New To Lyme?.......Start here!

New members, welcome to the forum!
First of all, please, PLEASE do not post in this thread as your post will not get an answer here! The members that have been here for any amount of time are looking at the current posts to see if there is anyone new looking for help or suggestions!!

Also, Admin doesn't want us posting any doctor's names and contact info on the forums (all of them), so please don't post doctors names and contact information

Below, you will find some helpful information to get you started on your Lyme journey. We have some very knowledgeable members here so if you have any questions, please don't hesitate to ask. We will do whatever we can to help you.

If you need help finding a Lyme Literate Medical Doctor(LLMD), please start a new post that tells us what state or country you need a doctor in. We will do our best to find you an LLMD closest to you.

Please don't hesitate to post and tell us all about yourself and your situation. We are a very caring a friendly group and we will try to guide you as best as we can.

If you have any other questions, you can either start a new post or email one if the moderators: Girlie or Sebreg.

And always remember, we are here for you and you will get through this! It may just take a little time.

Thanks!

Post Edited By Moderator (Girlie) : 4/6/2019 1:37:29 AM (GMT-6)

Where Can I Find A Doctor To Treat Lyme Disease?

https://www.ilads.org/patient-care/provider-search/

https://www.lymedoc.org


click on their names to get info, addresses, phone nos.

RATES WON'T SHOW unless you see otherwise.


those llmds/llnds who do NOT have websites, their names are NOT shown ... just those who have made their names/treating lyme/co-infections publicly!

Post Edited By Moderator (Girlie) : 5/23/2019 5:58:30 PM (GMT-6)

Detoxing:

Detoxing is extremely important when you are using any anti-infective treatments to rid the body of the Lyme bacteria.

One of the most popular sites lately for information on detoxing for Lyme patients is:
www.tiredoflyme.com/detox-methods.html It's a wonderful listing of detoxing routines that has been built around recommendations from Lyme patients!!

Thanks to Deejavu for posting this.

Herxing is when bacteria dies - it creates toxins. Plain and simple.

Where do those toxins go? If a person does not detox on a daily basis, they stay in the blood, joints, tissues, colon, everywhere and cause so many problems. Thus below are detoxing instructions:
*****************************************************
Edited to add from Traveler:
For a foot soak - which is sometimes easier to fit in your day, although it's not as effective. It's still better than not doing it at all -
I use 1 & 1/2 and up to 2 cups of Epsom salts and 16 ounces of peroxide and soak my feet for 20 minutes.

For the full bath, use 3 - 4 cups of Epsom Salt and 32 ounces of hydrogen peroxide and start with no more than 7 - 10 minutes in the water to start. You can build up to staying in the water for up to 20 minutes, but please start off very slowly!! This has the potential to make you herx if you rush it.

+++++++++++++++++++++++++++++++++++++++++
Detoxing Instructions:

Buy:

Thermometer
Natural Fiber Brush (for dry skin brushing to open up all the pores of the body)
Here is a link so that you can see what kind of brush is being spoken of:
www.vitasprings.com/skin-brush-bernard-jensen.html

Epsom Salts (the more the better)
Hydrogen Peroxide (bottles of them)
Ginger (fresh) 2 - 4 tablespoons wrapped in a cloth or tea ball (or nylon hose)
Mustard Powder
Cayenne Pepper
Supplements (I use Green Vibrance ~ can be bought at the Vitamin Shoppe)

1. Detox Bath: Put the thermometer in the water to make sure the temperature is around 98 degrees, NOT warmer. (You do not want HOT water as that can make you feel worse).

As the water is running, add 4 to 6 cups of Epsom Salts and entire bottle(s) of Hydrogen Peroxide (32 oz., food grade is 3%). Some use 2 bottles.

Before getting into the bath, you will need a Natural Fiber Brush and do a "dry skin brushing" to unclog your pores always brushing toward your heart, don't forget to brush the soles of your feet too! Deejavu is not in any way affiliated with this company. This link is only provided as a visual aide. www.vitasprings.com/skin-brush-bernard-jensen.html


The Epsom Salts help draw out the toxins and at the same time the magnesium absorbs into your bloodstream, most people do NOT have enough magnesium. The Hydrogen Peroxide adds oxygen into your bloodstream which lyme spirochetes hate. Try to stay in the bath a minimum of 20 to 30 minutes, the longer, the better.

