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Can't remember when I felt this bad...

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Posted 6/28/2009 3:24 AM (GMT 0)
Okay, so I've been eating gluten free for three weeks now. Today and yesterday I decided to give myself a break. My brain fog was bad last night and all of my existing symptoms were MUCH worse today. I had to take 3/4 of one of my anxiety pills. I felt like I was completely in a dream...like at any second I would forget where I was...my brain wouldn't tell my hands and legs to do what I wanted them to do quick enough...

I'm three weeks into treatment without a noticable herx. Should I assume this is from gluten or is it a herx? I'm so afraid tomorrow will be just as bad. It was almost unbearable...I hadn't been that anxious in a very long time...I'm nervous for tomorrow now.

:(

Posted 6/28/2009 4:13 AM (GMT 0)
I forgot to mention that my left leg is heavy again and that had been gone for a couple of weeks now.
Posted 6/28/2009 4:27 AM (GMT 0)

I understand. Started Flagyl a few days ago. Both my legs are numb, burning and heavy, I walk like a drunk. It's great when I go to the store with my 2 kids and people think I'm drunk.

It's going to get better, right!

Posted 6/28/2009 6:47 AM (GMT 0)
If you stop the gluten again do the symptoms improve again? Might be good to try a longer period of time gluten free before re-challenging...I went 6 months before my first gluten challenge and the symptoms that appeared were quite obviously from the gluten.

Keep in mind gluten is considered to be pro-inflammatory and many LLMD's recommend a gluten-free diet to their patients as part of their treatment for Lyme.

Good luck,
Posted 6/28/2009 1:53 PM (GMT 0)

Jendays, to me it sounds like you could be herxing.  Many people experience them every 3-4 weeks.   Are you doing things to detox?

Make sure you are documenting your symptoms so you can see when your herxes occur and how you are responding to the meds.

I hope you feel better soon.

 

Posted 6/28/2009 4:08 PM (GMT 0)
I am documenting everything, and I am doing detox baths when I can handle them. I had been feeling bad with a steady decline for about three years, but almost exactly four weeks ago my symptoms got INTENSELY worse and a few new ones popped up. I realized this last night and thought maybe it was part of the cycle, but I've never noticed a cycle before. Things just always were worse day after day. It was never a flare here and there. Just bad days. Every day. Since four weeks ago, things were bad for about a week, then slowly got a little bit better but I just figured that was naturally happening and not due to the abx. I still don't know.

I guess it's good that I'm on the abx.

Oh, and if it's not part of a lyme cycle...it could also be because I always feel worse around my period, and that's coming in the next week or so.
Posted 6/28/2009 4:17 PM (GMT 0)
Woke up today and I'm already unable to think clearly...I feel completely in a fog...I want to scream WHY..................................?!??!?!?
Posted 6/28/2009 6:56 PM (GMT 0)

Jendays, I agree it is good you are getting treated.  Many women with Lyme experience a worsening of symptoms prior to and/or around their cycle.  Brain fog can be one of the worst Lyme symptoms.

Hang in there.

Posted 6/28/2009 7:48 PM (GMT 0)
Jen, I hope you start to feel better. I agree that brain fog can be one of the worst Lyme symptoms. I also try to document symptoms but still can't make sense out of any of it. I'm glad you're on antibiotics and hopefully things will start to improve soon.
Posted 6/28/2009 7:56 PM (GMT 0)
Jen,

I'm sure you already know this because you are very knowledgeable but Lyme symptoms do get worse around your cycle. I always felt bad one week before I started. That's why I take the Depo shot now.
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