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Posted 12/23/2009 3:17 AM (GMT 0)
Hi Everyone,

I am a new member and would like to say hello:-). I was diagnosed with lyme & babesia almost 2 years ago. It has been an interesting journey to say the least. Just had a doctors appointment last week who told me that I had to be on Mepron and Zithromax for as long as 6 to 9 months??? I had finished a 10 week course with Cipron & Bioxin and now she is switching. The problem I am having is the Mepron & Zithromas make me feel worse. She says I am herxing and it will eventually get better. I just have to be patient since it is a long process. She says that the medicine is working since I am getting that reaction. It just makes me want to stop the treatment all together...... Has anyone out there felt this way?? Anyway just curious of anyone else has experienced the feeling worse before feeling better and if so, how long before you saw an improvement. Any feedback would be greatly appreciated:-)

 

Posted 12/23/2009 6:26 AM (GMT 0)
Hi, and welcome to the Lyme forum. I am taking mepron and zithromax (and artemisinin) for babesia, too, and often feel disappointed that I am not having any herx reaction to it because maybe that means it isn't working. I don't know if you must have a bad reaction to have successful treatment, but as I understand it, herxing is a good sign unless it becomes unbearable and then maybe you will have to do something about it. Were you taking the Cipro and Bioxin for Lyme or babesia? I'm also curious, what treatment were you on before 11 weeks ago? I hope you will feel better soon. If you read the first post "for new members" on this forum, there is a lot of good information. I'm thinking that maybe some of the detoxing would help you.

Rose
Posted 12/23/2009 6:21 PM (GMT 0)
Hi Victorious,
It is quite normal to feel worse before it is better, and it is a good sign. I would say that my first herx was the worst, but mostly that was because I didn't realize that it wasn't a sprint, it is a long, steady process that will get you better. Stick with it, you will get better!

Everyone is different; how long it takes for you to feel better on this protocol depends on a lot of things. Detoxing, getting enough rest, eating well, staying ahead of the yeast, keeping a positive outlook will all help you feel and get better. Keep in mind that the colds and flus that hit at this time of year can make all your symptoms worse (hack, hack, sniffle, wheeze).

I've been working on getting better for 18months. There were times when I wanted to quit but that is not an option. Living untreated is just not a life. I am aiming on getting back to full health and activity and leaving all this behind.

Good luck with your fight

Grace

Post Edited (achievinggrace) : 12/23/2009 12:05:46 PM (GMT-7)

Posted 12/23/2009 11:46 PM (GMT 0)

Willowrose said...
Hi, and welcome to the Lyme forum. I am taking mepron and zithromax (and artemisinin) for babesia, too, and often feel disappointed that I am not having any herx reaction to it because maybe that means it isn't working. I don't know if you must have a bad reaction to have successful treatment, but as I understand it, herxing is a good sign unless it becomes unbearable and then maybe you will have to do something about it. Were you taking the Cipro and Bioxin for Lyme or babesia? I'm also curious, what treatment were you on before 11 weeks ago? I hope you will feel better soon. If you read the first post "for new members" on this forum, there is a lot of good information. I'm thinking that maybe some of the detoxing would help you.

Rose

Hello,

 

Thanks for getting back to me. Hope you get better as well. Are you starting to feel better though?

 Prior to the 11 weeks I was not on anything because it took me a long time to find a Dr to treat me properly. The first DR that found out what I had didn't give me enough medicine to kill the Lyme disease and she didn't test me for any coinfections so I was never treated for babesia and the treatment was not successful. So needless to say many of the Dr's I went to kept saying I was fine yet I felt terrible. So it wasn't until September of this year that I started the correct treatment. Finally found a Dr that didn't think I was crazy and began treating me. I actually am feeling better. Except for recently with the change in meds. Which the Dr says is treating the babesia and then we will work on the Lyme.

Posted 12/23/2009 11:51 PM (GMT 0)

achievinggrace said...
Hi Victorious,
It is quite normal to feel worse before it is better, and it is a good sign. I would say that my first herx was the worst, but mostly that was because I didn't realize that it wasn't a sprint, it is a long, steady process that will get you better. Stick with it, you will get better!

Everyone is different; how long it takes for you to feel better on this protocol depends on a lot of things. Detoxing, getting enough rest, eating well, staying ahead of the yeast, keeping a positive outlook will all help you feel and get better. Keep in mind that the colds and flus that hit at this time of year can make all your symptoms worse (hack, hack, sniffle, wheeze).

I've been working on getting better for 18months. There were times when I wanted to quit but that is not an option. Living untreated is just not a life. I am aiming on getting back to full health and activity and leaving all this behind.

Good luck with your fight

Grace

Hello,

That's good news!! It seems like these sickness has really taken a toll. But as you said it is a slow and steady process and I too am believing in getting better and being fully recovered by next year.

I have noticed that nutrition plays a big roll on how I feel. So I've really changed my eating habits. Plus for some reason I've developed many food allergies. And I try to be careful of germs etc....

Hope you fully recover and continue to move forward!!! Thanks for getting back to me.

Take Care

Posted 12/24/2009 6:57 AM (GMT 0)
I don't understand why, but developing allergies (food or otherwise) seems to go along with TBIs. I've got a lot of food allergies, too, and that is fairly new for me. I'm glad you have now found a good doctor who will help you get past this. That seems to be a challenge with Lyme. I'm with you, no reason not to believe this will all be in the past someday. What a happy day that will be.

Rose
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