Detox Baths are NOT a one time thing. One must do them daily or start off slow and eventually build up to them. One bath will not accomplish much. NOTE: Most people feel "worse" during the first week of detox baths and eventually feel better since it is a cumulative effect.

Epsom Salts and Hydrogen Peroxide: Recent research has shown that one when soaks in a bath of magnesium sulfate, both magnesium and the sulfate independently increase measurably in the blood and urine. Magnesium sulfate helps stabilize Hydrogen Peroxide so that the ultimate breakdown into H2O and free oxygen is more gradual and functional to the process of benefiting the body. This research documents the very real beneficial aspects of this bath therapy.

Actions of Bath Ingredients:

Hydrogen Peroxide: a simple non-toxic molecule of H2O2 that is beneficial in oxidizing (breaking down) toxins as well as killing anaerobic microbes. It will also detoxify pesticides and petroleum-based toxins and oxidize metals. Hydrogen Peroxide is also naturally produced by macrophages in the body to kill harmful bacteria.

The Epsom Salt Council reports this:

Magnesium is the second most abundant element in human cells and the fourth-most positivity charged ion in the body.

The National Academy of Sciences reports: Most Americans are magnesium deficient helping to account for our society's high rate of heart disease, stroke, osteoporosis, arthritis and joint pain, digestive maladies and stress-related illnesses.

Raising magnesium levels may improve heart and circulatory health, reducing irregular heartbeats, preventing hardening of the arteries, lowering blood pressure. Flush toxins and heavy metals from the cells, easing muscle pain and helping the body to eliminate harmful substances.
www.globalhealingcenter.com/natural-health/types-of-magnesium/

Ginger: functions to open up pores of the skin and increase the blood flow at the surface of the skin so that the oxygen from the hydrogen peroxide can do its work in detoxifying poisons and kill bacteria and fungi. The pores open wider so that the magnesium sulfate can be more readily absorbed. Ginger is invigorating and can stimulate perspiration for the elimination of toxins.

2. Foot Bath: There are so many "recipes" for foot baths, you can have fun with them and I do them when I am sitting at my computer or knitting on my couch relaxing.

***The Soles of the Feet have the most pores compared to any other part of the body (about 2000 pores per foot)***

Do this 2 to 3 times a day or more if you can for at least 30 minutes.

Mustard/Pepper Bath: Mix the following ingredients in warm water: Dry Mustard Powder (1 tablespoon), Cayenne Pepper (1 teaspoon), 1/2 tsp. dry Ginger Powder, 1/2 tsp. Rosemary Powder and soak for at least 30 minutes. There should be enough water to cover just above the ankles.

This foot soak is used as relief from general aches and pains, toxic headaches, increase blood and lymph circulation as well as giving a sense of well-being.

3. Dry Skin Brush: Once again, a natural fiber brush (can be found at any drug store), brush your entire body toward your heart. Purpose: Getting rid of dead skin that are clogging your pores and keeping toxins inside.

4. Internal Cleansing: Paragone is a good product to get rid of parasites that come from drinking water, eating red meat, raw fish, and processed foods. I also like "living clay" or bentonite clay to drink internally but please read the instructions as it must be taken on an empty stomach. It is a fantastic binder of toxins and heavy metals and your body will not only eliminate them but also rid your body of parasites as well. I also take Aloe Master.

NOTE: People on antibiotics should NOT take any type of clay or activated charcoal closer than 2 hours (before and after) anything that they wish their body to absorb, as the clay or charcoal will bind to it and usher it out of the body just like it does with the toxins.

5. Building Immune System: I drink Green Vibrance Powder (contains billions of probiotics), very expensive but well worth every penny because of all the ingredients. I also take Vitamin C, B Complex, Omega-3 capsules, and other supplements.

Green Vibrance Super Food:

www.vibranthealth.com/green-vibrance/product-pages/green-vibrance/

www.vibranthealth.com/

When a person is sick with any illness it robs the body of these much-needed nutrients.

When a person's immune system gets stronger, their body is more capable of fighting off bacteria and viruses on their own. Yes, Lyme disease brings along viruses too.

