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Miscarriage and lyme - can anyone relate?

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Posted 5/14/2010 2:42 PM (GMT 0)
I had a miscarriage on Monday and I am wondering if having lyme has anything to do with how bad I feel right now. It was a very stressful time and stressful events usually bring out my symptoms more. I just don't know what a normal miscarriage recovery feels like as it is my first time going through this. Mostly I am just exhausted, have massive migraines and overall just don't feel like myself.

I know the lyme didn't cause my miscarriage as I  have been living with it off and on now for 15 years and I have a beautiful healthy 2 year old daughter. I just wonder if it is playing a role in my not recovering very quickly.

I would love to hear anyone's stories and how long it took you to get back on track. Thanks.

Posted 5/16/2010 5:25 AM (GMT 0)

Hi Jeminij,

I am so sorry for your loss.  I wish you all the best for a peaceful and swift recovery.

I had three miscarriages before I finally had my daughter.   I always had a difficult recovery, but at the time, I did not know I had lyme.  I am sure this made it harder for me to recover.  Just as you said, any stressor can make us feel worse.  It has been many years now and it is hard for me to remember how long it took me to feel better but I would guess it was at least two weeks for sure, probably longer.

I do believe that lyme/coinfections caused my miscarriages and that they are responsible for the complications of my last pregnancy and the resulting health issues with my daughter.  I believe she was infected in utero and it has led to all her health issues since then.  There are many reasons I think this but I won't get into that here.

Again,  I am sorry for your loss and wish you all the best.  Blessings to you,

bablymers mom

Posted 5/16/2010 4:06 PM (GMT 0)
Hi Jeminij,
I too am so very sorry for your loss. I am also sending healing thoughts your way.

I had a miscarriage years (& years!) ago, with no explanation as to why it happened, but believe it was connected to my TBI's. Although I have had two successful pregnancies, my experiences are very similar to bablymers mom.

I believe probably the best thing you could do would be to give yourself PLENTY of time to recover & to be kind to yourself - you just went through a lot.

I wish you the best,
Trav
Posted 5/16/2010 4:53 PM (GMT 0)
Thank you.

I woke up so sick today and not sure if it from the lyme or not, but I believe it is. Almost like a herx now probably from all the stress of this past week. I just never expected any of this and it does tell me that maybe my health just wasn't where it needed to be right now and that I need to take time to get healthier.

I had lyme when I was pregnant with my daughter (now 2) and thankfully she was perfectly healthy. I do not know how I got through that pregnancy as I was horribly sick, but as long as she was ok I knew I would be ok too.

This miscarriage just seems to have kicked my butt and I don't know how long it is going to take to recover from this. I thought I would be feeling better by now, but I am only feeling so much worse and most ob/gyn's don't understand this because my situation is not the norm. Even hard to talk to others who have had miscarriages because they don't understand how the stress can make us sicker. I just am so upset that I am going through this and wish now I never got pregnant because at least I would be feeling ok right now enjoying the beautiful day with my daughter instead of laying in bed wondering when I will feel better again.

 

Posted 5/16/2010 5:09 PM (GMT 0)
Remember to be kind to yourself!! Although miscarriages are treated as no big deal essentially, they are a REALLY big deal!! IMHO, you need to nurse yourself back onto stable ground, so don't beat yourself up for feeling bad. Spend whatever time you can with your daughter, but you have been through a lot & resting is one of the best things you can do for yourself right now. Your body needs time to mend.

My kids are all grown up now, but whenever I feel really bad, even spending time on the phone with my daughter is incredibly soothing for me.
Posted 5/16/2010 5:42 PM (GMT 0)
Thank you. I have to keep telling myself that it's ok and that I will feel better eventually and that I have all spring/summer to enjoy time outside with my daughter. Just hope it gets better sooner than later. Not sure I can deal with this much longer.
Posted 5/16/2010 5:56 PM (GMT 0)
Hang in there Jeminij!!
You can make it!!! Resting right now is most likely one of the best things you can do for yourself! Things will get better, you will heal - we do have to be determined, and it takes more work for those of us who deal with TBI's, but we are a determined bunch!!! smilewinkgrin Heck!!! I would have never been brave enough to try to get pregnant once I knew I was dealing with these TBI's!!!!!!
Posted 5/16/2010 7:05 PM (GMT 0)
I know. My pregnancy before was a surprise. I wanted to have kids, but never wanted to take the risk of passing lyme on and when it was a surprise I just did the best I could. Now I am 35 in a couple weeks and really want another baby. I must be crazy. It's hard enough with one toddler and having my sick days, but the baby fever is still there, however, after this experience and feeling as bad as I do today, I am not sure I want to try again anytime soon. I think my body needs a good bit of time to recover from this and I am praying that I am just sick and start to feel better and that nothing else is going on because boy I am not doing well today.
Posted 5/16/2010 8:34 PM (GMT 0)
I was just young & oblivious when I got pregnant!!! I had no clue I had tick-borne illnesses, which was a good thing other wise I would have never had my two kids. I understand your desire to have another baby!! Although for me, it was too much stress for my body. I was counseled to not get pregnant again, as they believed it would turn into a life threatening situation.

