NOT getting better!

Well, three months into treatment, and I'm worse than ever. This latest reaction to my new antibiotics made me feel worse than I had every before treatment, and it's not going away! It's been over a month, and I'm still getting worse!

I was hoping my new antibiotics would help clear some of my brain fog, but instead, I'm having more and more trouble! I cannot remember how to spell the simplest of words most of the time, I mix-up and mis-use my words, and most of the time when I talk it makes no sense! (see- I used to be a grammar-fanatic, and right now, I can't remember if that last "no" should be a "know" or a "no"....)

I have been in much worse pain nearly 24/7 for a month now, and my fatigue has been crazy. I can't exercise at all now- I don't have the energy, and my heart starts to go like crazy and I get light-headed if I do more than a couple minutes of walking! Besides, half the time I'm in so much pain I don't even want to walk.

I don't need to be getting better yet- I can understand it will take a long time- but boy would it be nice to be back to where I was!

And my Dr is in a different country, and we only have 15 minutes phone appointments every month, so I can't talk to him every-time something new and scary happens- especially since my family couldn't afford extra appointments.

I'm just so tired of all this! It's frustrating, annoying, and scary as heck! I hate not knowing what will happen next, and how I will feel each day....

Just needed to rant...

Nicky

Nicky,
I feel for you. Especially being so far away from your doctor. I think most of us, even ones like me who are only an hour away from our docs, still go through things each month where we feel uncomfortable calling them. Do we call, go to the ER,or wait a few hours and hope it passes. There are so many ups and downs and scary symptoms. And sometimes when you feel fine the day before a horrible day it's hard to imagine things can change that fast. If you are going through a scary herx or something I would think a call to your doctor would be necessary. And I hope he wouldn't charge you for a phone consult. I have had to this a couple times and my doc would call me back to see what was up. I think they want to know because it could be you reacting poorly to the antibiotic and be nothing to do with Lyme. This info will help him in your treatment plan. I used to feel bad calling until I realized this and came to grips that this is what I am paying for.

Even though you are far away from him you are still his patient. Remember that okay? Docs that put their career on the line to help us really want to. It is their passion and without him knowing what a rough month you are having does neither of you any good.

And the exercise thing...same thing for me. It kills me. I know it is something we need to do to recover but boy it knocks me out! Actually I am going to bring this up to my doc when I see him in a few weeks. Let you know if he has anything interesting to say on the subject.

One more thing, I didn't see any improvements until about 5 months into treatment. So hang in there. I had a few rough months that I felt awful for weeks. It's hard to think all your hard work will pay off, but when you notice yourself feeling even a bit better it will be worth it.

Hang in there and call your doc. I think you will feel better with hi/her take on how you're feeling. My doc always makes me feel better.

Rose and Nicky D, are you guys detoxing and having good bowel movements? the more you go the more that "die off" and the toxins released can exit your body quicker. do whatever you feel you need to have a BM at least 2 times a day I think it really helps to push lots of water too. I know these seem like simple things and maybe you've already got this covered, heehee, but it really makes a difference for me. Research toxin binders- Chlorella is an excellent one - see if it is okay to take with your meds, it really should be as it is a "food", it is a green super food that binds to toxins- molybednum is supposed to be a toxin binder as well according to Dr. J. Chlorella really helps me with energy levels- plus since its an algae it helps with constipation- as does any green foods. I know a lot of people use flax too. Anyway even if you do neither of these things at the very least do something to help detox- like the epsom salt baths or sauna if you have one. I don't have a sauna yet but i sure can tell you green super foods really do help! As do green smoothies- look at deejavu's post under the newbie section and you will see both smoothies and super foods are listed- i think she put "green vibrance" as her choice of superfood- there are many brands though. You can read up too on the reasons why green smoothies are beneficial to every disease- blending greens up in your blender helps release the chlorophyll which does SO many healing things for your body. Even if you just type in "benefits of chlorophyll" on the net you will see what i mean. You can also buy chlorophyll as a supplement at any vitamin store- although getting it straight from greens is probably always a better choice. Anyway thats just my little 2 cents- i'm still so new to this myself but reading and research really is helping.  Don't stop reading and when you find something good to share PLEASE, please share it!

I still have brain fog pretty bad but it is nothing like it was the first few months of treatment. I even forgot my own son's name once! I know how you feel about words, what means what. It will get better. I know the die off just overloads your body with toxins so what everyone suggested is excellent advice. I am going to try it myself - if I can remember!!! I also would encourage you to call your doctor because he will either assure you everything is ok or he will decide to alter your treatment. Hope you feel better soon.

Hi guys,

Thanks! I'm already on thyroid medication, and that did help me a lot. I take a bunch of pills and supplements that are supposed to help with detoxing (anti-oxidants, stuff like that), and I do some things a nautropath recommended as well (dry rubbing etc.). But my LLMD thinks this may be due to my liver just being overloaded by crap, and not able to detox everything, so he wants me to try IV glutathione, twice a week, for 2 weeks. (Apparently whey powder is another way or getting this? Maybe? My brain was a little too fuzzy to fully understand everything I read).

And I should start taking Vitamin D. I was taking it, way back when, but then I got "distracted" by Lyme disease, and forgot about it. So I'll try to dig some out of a cupboard today. I don't have a blender, but there is a place near me that does all-natural, no sugar, smoothies, and one of them is some sort of green veggie smoothie. I've never tried it, because I thought it sounded kind of icky, but maybe I will try now!

Nicky