6. Diet: Avoid all sugar, alcohol, breads, carbs as they convert into sugar, try to eat healthy and avoid acidic foods (soda - any type is the worse thing a person could put into their body), very acidic. Drink as much filtered water as possible (adding fresh lemon is very good), at least 6 glasses a day (like the Brita Walter Filter Canister).

7. Stress: Stress is detrimental to anyone's health and to try to eliminate as much stresses from your life can only benefit you. Of course there are stresses one can not avoid but one can learn how to deal with it in a healthier fashion, having a stressful day? Learn deep breathing exercises, watch a funny movie.

Good book to buy for stress is 60-Second ****zu: The Natural Way to Energize, Erase Pain, and Conquer Tension in One Minute (Paperback) by Eva Shaw

http://www.amazon.com/60-Second-****zu-Natural-Energize-Conquer/dp/0805040684/ref=sr_1_1?ie=UTF8&s=books&qid=1202250143&sr=8-1

8. When you feel strong enough, try to start exercising even if it is only yoga as stretching is so good for you and also relaxing. There is meditation if you can't exercise. As you build up your immune system you will get strong enough to do whatever exercise of you like.

Purpose: you are getting oxygen into your bloodstream and lyme bacteria hate oxygen! Plus the extra benefits of exercise is it makes you feel good mentally because it naturally raises your serotonin levels and helps with depression.

9. Find a licensed Lymphatic Drainage Therapist, or learn to practice this on yourself. LDT is another fantastic way to rid your body of toxins.

If you can start doing some of these things, your body will love you for it and you will start feeling so good!

10. Positive thinking - It takes training of the mind but you if really want to do it, you can. We all have choices on how we view life, one can choose to be negative, angry or bitter or just accept that you are ill because acceptance is half the battle with any disease and leads to a more healthy way of life by dealing with it.

What this does for Lyme: By detoxing you are ridding your body of the toxins and ammonia that lyme bacteria cause. By building up your immune system, your body can start killing off the bacteria on it's own.

Extras:

Juicing or Green Smoothies
detox foot pads
sauna (if you have access to one)
liver/gallbladder cleanse
colonics
coffee enema
massage
lymph drainage
rebounders
organic body products
water testing
parasite cleanse (paragone) or any other reputable product
candida cleanse
essential oils for detoxification
magnet therapy for electromagnetic stress

Some products that reduce toxic load (and even rid the body of toxins) is Dr. Jernigan's Neuro Antitox (there are 3 different formulas (I used the CNS/PNS Formula) and also Molybdenum is helpful.

Detoxifying is much like exercising, you need to do it regularly and in consistent doses in order to get results. You won't get miracle results from one-time use.

Here's to good Health!

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Favorite Detox methods and the number of votes for each type of method are listed.

/bloggerlenny.wordpress.com/2015/02/16/cleaning-up-the-mess-left-by-dead-spirochetes/
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4 reasons why you still feel bad despite detoxing:

www.tiredoflyme.com/4-reasons-why-you-still-feel-bad-despite-detoxing.html#.VTWf5vAcSic

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11 things that can make a person with Lyme disease feel worse besides treatment:

www.tiredoflyme.com/11-things-that-can-make-a-person-with-lyme-disease-feel-worse-besides-treatment.html
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Shower (cold) - can be helpful for some

Jumping into a cold shower forces the muscles to contract, which in turn moves toxins along to be processed. It also opens the arteries allowing a fresh supply of blood to infiltrate the organs

Once jumping into a cold shower, it takes about a minute for the body to adjust and become comfortable. 3 minutes in the shower will suffice

Warning: Make sure the environment you'll endure after a cold shower allows the body temperature to rise."

