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Should I do a clinical study for the CDC?

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Lyme Disease
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Posted 3/18/2010 9:46 PM (GMT 0)
I am a member of a CFS and Fibro. support group here in town. (I joined before I knew I had LD). I recieved an offer by mail to do a clinical study at a local clinic because I have CFS and Fibro. "symptoms". I talked to a DR. involved and told her that I have been diagnosed and am treating LD. She said that I would still qualify for the study and that I would not have to give any of my doctors info. It will be alot of paperwork, bloodwork, and a full day at a local clinic..... At the end of the day I will get a check for $450.00. Should I do it? I could sure use the money....any reasons why I shoulden't do it??rolleyes

Thanks GG

Posted 3/18/2010 10:47 PM (GMT 0)
Would you have to take steroids? Will they tell you what all medicines they'll give you prior to the testing? Will they give you the results of their tests when they get them back?

Gary
Posted 3/19/2010 12:02 AM (GMT 0)
I will not get any treatment by the doctors there. They only want to do bloodwork, urinalysis, and a mouth swab (DNA). They will give me the results from all the tests. They will not treat me for anything, only testing..... Also everything is private I will basically be a number...
Posted 3/19/2010 1:44 AM (GMT 0)
Where do I sign up? I could use the $450.00!!! smilewinkgrin

Seriously, if you have the time to do it I don't see what the harm is as long as they're not treating you or giving you any meds. It's a good chunk of money to earn for one day! I would just want to make sure that everything would be done in strict confidence and nothing could be shared with anyone without your permission. Read the fine print!

One other thought, I suggest you do a google search on them just to make sure there's not any complaints or any negative information against them out there. If there's any negative information about this clinic it will surely show up on a google search.

Gary
Posted 3/19/2010 9:57 AM (GMT 0)
wow, that does sound kool to actually get paid for getting tested!!!

I wonder are they even looking for the lyme connection to the fibro and CFS?

are they looking for heavy metals or thick blood or any of this other viral testing??

do they tell you what they are looking for? or will there be follow ups?

sound kool at least they are LOOKING for any clues at this point. good luck
Posted 3/19/2010 2:15 PM (GMT 0)
Don't know what your usual earning power is, but that does sound like an easy $450. And it might further the general understanding of these conditions.
Posted 3/20/2010 2:25 AM (GMT 0)
I recieved all the info today by fed-x. The paperwork took 2 hrs., not so bad...
I hope that I can make a difference in this study, I plan on talking about LD as much as I can!!!
I will see an MD and get a mental evaluation, I will also answer alot of questions on a computer, they will feed me breakfast and lunch.
It will be alot of tests that they will run.....I will get back on that one...... blood, urine, DNA etc.....
They said to plan on being there 6-9 hrs.
I know it will be a very long day but i'm just thinking of it as a job. I will actually get a check for a change!! It's been almost 3 yrs. since i've worked, heck yeah I could use it!!!!
Their will not be a follow up that I know of. I will get paid that day and the test results will be mailed to me.
Thanks everyone and I will keep you posted on my progress.
GG
Posted 3/20/2010 2:43 AM (GMT 0)
georgiagirl, I wish you the best and very much look forward to hearing back from you regarding your experience with the clinical study.

Be sure and give us an update when you get a chance! Hope they feed you well! smilewinkgrin

Gary
Posted 3/21/2010 12:56 AM (GMT 0)
GWB, I will be sure to let everyone know how it goes. I can't wait to se what the doc. says when I tell him that I have LD. Let me guess..... "We don't have lyme disease here in GA .....that can't be true". That's just what i'm expecting him/her to say since I have to travel 500 miles to my LLMD!!!
It should be interesting!!!
Posted 3/21/2010 4:01 AM (GMT 0)
Hey ya know what , Georgia, this is the most exciting news I have heard yet. At least they are really making a concentrated effort to figure stuff out!!!!
This is huge!!!

let us know how it goes. what kind of doctors are on the scene? get the whole scoop.

If it is really legitamate and they have their eyes and minds open I would even pay them to take my information just
to help them get it right already.
Posted 4/15/2010 1:44 AM (GMT 0)
go girl go, money is money. u will be tired but if u don't work u can sleep a few days. ha u can tell i am not in a high socio/economic class/
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