Twitching numb calves 24/7 for two years

I'm clinically being treated for Lyme and co infections. Im 9 months in on abx on Dr J's protocol from my LLMD. I have a lot of neuro issues. From day one my calves have twitched 24/7 and have been numb going on two years. Has anyone else had this nonstop and recovered? I get random twitches throughout my body that come and go but not permanently all the time like my calves. Permanent nerve damage?

Post Edited (Eric H.) : 4/13/2024 5:04:20 AM (GMT-8)

I'm thinking sfn as well. Did you do IVIG?

Oh okay. Thank you

Garzie,

Were your lower legs numb and twitching nonstop for years? Do you think the nerves can heal from this?

Listening to DCDs advice is a good idea. I'm just here to say I had twitching in my calves(and the rest of my body but calves were most severe) for 7-8 years. It's slowly improved over time, I did have IVIG for a while but proved too expensive. Anyway now years later I would say it's 90% better.

I should add, while IVIG helped during probably the worst health period of my life and gave me great relief, I think for twitching I had the best results with physical treatment options. Wim Hoff breathing, moderate physical exercise, yoga, adjustments in morning routines(prayer, light therapy and caffeine intake) than I did with any antibiotics or medical treatments. Everyone's path is slightly different though.

Post Edited (Garion) : 4/13/2024 5:51:44 AM (GMT-8)

I modified my post. Above. I did have numbness and some burning but those definitely weren't my primary concern. In my limbs it was constant twitching, moderate cramping, moderate pain and occasional muscle weakness. Numbness and burning came and went

Yes, I did a year of intense antibiotics but since I only had band 41 I was always a little unsure. I also had a lot of treatment for Babesia which I tested positive for.

I know it's distressing, believe me I was at my wits end many many times. For me things got a lot better once I could get my mind off it for extended periods of time. Like I said right now I'm about 90% better but I definitely have relapses when I feel terrible and fear the worst, but luckily every relapse have been shorter and easier to deal with. I believe you will get there, like DCD said it might not be 100% better but there is hope for great improvement

Igenex has a new Bartonella multi-species western blot test - which should be much better than regular bartonella tests which are known to miss the majority of cases