Post Edited By Moderator (Traveler) : 4/21/2016 11:15:39 AM (GMT-6)

Quoting Ticker (a former Moderator here):

Western Blot Bands description:

9 cross-reactive for Borrellia
12 specific for Bb
18 unknown
20 cross-reactive for Borrellia
21 unknown
22 cross reactive with other spirochetes/bacteria
23-25 outer surface protein C (OspC), specific for Bb(Lyme)
28 outer surface protein D (OspD), specific for Bb
30 outer surface protein A (OspA) (common in European and
one California strain?)
31 outer surface protein A (OspA), specific for Bb
34 outer surface protein B (OspB); specific for Bb
35 specific for Bb
37 specific for Bb
38
39 Bacterial membrane protein A (BmpA); specific for Bb
41 flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection
45 cross-reactive for all Borellia (sometimes people with Lyme who have
this band positive also have the co-infection Ehrlichiosis)
50 cross-reactive for all Borrellia
55 cross-reactive for all Borrellia
57 cross-reactive for all Borrellia
58 unknown but may be a heat-shock Bb protein
60 cross reactive for all Borrellia
66 cross-reactive for all Borrelia, common in all bacteria
83 specific antigen for the Lyme bacterium, probably a cytoplasmic membrane- specific for Bb
93 an immunodominant protoplasmic cylinder antigen associated with the flagellin. Specific to Bb.


Some of the above information may or may not be correct. I have located another source for understanding the bands of the Western Blot here - www.oocities.org/hotsprings/oasis/6455/western-blot.txt , which indicates that band 23 is not Lyme specific, and there may be other differences.

Post Edited By Moderator (Girlie) : 12/30/2017 3:34:19 PM (GMT-7)

Probiotic information shared by member, Healing98:

When I started taking abx, everyone here strongly encouraged me to take probiotics. Something called acidophilus. Well, I went to the store and looked around. I found some that I had seen advertised on TV which seemed expensive to me, and next to them, some generics for just a few bucks with like 9B cultures in it. Not being wealthy, I went for the cheap stuff.

Well, I started taking it but I didn't notice a difference. Because of this, I would take it sometimes, and other times, I was either too lazy or forgetful to take them.

But then, many months later I began to have digestive issues. How could I if I was taking probiotics? So like anything else, I began to do research. Wow! I could not believe what I was reading… there is a whole new world out there!

So After months and months of research, I thought that I would share my experience with you because I wish someone had told me this from the start. If someone did, maybe it went in one ear and out the other (grin).

There are lots and lots of probiotics, not just acidophilus. These probiotics come in bacteria and yeast form.
We have our guts filled with these bacteria and yeast. It is called microflora.

From what I have read, these micro flora make up to 70% of your immune system, they protect you from infections, bad bacteria and yeast and scour your food for nutrients which are then made available to your body. Have you heard of people who are lactose intolerant? There is a probiotic for that. Have you heard of someone who can’t extract vitamin B12 from food? There is a probiotic for that. Maybe someone you know doesn’t get enough fiber from food? There is a probiotic for that.

So as you can see, many of our digestive ailments could be because we lack a certain bacteria in our gut. As a matter of fact, probiotics are added to baby formula. I didn't know that!

And so what happens when we use antibiotics? Well, some are gentle enough that they don’t mess your gut too much. Some are horrific on your gut. One thing that they have in common is that they kill your bad bacteria but also your good bacteria, making you vulnerable to infections.

For me personally, I have found that Bactrim, Rifampin and Doxycyclin give me severe stomach issues. Are they worse than other antibiotics? I don't know, but my tummy seems to think so.

OK, so what am I am doing for it? Well, there are five major factors that I have found to take into account when choosing a probiotic.
1. Whether it is bacteria or yeast based.
2. The quantity of beneficial bacteria in it (in the billions)
3. How many different strains of bacteria are in the product
4. If the probiotic comes with enzymes, bile or other digestive aids
5. Whether the probiotic is shelf safe or if it needs to be refrigerated. Seems that the better probiotics are refrigerated.

I found a probiotic from NOW products that is doing great for me. Intestinal pains, bloating and ulcer pain have either gone away or diminished. I still have acid reflux from a weak LES but at least my other pains are gone.

One more thing, I used to go to the bathroom (number 2) once a day and after taking this, I now go two or three times (which is a good thing). I don't own stock on NOW brand and mention it here as a reference only. The probiotic is named “NOW Probiotic-10 50 Billion” and contains 10 strains of probiotics: Lactobacillus acidophilus (La-14), Bifidobacterium lactis (BI-04), Lactobacillus plantarum (Lp-115), Bifidobacterium lactis (BI-05), Lactobacillus rhamnosus (Lr-32), Strepto. thermophilus (St-21), Lactobacillus paracasei (Lp-37), Bifidobacterium breve (Bb-03), Lactobacillus salivarius (lS-33), Lactobacillus casei (Lc-11)

I also wanted to share with you a website (http://www.probiotic.org/) that I use as reference and one that I use to find out what each probiotic does. It has great information and references if you want to search further.

