Who Has Been on Here 10 Years or More?

I think I’ve been on here since 2014
So 10 years?

i was bitten by insects on a picnic on farmland in summer 2014

fatigue and odd things started creeping in in the following few months

then i became fully ill in February 2015

same pattern for my partner, at the time, who was also bitten and myself -
she was initially more acutely sick in the beginning - really obviously swollen knees - headaches - fatigue - rage - anxiety - digestive problems - weird rashes
i had all the same issues - mostly milder - but my fatigue got worse and worse

we suspected Lyme from the beginning after googling our symptoms etc - but were told by doctor after doctor that it couldn't possibly be - so so we bounced around with one misdiagnosis to another for years.
the infectious disease doctors were by far the worst - in terms of rigid dogma and denial

i didn't find this place until 2017 when we were circling back towards lyme and bartonella being the most likely suspects - based on symptoms - history - reactions to treatments - the fact that we were both ill with the same symptoms - and other stuff we had ruled out etc

it certainly is a marathon rather than a sprint - even when you have the right diagnosis.

I've had Lyme for 9 years now.
But I wasn't diagnosed until 6 years ago by IGeneX.
It took me 3 year to figure out it was Lyme because I don't recall a tick bite.

So I think I've been here for 6 years. I might have signed up for an actual account later but I was already using the site.

After sometime lurking, I officially joined 3-22-2014 after my symptoms really got bad.

I’ve had related symptoms though off and on when I was a youngster starting in the mid 1970s. Many ticks in my life but never had a big bullseye till 1989/90 or so. Dr blew me off, did nothing for it, even though the state university knew all about it and compared what was happening to outdoors people with what was happening out north east USA at the time.

That said, I still made some accomplishments in my life even though my resting life was miserable (I had a wish list) but not everything accomplished to the level I had hoped for.

I turned down the “volume”
In my life around 2014 and never turned it back up. Less stress.

9767 posts later, I still hang out here, but not so much for lyme symptoms anymore. I’m prob mostly in “remission”.

If I can help someone that’s great, but I also want to keep up on new ideas, treatments, etc. in case comes back with a vengeance.

Plus theres smart people here and I am left with numerous autoimmune conditions probably from Lyme disease. Good place to ask general health questions.

Post Edited (astroman) : 6/4/2024 9:08:44 AM (GMT-8)