Free Online Lyme Summit June 4-10

Received an email today from MyLymeData regarding free online Lyme Summit June 4-10.

“Our very own, Lorraine Johnson, will be speaking on MyLymeData at The Healing Lyme Summit, co-hosted by Dr. Richard Horowitz and Dr. Myriah Hinchey. Registration is now open, for more information click here - https://www.lymedisease.org/sign-up-now-for-healing-lyme-summit-june-4-10/

This FREE online event begins next week on June 4-10. The summit will feature a great lineup of speakers to get everyone the most up-to-date research on how to heal from Lyme disease and associated co-infections. In addition to Lorraine, members of LymeDisease.org's board of directors, Dorothy Leland, and Dr. Chris Green will also be featured.”

Thank you WalkingbyFaith for posting this.

I downloaded all the videos for today (Day 1), hoping I might be able to use some online AI tool to summarize them, but wasn't able to do so.

A couple of the free options I tried had limits on the size of the videos that could be uploaded for summarizing. Others offered the ability to enter a URL for the a video, so I uploaded one to Dropbox and tried the Dropbox URL, but that didn't work, either. Some tools summarize YouTube videos, but I don't have the ability to upload to YouTube, as my account is not verified for videos longer than 15 minutes. Plus, that's a copyright issue.

With these facts in mind, I'm not sure I'll go through the time and trouble downloading any other videos from this summit and will likely delete the ones I downloaded today. If anyone has any other ideas, feel free to reply.

Thanks for posting WalkingbyFaith!

I will usually watch these for a bit but unfortunately it looks like Horowitz is going on and on about his Dapsone fervid rave,... once again.

Maybe it's best if I skip this one for now.

Yesterday (Sunday, June 9th) was Day 6 of the Healing Lyme summit.

https://drtalks.com/lyme-summit-2024/free-access-day-6

In one of the talks, Dr. Horowitz mentioned his youngest pediatric patient for which he had prescribed dapsone therapy was only seven years old at the time. The video featured the (now older) girl who shares a few minutes of her story.

What irritated me most about this is the doctors blamed the child for making up her symptoms for attention and diagnosed her with Munchausen Syndrome. That really angers me beyond description. I Googled her name and found the following article.

At 8, She Was Constantly Exhausted. It Took 51 Doctors to Discover She Had Lyme Disease
https://www.today.com/health/disease/8-year-old-girl-lyme-disease-diagnosis-rcna82913

I try to avoid engaging in rage-bait posts, but the above story is just despicable. Of course, many of our members deal with incorrect or incomplete diagnoses, as well as being subjected to apathy, blame, ridicule, gaslighting, etc.

For anyone who's dealt with any of these, we know you're telling the truth and you're not wrong, crazy, depressed, bored, or seeking attention. You're only seeking help from a system that has failed many of us, and, unfortunately, largely continues to do so.

It reminds me of what happened to my son.
When he was a toddler we noticed he would get tired easily. Just running around in the back yard - he’d be out of breath.
Then I noticed his hair was falling out.
When I took him to the Dr. he said something like “is he tired or is he just lazy?”

I went to another Dr and after a few tests - he was diagnosed with Celiac disease.
Changed his diet and his hair stopped falling out and he wasn’t tired anymore.

Geez - as if kids are lazy!!