For example:
-- Lactobacillus Rhamnosus prevents urinary tract infections, aids in dairy product digestion, decreases duration of diarrhea.
-- Strepto Thermophiles prevents transformation of nitrates into cancer-causing nitrites and helps with chemotherapy side effects.
-- Bifidobacterium breve inhibits e coli, produces lactic acid and acetic acid. It also breaks down fiber and other types of food that are considered non-digestible.
-- Lactobacillus salivarius is instrumental in reducing at least five bacteria associated with the formation of plaque. It also helps the immune system response to colitis and septic shock.
-- Lactobacillus casei: This one is especially good for crohn’s disease. It also produces lactic acid, helps control diarrhea, alleviates constipation, and modulates the immune system.

So there you go, next time someone tells me to get probiotics, I will know that not all probiotics are the same and that some research needs to be done to find out which are most beneficial for me.

I also just got some free kefir grains that I am going to use for making kefir and can't wait to try it.

In some website, they mention the following beneficial bacteria and yeast that are in kefir:Lactobacillus Caucasus, Leuconostoc, Acetobacter species, and Streptococcus species. Beneficial yeasts, such as Saccharomyces kefir and Torula kefir are also in it.


The thread that this originated from can be seen here:
www.healingwell.com/community/default.aspx?f=30&m=3249000&p=1

Post Edited By Moderator (Traveler) : 11/21/2014 3:33:46 PM (GMT-7)

Waterproof Picc Line Cover/Protector:

Many out there, look for quality

goo.gl/ON48wj


Cloth Picc Line Cover:

www.designforyourlife.com/My_Homepage_Files/Page3.html

Post Edited By Moderator (Traveler) : 1/23/2014 3:59:44 PM (GMT-7)

Prescription Assistance Programs:


www.pparx.org/

www.freemedicineprogram.org/

www.needymeds.org/

There are a ton of resources listed in this link covering all kinds of thing we may need as we go through treatments!! Please check it out~

www.lduc.org/lyme-disease-resources


Since some people may not have much experience with ordering item - specifically supplements and things we need for treating these infections online, here is a list of online companies that members have had good experiences with:

iHerb
www.iherb.com/

Monterey Bay Spice company - or Herbco
www.herbco.com/

1st Chinese Herbs
www.1stchineseherbs.com/
Or, their new site:

www.firstchineseherbs.com

Natural Healthy Concepts
goo.gl/75bEu3



Amazon smile - they will donate a small percentage of each purchase to your chosen charity - and they have several Lyme charities you can choose from as well!!
smile.amazon.com/

**One caution about purchasing supplements on Amazon.com - there is the potential for counterfeit products because 3rd party vendors can sell directly to consumers via Amazon.com. Please be careful and research the seller and products (read reviews!) prior to making purchases.

Amazon for the UK:
/www.amazon.co.uk/

www.woodlandessence.com

www.treatlyme.com/

Sage Woman Herbs (excellent place to buy tinctures. More affordable than some others and shipping is wicked fast)
www.sagewomanherbs.com/

Green Pasture (great place to get fermented cod liver oil, coconut oil, etc...)
www.greenpasture.org

Elk Mountain Herbs (other great place to buy tinctures)
www.elkmountainherbs.com/

Chris Kresser (I buy Prescript Probiotics here)
store.chriskresser.com/collections

Green Dragon Botanicals
greendragonbotanicals.com/

Mountain Rose Herbs (very high quality bulk herbs)
/www.mountainroseherbs.com/

swansonvitamins.com

www.vitacost.com

/www.pureformulas.com/

Although expensive, this site sells pure, high quality supplements (including cistus incanus and japanese knotweed, cilantro, neem, and samento)
www.biopureus.com

www.supersup.com - not as low cost for everything as they used to be, but is a good back-up site for when something is out of stock at other websites...

abchomeopathy.com - for those in to homeopathic medicine, this is an excellent place to get a wider range of remedies and potencies than what is typically available in a health food store.

