Please someone tell me if this sounds like Lymes, I have been misdiagnosed with anxiety disorder

Hey everyone, my name is Gary. I'm an RN and just turned 40 today. This all started about 20 months ago. I have tried about 26 Prescription meds for Anxiety disorder and I have been deteriorating lately. Here is whats going on symptom wise:

Shaky, Inner tension, Nervous, Tachycardia, S.O.B., Chronic Fatigue, Stiff Neck, Migraines galore, Joint Pain Starting in my ankles and all the way up, Chronic Fatigue, Irritability at times, Jaw stiffness, Muscle weakness, Right eye pupil is not round and is oval almost like a cataract, Cold Flahes at times, Night sweats at times, my mood is not great and I feel depressed, but not suicidal or anything even remotely close. I think thats about it.

I still have anxiety, but it's not that bad . I have no sense of doom or fear consistant with Generalized Anxiety Disorder. I've been in therapy weekly for the last year or so and have switched therapists a few times. My current therapist just ended relations with me as he said that it appears I have an undiagnosed medical condition rather than a Psychological problem and therfore feels he is wasting my time and money. I honestly agree.

I'm on a Beta Blocker, which doesn't control my heart rate. I'm on Klonopin 1mg twice/day, and Xanax 0.5mg as needed. I hardly take it.

I've been an RN x 16 years and have had lots of testing done since this began, but never had Lymes ruled out. I am going for the bloodwork hopefully tomorrow. Somehow, through all of my research, I didn't pick up on the Lymes as a possible cause of all of this, nor did any of the MD's I've seen. It seems that many of the symptoms have worsened dramatically over the past few months. I'm at the point where I feel like I need to go inpatient somewhere. I'm 5'10 200lbs. I was very active before all of this started. I never had the butterfly rash as far as I know unless it was on my back and went unnoticed. I did have an MRI recently and I was told by the ER MD that is was clean. I'm reading that white lesions don't have to be present for one to have the CNS disorders associated with Lymes.

I won't hold anyone to anything. I'm just looking for opinions as to whether anyone who reads this thinks that this could very well be Lymes.

Thank you all so much in advance,

Regards,

Gary ......... BSN, RN

hi nurse gary;
yes, the sympoms could be lyme; you said, you will get tested tomorrow?! sounds good, it gives you some more information; may be you can get the elisa and westernblot done; its sometimes a fight here where I live to get it done together; think you know all about these testings, being an nurse; if I get the RN right, you stay in uk?

I hope very much that you will get better soon!!!!! dorit

NURSE GARY said...
S.O.B

It's good that you are being tested.  If ANY part of the LD test comes back positive, please see a Lyme literate doctor asap.  The LLDr. will probably test you using the lab Igenex (unless that's where your getting your first test already).... anyway, sounds a lot like LD to me.  I was mis-diagnosed as having severe "break-through" depression which meant I was soooo depressed that my anti-depressant was no longer working.... yeah right.  I WAS depressed... my entire life had been ripped out from underneath me for 13 mos. straight before I stumbled across a list of LD symptoms and realized I had almost all of them... plus a few more (not on the list - haha), and asked to be tested... it came back "positive".  I remember about a week before I got my test results that I actually yelled at my psychiatrist "I want an entire MRI of my body and brain because there is something PHYSICALLY wrong with me!"  Her response?... "Well. I did have a patient once that had a brain tumor."

Then, after testing positive, it took me another 4 mos. to find a dr. who believed the test results and would treat me.  Man was I pizsed off when I was givin a prescription for Doxycicline..... I remember saying, "17 mos. pf pure he11 for a bottle of antibiotics?????"  I had no idea that I had just begun the LD journey even though I had already been sick for a year and a half. 

I really had no clue what I was in for.... and I was too sick to do any research and I couldn't look at a computer without getting nauseous (I couldn't take the light emitting from the screen).... and now it's 8 years later and I'm still doing this merry-go-round.  I have been able to tolerate the computer again just in the past year or so.

But, enough about me.  Please get tested.  Even if you test negative the first time you still may want to see a LLDr.

Hope this helps.

Hi Gary,
I think your symtoms can be from LD, but you wrote you take a lot of Klonopin.
Your symptoms also can be from Klonopin too.
Please look at this:
http://www.benzo.org.uk/
http://benzoisland.org/index.html