kpt812

Hi Kim,
Good to hear from you though sorry to hear you're still struggling with severe fatigue with the rocephin. How long have you been on it?
Did you get your PICC line changed? I remember you were having some difficulty with it. Dr. H talked about possibly upping my husband to rocephin 2x daily if he isn't progressing more. He's only on his 4th day of rifampin so hopefully he'll maintain his progress without a terrible herx. It is only the last week that he is the best he's been since he started treating the lyme and co-infections a year ago. Hoping that he is beginning to turn a corner. It's encouraging.

I saw John last week when we went. He's very thorough. I'm taking samento and cumanda along with supplements. He says that once someone has disseminated lyme/co-infections with neurological symptoms, they always have spirochetes. So- he said I have to always watch this and go back on abx if I start slipping.

Please let me know how your phone consult goes and keep me posted about how you're doing. I hope you start feeling better soon.

Leslie