long time illness, just diagnosed.

So, for about four years now I've been having some pretty debilitating medical problems.
In the beginning I had started getting shakes, migraines and breathing problems. Only the latter was addressed at first, I went to a pulmonologist for what was supposedly asthma, this went away over time. Over the time this problem was being dealt with my shaking and migraines continued to get worse, they started to damage my balance and ultimately my high school experience. My school saw me as a liability and has said for 2 of my school years not to come back until my problems were sorted out, this is without giving me a tutor or any help, letting me teach myself the entire time and fall out of the social web.

Anyway, during that time I've been to specialists in nearly every field, I've gone for homeopathic treatments from 2 doctors as well as 2 or 3 neurologists, a cardiologist, therapists and psychiatrists, and more than I can possibly think of at the moment.

My doctors started calling my disease (which as far as I was concerned was disease x or whatever you'd like to call the unknown diagnosis) pseudo-seizures with migraines, these seizures have lasted from 20 mins to 4 hours. It causes me severe muscle pain, plus people just don't want to be around me when I'm showing these symptoms.

Doctors had attributed these symptoms to stress and anxiety, they put me on tons of different medications, for example, Paxil, Depakote, Abilify, Amitryptaline, Topamax, Clonopin, Imitrex, and the list goes on. None of these helped me at all. I also tried a treatment with a device called the radiac, an appliance that you connect to your pulse points to pick up and match the electrical impulses your body emits. I had heard from a doctor/friend of mine that even lymes could be eradicated using the radiac and proper vitamins. (I'm pretty skeptical about that.) Anyway, my point is that I've pretty much tried everything.

So, throughout the 4 years I was being treated for these debilitating problems the doctors never checked me for lymes, until about 2 months ago when one of my doctors suggested that I do a blood test for it. Positive. But at a low level, suggesting that I've had this for about the duration of my illnesses.

My symptoms are now these shakes that we've gotten used to calling seizures, nearly constant headaches, joint, muscle and bone aches, decreased balance, difficulty walking, I'm pretty much experiencing pain with whatever I do. It's been keeping me up at night, I'm lucky to get an hour or two in.

I went to the Doctors yesterday and he was saying that my course of tetracycline wasn't working and that I might need to get a pick line in my arm for a month for IV antibiotics.

My question is, do you guys have any suggestions to improve my health?

My resources seem momentarily drained.

Thank you for welcoming me here and offering me your condolences and advice. :)
I'm a 17 year old male, and yes my parents are supportive, although slightly aggravating about my health issues.

Now that I'm looking at the list of symptoms I realize I have quite a few more that I attributed to other factors.

I'll also have to look into a more lyme reputable lab, I had not been aware of these co-infections. Thank you, I will ask about them.

My Tetracycline is 100mgs taken twice daily, I've been taking them for about 2 months now. Yes, he was only planning on treating me with IV for a month, I will inquire more on that subject. I am in NY near where PA, NY and NJ meet.

I had never heard of herxs before this, my pain and sleeplessness have been getting worse since the course of antibiotics was started. I'm glad that this can mean they are working. I think I will start documenting my symptoms, the review sounds like a very good idea.

Thank you for the helpful reply.

Hi shibumison.   I am glad your parents are supportive.

From what I understand, some of the best Lyme doctors are in NY.  We don't post doctor names on the board, but feel free to email me or have your parents email for names. 

Sometimes Lyme doctors are booked.  If the one you want to see is booked, ask to be notified of any cancellations.  This can help you get in sooner.  In the meantime, you can call IgeneX and have them send you a test kit.  You take the kit to a doctor who is willing to draw the blood and send it in.  It typically takes about three weeks to get the test results.  The results will be reported to the doctor.  If you do this ahead of time, you may be able to have your test results for your appointment.   It may save a little time.

It does sound like you could be herxing.  How long have you been on the antibiotic?

I am so sorry to hear what you have been going through.....but at least now you have a diagnosis and know what is going on.........best thing you can do now is research as much information as you can about your disease and treatment options. It took me 12 years to get a diagnosis of Lyme after being tested for MS, Lupus, Dr that wanted me to take anti anxiety and anti psychotic drugs.....guess he thought it was all in my head especially when I insisted he test me for lyme and I came up negative....that was 10 years ago most doctors know little to nothing about Lyme

Good wishes for your finding the best treatment and for full recovery