Essential Oils -

The Natural www.thenaturalonline.com

I would NOT recommend Herbalcom. http://www.herbalcom.com The herbs I bought from them weren't very good quality, and other people have had issues with them.

Good for lots of affordable Vitamins you may need in bulk:
www.puritan.com

Young Living Essential Oils - great products and excellent customer service. www.youngliving.com/en_US

Post Edited By Moderator (Traveler) : 9/27/2016 8:41:48 AM (GMT-6)

www.Roadback.org

Anti-infective therapies or approaches that can feature the JH(Jarisch-Herxheimer):

Antibiotic/antifungal therapies < LI>Oxidative therapies
Ozone 
Ultraviolet Blood Irradiation 
Hydrogen Peroxide therapy 
High dose vitamin C therapy 
Induced Hyperthermia 
Sunlight exposure 
Various herbal therapies 
Bee sting reactions 
Iodine reactions

The Herxheimer reaction (also known as Jarisch-Herxheimer or Herx) occurs when large quantities of toxins released into the body as bacteria (typically Spirochetal bacteria) die, due to antibiotic treatment or rapid detoxification.

The more typical JH reactions to anti-infective therapies are: worsening of symptoms, febrile states such as night sweats, flu-like picture, hot swollen joints, mental depression and fatigue. I recommend home therapies designed to clear the blood and make the patient more comfortable. My routine calls for baths in hydrogen peroxide and Epsom salts. These baths are very effective and have tremendous anti-infective effects. They may work for only a short time at first and may need to be repeated. The peroxide easily enters the body through the skin and rapidly detoxifies and sterilizes the blood. There will be a marked reduction in tight muscles that can be a part of a JH reaction. Unfortunately peroxide can have a JH reaction of its own, but this is more pronounced when it is used IV rather than in a bath. Magnesium in the Epsom salts also passes easily systematically; it has a local anesthetic, antispasmodic effect and an overall improvement in the performance of most systems. Oral peroxide is available but not discussed here. The IV route for both peroxide and magnesium is used to stop the JH reaction in office management. The same benefit of blood detoxification and general enhanced clearing of tissue toxins and bacteria can be claimed for high dose ascorbic acid (20-50 GMs IV). Vitamin C can be given in oral form too. Ascorbic acid powder equals about 5 grams per level teaspoon. This dose can be taken with water or juice as often as needed or until there is GI intolerance such as diarrhea. The clinical effects are similar to peroxide. In fact, the two can be given to a patient on the same day with excellent results. It must be remembered however; the vitamin C will also neutralize peroxide and thus should always be given after the bath. Mild JH reactions are also seen with vitamin C therapy again mainly when given IV. Such therapies as peroxide baths and vitamin C are easy to do at home and extremely effective at helping patients make a quick, safe recovery from a JH reaction.

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"FDA drug library screen to identify drugs that are effective against dormant B. burgdorferi persisters"

www.nature.com/emi/journal/v3/n7/full/emi201453a.html#tbl1

Post Edited By Moderator (Traveler) : 8/9/2014 11:30:56 AM (GMT-6)

The Spoon Theory- But You Don't Look Sick!


www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/

Many people prefer alternative medicine options and it may be a good idea to list some of the books are out there (some people may also be allergic to conventional antibiotics as well). Thus, I would put this in:

http://www.lymeinfo.net/altbooks.html

ALTERNATIVE MEDICINE BOOKS
Lyme Alternative Medicine Books

The Homeopathic Treatment of Lyme Disease
by Peter Alex, translated by Doug Smith © 2007
Description: "This is one of our most exciting new books. Part of our excitement about this book arises from the fact that it was written by a German health care provider--we believe that healing from Lyme Disease requires a global perspective that looks beyond the borders of the United States. We are also excited because this book's subject is homeopath--a healing modality which is generally considered to be among the most powerful methodologies in the world."

Lyme Disease and Modern Chinese Medicine
by Dr. QingCai Zhang; © 2006
Description: "What is modern Chinese herbology and how does its phytopharmacology match with the pathophysiology of Lyme disease? What are the shortcomings of conventional Western approach in treating chronic Lyme disease? How does MCM treat Lyme disease with herbal remedies and what are the phytopharmacology of these herbal remedies? This book is a comprehensive discussion about traditional and Modern Chinese Medicine and aims to answer these questions in detail."

Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its Coinfections
by Stephen Harrod Buhner; © 2005
Description: "Healing Lyme examines the leading, scientific research on Lyme infection, its tests and treatments, and outlines the most potent herbal medicines and supplements that offer help--either alone or in combination with antibiotics--for preventing and healing the disease."

Chronic Fatigue, Fibromyalgia, and Lyme Disease
by Burton Goldberg, Larry, Jr. Trivieri; © 2004
Description: Although there is only one chapter dedicated to Lyme disease, the entire book provides information that may be useful to Lyme patients. Anecdotal cases are presented.

The Top 10 Lyme Disease Treatments
by Bryan Rosner, James Schaller; © 2007
Description: "The practical guide to understanding modern treatments and building a comprehensive treatment plan."

Lyme Disease: How to avoid, detect and treat
by Ronald L. Hoffman; © 1994
Description: This booklet lists supplements that may be beneficial to Lyme patients.

Lyme Disease Alternative medicine can help
by Hannelore Helbing-Sheafe, Ph.D., Hannelore Helbing-Sheafe; © 2004
Description: The amazon review reveals that this book was written by a Lyme patient who also has a holistically oriented practice.

Beating Lyme Disease: Using Alternative Medicine and God-Designed Living
by David A. Jernigan, Sara Koch Jernigan © 2004
Description: This book focuses on takes a different route from the others is discussing lifestyle, bioresonance scanning, etc. Product recommendations include the Jernigan line of neutraceuticals.
Also See: Surviving Lyme Disease Using Alternative Medicine
And Jernigan Neutraceuticals

Actually, the above book is no longer in print. The newer book is called "Beating Lyme Disease" 2nd edition and the link is:

http://www.hansacenter.com/books.php

www.hansacenter.com

There are also Stephen Buhner's books. It's hard to find a single link for all of his books without using a site that is selling those books, so I chose to post Amazon's list:
www.amazon.com/Stephen-Harrod-Buhner/e/B000APJOG6

And don't forget to check for "e-books" as well, as they are often lower in price than the print editions!

To order The Cowden Protocol, click on link below:

www.nutramedix.com


Free e-books explaining The Cowden Protocol:


http://www.lymediseaseresource.com/Dr_Lee_Cowden.html



for those that are interested in the "Chronic Tonic" that Traveler used:
/drive.google.com/file/d/0B20M_MOnUSWJdWNUeXRBSWpFeU0/view?usp=sharing


www.healingwell.com/community/default.aspx?f=30&m=3244272


www.healingwell.com/community/default.aspx?f=30&m=3387734

Post Edited By Moderator (Traveler) : 4/21/2016 2:15:14 PM (GMT-6)

Places where your local gp (or any other doc) can get educated about Lyme;

www.ilads.org/lyme_programs/lyme_training.html



With so many of us having to find a way to get treatment & end up trying to educate the doc we end up using, I thought this would be a really good post to keep here in the "sticky".

Hi All,
I just found a social network for teens with Lyme Disease! Please share this with any teens that you may know who need to be with other teens going through this ordeal with tick-borne infections.

www.lymeteens.socialgo.com/

In an attempt to update the interpretation of a Western Blot test results
I found this a while back with the most comprehensive accounting of what each band means that I have seen to date - and with supporting Pubmed articles that were available when this was written listed for each band.

www.reocities.com/HotSprings/Oasis/6455/western-blot.txt

New information may be available though, so please ask on the forum in another thread.

Note: Bands preceded with an asterisk are the 11 Western blot bands for
the ASTPHLD, CDC, FDA, NIH, CSTE, NCCLS 1994 conference recommendation
("CDC recommendation") for the serologic diagnosis of Lyme disease -
see 1995 CDC MMWR link below.

