relief.🙏🏻

I've Tried turmeric before. For some reason it gives me diareah. I then read tou shouldn't take turmeric if you you have gallbladder issues?
Posted 9/29/2023 5:46 PM (GMT 0)
Just answering due to lack of replies, no quick solution for you, but some things to ponder:

(I had this too, its not at all uncommon in treating lyme.)

Note- ABX causes candida in some people. And this will cause brain fog too. Low thyroid is in the top 5 reasons also.

Many will say you need to detox. That apparently works for many unless you have some specific liver phase II pathway obstructions from a couple of specific genes. Per 23and me , I have these. So detoxing does very little for me- but D-limonine I learned after also works on this pathway. I didnt know that back then years ago so only time worked in my case.
Posted 9/29/2023 5:47 PM (GMT 0)
Tumeric is known to be hard on the gut for some people. Oddly, once in your blood its anti-inflammatory.
Posted 9/30/2023 11:13 AM (GMT 0)
Hi,

It's comforting to know that we aren't the only one to experiment neurological symptoms (even if I would have prefer people to not suffer of course☹️).
I used to have this overfilled feeling some years ago when my syndrome started. I was not diagnosed with Lyme yet at that time. I fought for 4 years before a doctor gives me an LTT that showed high SI for almost all borelias.

Nowadays I'm following an ABX treatment since some weeks, but I still have many issues.
Notably feelings of derealisation, depersonnalisation, reduced intellectual abilities, sometimes even the feeling to be totally lost, like even loosing the concepts of life, as if I'm "reset to zero".
And I'm constantly in a state like if I was drunk. My brain is all upset.

I had a brain MRI 1,5 years ago that showed no anomalies. I was just diagnosed as depressive at this stage...
In addition to being painful it’s really stressful. I'm afraid of loosing my mind...

My doctor recently also prescribed me supplements with zeolite and tumeric.

Post Edited (Noxon) : 9/30/2023 6:21:32 AM (GMT-8)

Posted 9/30/2023 4:14 PM (GMT 0)
I also had a brain MRI. The specific MRI was tuned to specifications for whatever the company was. Who examined MRIs for Lyme disease issues. See you there. I go again with brain fog. I can’t remember that company. There’s been threads on this way in the past though.

Either way, so many of us assume that we have lyme in our brains, thus the term lyme brand that we joke about, but my brain MRI was perfectly fine.

So it can be very extremely neurological symptom wise, and yet there may actually be nothing in your brain cavity resembling lyme bacteria which is a good thing.

On the other extreme hand, we do know from Dr. MacDonald and Grier, who studied upper Midwest, deceased, MS brains, and found remnants of lyme bacteria in them, as well as other debris. Since that’s where I live, that was another push for me to get the special MRI done. Again, it’s not a normal MRI. It started with “Quad….” some thing. I.

(Being that, I am a mid 50s, dude I was actually listening to part of an old album by The Who, Quadrophenia. So I can’t think of the MRI name because that name is stuck in my head. Lol!)
Posted 9/30/2023 5:37 PM (GMT 0)
Thanks to all who replied. Just seeing a reply from anyone makes me feel a little better knowing it's not just me. Feels like my brain has millions of paper shredders and tiny workers destroying all of my info, brain and memories lol. Feels like I'm literally going insane. I'm always afraid I'd end up in an asylum somewhere smh. They put me in the psyc ward as a kid multiple times because doctors didn't know what was wrong with me and my parents weren't of any help. I do want to try the d- limousine. I have 1 of the MTHFR . Sauna was probably 1 of the few things that made me feel like I was actually detoxing and making progress. I do feel drunk quite often, not drunk well tipsy rather like when a buzz is first staring to set in. How the hell do I minimize it is the question. Activated charcoal didn't ever do anything for me if I'm going to be honest. Also i have depersonalization, dissociation, rage, some paranoia, anxiety, depression.Thanks for all responses again.
Posted 9/30/2023 7:19 PM (GMT 0)
That buzzed feeling and brain fog were common for me - at least parts of every day for four years! - but literally have not happened to me again since I stopped eating high-histamine foods. Any chance you are experiencing histamine overload?

