just got back from doing bloodwork

i'll be praying for ya, good luck

Remember those blood tests are not always accurate. I was sure I would have a positive outcome on mine but never did. Have had 3 WB with co-infections. The only thing I ever tested high for was Bartonella.

Only had some IND with the Lyme tests. I am still trying to figure out what exactly is wrong with me after almost 5 years. I hope yours come back with some definate answers for you.

yes definatly igenix you might not be cdc positive but these days you dont need that you can be diagnose clinically by most llmds.

my doctor says if even 1 band lights up on a western blot its enough to start treatment for a minimum 6-8 weeks of doxy .

James,

Good luck with everything. Let us know how your bloodwork comes out. Get a copy if you can.

yes doxy is cheap so why dont they prescribe it for a longer time.

the doctors have no problem giving a kid tetracycline for 6 months for zits or to clear up acne.

hey maybe things will get better I see the ct attorney general passed a bill that protects doctors now for treating lyme.

maybe more states will follow suit and we can quit playing cat and mouse with the cdc and idsa doctors.  

before its too late and they have a full blown epedemic on their hands. oops too late its already here !   

James,
I know how frustrated this is for you. I got that phone call, too, telling me that my tests were negative. That was last May. I wasted my time with an ID specialist last summer. He initially treated me with 3 weeks of Doxy based on a clinical diagnosis. When I went for my follow up and I wasn't feeling better, he basically shut the door in my face. I tested negative through Quest with bands 41 & 66 positive. I had a rash in august of 2007. I knew I had it. That was the beginning of me finding a LLMD that could help me. I waited until October to see him. The wait was long. I could barely use my right hand. Not to mention all of the pain everywhere. My LLMD is great. Ruled out everything else to be sure. I have been in treatment since Oct. and I have slowly improved. I have full use of my hand, almost completely pain free. Still dealing with other issues but have accepted that this may be a long road. I told you all of this because last year I was where you are now. Don't waste anymore time getting in with a LLMD. 2 months ago I retested through Igenex. My request. My doctor didn't need the result. I still came up negative but 1 more band came up positive and 2 "IND.". Follow your gut and get to a good doctor. Most are very clueless about Lyme. Remember they are not god and you know how your body feels. I am lucky to be in CT where protection of doctors for treating Lyme are protected. Thank god. Don't know what I'd do without my doctor. Please find a LLMD...I think then you can stop guessing and driving yourself crazy and get back to feeling better!!!

James,

Get copies of your bloodwork and post the results here. We will be able to tell you which bands are Lyme specific. Just because your test was negative does not mean you do not have Lyme. My test was negative 2 times already but the second test had more bands and INDs on Lume specific bands.