5-kDa
7.5-kDa
11-kDa
13-kDa surface protein - sensu stricto, afzelii
14-kDa internal flagellin fragment [specific for Bb]
15 kDa polypeptide [also for syphilis]
16-kDa
17-kDa Osp 17 [B. afzelii]
*18-kDa p18 flagellin fragment
19-kDa immunogenic integral membrane lipoproteins
cross-reactive with other spirochetes/bacteria
Characterization of antigenic determinants of Bb shared by other
bacteria.
http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=1372635&form=6&db=m&Dopt=b
19-kDa decorin-binding protein
20-kDa decorin-binding protein
20.5-kDa
20.7-kDa
*21-kDa OspC [specific for Bb]
22-kDa [specific for Bb or cross-reactive depending on what one reads]
immunogenic integral membrane lipoproteins
[cross-reactive with other spirochetes/bacteria]
Characterization of antigenic determinants of Bb shared by other
bacteria.
http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=1372635&form=6&db=m&Dopt=b
22-kDa OspC [specific for Bb]
22-25kDa OspC
23-kDa OspC
*24-kDa OspC
25-kDa OspC [specific for Bb]
26-kDa
27-kDa Osp, Hsp
(Europe burgdorferi strain B29, but not American strain B31)
*28-kDa OspD, Oms28 [specific for Bb]
29-kDa OspA?
30-32-kDa OspA
*30-kDa OspA substrate binding protein
31-kDa OspA [specific for Bb]
32-kDa OspA
33-kDa outer membrane
34-kDa OspB [specific for Bb]
34-36-kDa OspB
35-kDa OspB [specific for Bb]
35.5-kDa
36-37-kDa
37-kDa P37, FlaA gene product, [specific for Bb]
38.0-kDa FlaA
*39-kDa BmpA [specific for Bb]
40-kDa
*41-kDa FlaB
42-kDa
43-kDa
44-kDa
*45-kDa [appeared in IgM in control group in 1998 study done in Poland]
MEDLINE - 9972057 - "...whereas in control group only antibodies
against 45 kDa and 58 kDa were present."
http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=9972057&form=6&db=m&Dopt=b
[appears for HGE]
MEDLINE - 9620365 - "...confirmed the importance of the 42- to
45-kDa antigens as early, persistent, and specific markers of HGE
infection."
http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=9620365&form=6&db=m&Dopt=b
46-kDa
47-kDa P47 fibronectin-binding protein [specific for Bb]
48-kDa
49-kDa
50-kDa [specific for Bb]
51 kDa MgtE
52-kDa Fn-BA
54-kDa [other Borrelia]
55-kDa
56-kDa
57-kDa PBP
*58-kDa (not GroEL)
59-kDa [a genetically engineeried fragment of the 83-kDa protein]
60-kDa Hsp [all Borrelia]
62-kDa Hsp60
63.7-kDa
64-kDa (P64) [cross-reacts to human axonal proteins]
65-kDa
*66-kDa P66 Oms66 Hsp outer/integral membrane protein
67-kDa
68-kDa
70-kDa Hsp
71-kDa
72-kDa Hsp [cross-reactive with other spirochetes]
[cross-reactive with other spirochetes/bacteria]
Characterization of antigenic determinants of Bb shared by other
bacteria.
http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=1372635&form=6&db=m&Dopt=b
73-kDa
75-kDa
77-kDa a genetically engineered recombinant hybred
Use of a hybrid protein consisting of the variable region of the
Borrelia burgdorferi flagellin and part of the 83-kDa protein as
antigen for serodiagnosis of Lyme disease.
http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=8027303&form=6&db=m&Dopt=b
78-kDa OspA
79.8-kDa
80-kDa
83-kDa p83 high molecular mass protein [specific for Bb]
84-kDa [B. garinii]
88-kDa
92-kDa
*93-kDa an immunodominant protoplasmic cylinder antigen, associated with
the flagellum [specific for Bb]
94-kDa PBP [specific for Bb]
95-kDa
97-kDa associated with flagella
100-kDa P100
110-kDa
200-kDa a fusion protein, a hybrid protein


Bands specific for Borrelia burgdorferi:

14-kDa ?
21-kDa
22-kDa OspC
25-kDa OspC
28-kDa OspD
31-kDa OspA
34-kDa OspB
35-kDa
37-kDa
39-kDa
47-kDa
50-kDa
83-kDa
93-kDa
94-kDa

*Flagella - Flagella are long, thread-like appendages which provide some live single cells with the ability to move, motility.
Read more: Flagella - Bacteria, Flagellar, Cell, Cells, Single, and Movement http://science.jrank.org/pages/2725/Flagella.html#ixzz1RSc2znHd