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Lyme Disease
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Posted 6/24/2009 4:39 PM (GMT 0)
Does anyone feel in their hearts that they will never get better? That they'll never feel somewhat normal again?

Is there anyone who had this gut feeling in the beginning, and now they ARE better?

I'm really confused...I think I might be in denial and just going with treatment because I'm really not sure what I would do if I stopped it. At least with treatment there is a possibility that things will change. If I stopped, I'd just sit here and rot and probably eventually call it quits.

Posted 6/24/2009 9:23 PM (GMT 0)

Hi Jendays247.  I think that many, if not most, people who have Lyme have this feeling.  It is understandable.  Lyme is a serious disease with so many symptoms.

You definitely can get better with treatment.  It may be a tough road and take time, but you are definitely better off getting treated than not.

Posted 6/25/2009 1:03 AM (GMT 0)
Hey Jen, I feel that way so often too but then remember that there is a possibility as long as I continue with treatment. It's understandable that we feel this way. Just keep in mind that there are quite a few people who did not feel any improvement at all until the 18th or 24th month of treatment. Hang in there and don't give up.
Posted 6/25/2009 1:24 AM (GMT 0)
Jendays, I don't know if this feeling will last, but when I learned about this TBI, I experienced my first real HOPE of getting better. For the past couple of years I have searched for what might be wrong w/ me, starting to accept deep down that I was just mentally ill and would only get worse, never better. I've lived in fear of my friends and co-workers 'discovering' how ill I really was.

I hope, deep down, for you, that you are able to tell yourself, deep down, that now that you know what is wrong, and now that you have started solid treatment, you will only get better. As the others say, maybe it will take time and maybe you will still suffer some bumps. But hopefully, now that you have a diagnosis, your chances of getting well are greatly multiplied!

And I mean that from the bottom of my heart. Do please stop telling yourself that you will never get well. I once read a story about a very talented athlete who was so humble as he was constantly winning, that he would say, 'Well, I'll probably get heart cancer and die.' That was his favorite come back. Story goes, he died young, w/ the very rare heart cancer. I don't know if it's true, but it was written as a true story. It at least teaches us to tell ourselves more positive stuff.

Hopefully very soon you will be able to say, 'Now I have seen the worst of it. Now I will get better. Take THAT you stinking Rat B'strd spiros!!'
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