Common foods and beverages that can do this to people are: citrus, tomatoes, alcohol, vinegar, kombucha, yogurt, kefir, very ripe fruits, salad dressings, pickled foods, fermented foods, kimchi, leftovers, aged meats, cheese, lion's mane mushrooms, some other mushrooms, coffee, chocolate, sourdough, miso, nutritional yeast (brewer's yeast), and anything that has set out for a while.

This is all part of the MCAS situation for me, so a low-histamine diet helped tremendously, along with curcumin (might be easier on your gut than turmeric, since it's just the extracted curcumin), quercetin, bromelain, vitamin C, and DNRS limbic system retraining. This combination stopped my neurological symptoms almost entirely, including POTS, brain fog, headaches, dizziness of all kinds, dental nerve pain, gastroparesis, and peripheral neuropathy. Your mileage may vary, but when you mentioned the drink feeling, that was 100% histamine for me. (The drunk feeling healthy people get from drinking alcohol is also partly caused by the histamine reaction!)

Another possibility is auto-brewery syndrome, wherein things literally are fermenting in your gut and making you drunk. But MCAS seems much more common! smile
Posted 9/30/2023 8:48 PM (GMT 0)

saraeli said...
That buzzed feeling and brain fog were common for me - at least parts of every day for four years! - but literally have not happened to me again since I stopped eating high-histamine foods. Any chance you are experiencing histamine overload?

Common foods and beverages that can do this to people are: citrus, tomatoes, alcohol, vinegar, kombucha, yogurt, kefir, very ripe fruits, salad dressings, pickled foods, fermented foods, kimchi, leftovers, aged meats, cheese, lion's mane mushrooms, some other mushrooms, coffee, chocolate, sourdough, miso, nutritional yeast (brewer's yeast), and anything that has set out for a while.

This is all part of the MCAS situation for me, so a low-histamine diet helped tremendously, along with curcumin (might be easier on your gut than turmeric, since it's just the extracted curcumin), quercetin, bromelain, vitamin C, and DNRS limbic system retraining. This combination stopped my neurological symptoms almost entirely, including POTS, brain fog, headaches, dizziness of all kinds, dental nerve pain, gastroparesis, and peripheral neuropathy. Your mileage may vary, but when you mentioned the drink feeling, that was 100% histamine for me. (The drunk feeling healthy people get from drinking alcohol is also partly caused by the histamine reaction!)

Another possibility is auto-brewery syndrome, wherein things literally are fermenting in your gut and making you drunk. But MCAS seems much more common! smile

Oh I definitely believe I have stuff fermenting in my gut for sure. Chocolate can be a recent culprit and sometime tomatoe sauce I guess. I was also recently started on progesterone only pills so I imagine hormones are screwed.
Posted 9/30/2023 8:52 PM (GMT 0)

astroman said...
Just answering due to lack of replies, no quick solution for you, but some things to ponder:

(I had this too, its not at all uncommon in treating lyme.)

Note- ABX causes candida in some people. And this will cause brain fog too. Low thyroid is in the top 5 reasons also.

Many will say you need to detox. That apparently works for many unless you have some specific liver phase II pathway obstructions from a couple of specific genes. Per 23and me , I have these. So detoxing does very little for me- but D-limonine I learned after also works on this pathway. I didnt know that back then years ago so only time worked in my case.

My thyroid levels are always 0.52 which I say is way on the low end a d it's been like this the past 10 yrs. The endocrinologist who works with hybrid, I've seen 3 or 4 over the years and they don't do crap about it. They'll say borderline hyperthyroidism or Graves disease even though I dnt fit any of the symptoms for Graves at all lol. More like they just wanted to diagnose me with anything to get me out of the office. Low thyroid and weight loss. When I looked through my results from years ago, my numbers were way higher and I had more weight on me at the time. Any idea if lyme and Bart effect thyroid? Any idea how to get thyroid numbers back up? Thanks
Posted 9/30/2023 9:45 PM (GMT 0)
There is no quick fix for thyroid.

Whenever you have changing thyroid hormone levels, it blows me away how often doctors just don’t even bother checking the antibodies and just assume maybe is some autoimmune issue. Why do they assume things when there’s actual tests for this?

Regular hypothyroidism does not have autoimmune antibodies associated with with it. But Hashimoto auto immune hypothyroid has specific antibodies TPO, TGAB, and so does graves auto immune hyper thyroid , TSI.

If someone’s thyroid gland, is actually physically damaged as seen on an ultrasound, from antibodies, then usually need some sort of medical prescription for it. Hypothyroid gets replacement hormone hyperthyroid gets a thyroid reduction medicine of some sort.

Sometimes peoples thyroid just returns to normal functioning after their tick infection is gone.
Posted 9/30/2023 10:44 PM (GMT 0)
It's probably the progesterone!
Posted 9/30/2023 11:45 PM (GMT 0)
Maybe I missed this above, and if so, sorry. Any chance it's caused by dysautonomia or POTS, Medical Nerd?

When this first started many years ago (20+), and I had no diagnosis of Lyme, I was in in constant state of depersonalization, dizziness, nausea - much like saraeli mentioned. That did go away, and I'm not sure why or how, for about 7 years, then came back with some other symptoms. about that time I was finally diagnosed with Lyme. Treatment got me back to 85%-90%, then it's all slowly gotten back to dizziness, migraines, anxiety, depression and many other symptoms. That started after heart surgery in 2016.

Now many of the symptoms you mention are really kicking, and I don't know what is autonomic neuropathy induced or Lyme/Bart induced. But that's why I ask about autonomic neuropathy.
Posted 10/1/2023 2:12 AM (GMT 0)

MedicalNerd said...
I need help. My brain fog is so bad it literally makes me feel like my brain is over filled and has no room left. It's a wierd feeling. The brain fog makes me feel as if I'm going crazy , it's so bad. Idk what to do. Is there anything anyone has found helpful for the brain fog or brain inflammation?

Using an infared sauna has really helped me at times. It helps with herxes. They are very reasonably priced one on Amazon. Mine is like a little tent. I sit inside it and it zips up to my neck, it has places where your arms can come out so you can read a book or watch Netflix etc. sweating is wonderful.
Posted 10/1/2023 3:02 AM (GMT 0)
I hope it's not the progesterone because I jabe stage 4 endo so have no choice bt to take progesterone . I dont think it's autonomic dysfunction because I've had that before. It might be though, idk. I was thinking when I jerx, I start to space out like this. I wish my thyroid was one thing I could get back to functioning and normal. You're right about thyroid functioning going back to normal after infections are gone which is what I'm aiming for.
Posted 10/9/2023 2:11 PM (GMT 0)
Hi MedicalNerd,

I'm sorry to hear about what you're going through. Like you I find the brain fog /dissasociation to be the worst of all the symptoms I've had, and I've had a lot of symptoms. At times I've attributed it to the various Bs, of which I have/had all three, mold toxicity, MCAS and even long covid, and my LLMD has kind of guessed at the cause with no real conviction. Of all the things I've tried, I've found talk therapy to be by far the most helpful, which might be something you want to consider if you haven't already. I found a therapist who has mold toxicity as well and I've found that to be incredibly helpful. I've also found that it's the most overwhelming when I'm around groups of people, so I've had to adjust my activity quite a bit to help with how often I put myself in large groups, and I've tried to compensate for the lack of socializing by trying to connect one on one with old friends and people in my normal circle who are sympathetic to what I'm going through. It's been a real mental workout but doing these things and trying to stay in the moment as much as possible has made living with this bearable. Mine has gotten slightly better - I'm on year three of treatment - but it's been a very slow journey. Good luck.
Posted 10/11/2023 4:12 PM (GMT 0)

MedicalNerd said...
I need help. My brain fog is so bad it literally makes me feel like my brain is over filled and has no room left. It's a wierd feeling. The brain fog makes me feel as if I'm going crazy , it's so bad. Idk what to do. Is there anything anyone has found helpful for the brain fog or brain inflammation?


The brain issues were/is one of the last issues to resolve.
My short-term memory was soooo bad.

I have been in remission for a couple years now...and it's not fully back like it used to be. But it is certainly a lot better. I'm back to work...and I'm doing okay.

I was talking to my Doctor (not Lyme doc) about my short term memory - being better, but not like it used to.
She said not to give up - because of the neuroplasticity of the brain - it can still improve up to 10 years.

That is good to know.
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