This darned disease affects every part of our being for some of us!!
I do hope you can find some way to just through the day on days like this. Sometimes that's all we can do - just get through the day.
Hang on!! Tomorrows' coming!!! :) Hopefully you will feel a little better tomorrow!
Posted 5/16/2010 11:36 PM (GMT 0)
I hope so too. I was also advised to wait at least 2 years before I even thought of getting pregnant because I had such a sick pregnancy and so I did. Now I'm ready for another baby, but it is very stressful and I think I forgot just how stressful those 9 months of worry were. I only plan to have 2 kids so after the next one, I am officially done. I did beat lyme once so I know I can do it again, but this time I am going to go on the meds just to make sure when I do get pregnant again I am one step ahead and hopefully can avoid another miscarriage and this whole aftermath of hell. Lyme for me is very sensitive to my hormones so I believe that is why I am having such a hard time right now and once they start to even out, my health should too.

I do hate that everything has to be so difficult. Just once it would be nice if things were easy in life. I suppose most people feel that way, but geez.
Posted 5/17/2010 12:53 AM (GMT 0)
I do hate that everything has to be so difficult. Just once it would be nice if things were easy in life. I suppose most people feel that way, but geez.

My mother used to tell me that when things were difficult in my life it was building character. "What will I do with all this character," I asked. The answer comes....

I'm so sorry you didn't get to keep this baby. I hope you will have another someday. If you cannot have another, there are many other fabulous things to devote you time and love to.

In the meantime you have the work of getting better. Miscarriages are, like Traveler expressed, more than what they make out they are. Here you've gone through this tremendous physical and hormonal change, with nothing to show for it. You need to physically mend and emotionally reconstruct. It's a big let down with a hormonal shot on the side. Try to ride it out. Take care of yourself, let other people take care of you. You are 35, that is not old to have a baby, goodness knows, but it is old enough that your bounce back is just a little slower.

You do not have to fall into the pit of being sick with Lyme Disease again. Rest, do all the things you know to help your body and love your little girl
Posted 5/17/2010 1:13 AM (GMT 0)
poor thing i an soooooo sorry u lost your child, please do let yourself grieve , I was very sick when i got pregnant i called doc on weekend (not like me) i said something is wrong, he said he was going to call me and wanted another ultrasound Mon this was Sat I hemoraged at 19 weeks in our living room on sunday nighg,.  in and out of hospital for rest of pregnancy. total bed rest . I already knew she was a little girl. I had a beautiful litttle boy who mommy couldn't hold. It was a nightmare it was as it turned out complete placenta privea, all bets were she wouldnt;t make it  me either if blood wasn't stopped at birth,  I cried all of the time. she was a viable baby at 19 weeks and i had named her.  I did not deserve this one bit but thru the grace of God my girl was born 6 weeks early ugly as a starving squirrel screameds 24/7 for 2 years and three and a half months.  we both were diagnosed with lyme some time later.  I still worry about her as it affected her heart and she still gets chest pains  I don't deserve her I am SOOOOOOOOO sorry for you. we were both treated for lyme she wasn't an easy fix but one day at a time. Doctor tied mi tubes with this pregnancy willingly he told me later (even tho I knew) he didn't think we were going to have a happy ending. Please take care of yourself u are in mi prayers if this makes u offended about the prayers i am sorry but

what can i say, i will anyway > 

Post Edited (rosesinjanuary) : 5/16/2010 7:28:28 PM (GMT-6)

Posted 5/17/2010 12:10 PM (GMT 0)
Thank you. I will take all I can right now as I am feeling even worse today. Not sure if it is all lyme related or not, but just feeling pretty sick and having a hard time getting through this and wishing now that it never even happened. Those few moments of joy aren't worth the recovery from this. I may actually go back to the hospital today to see if anything else is going on because I don't recall ever feeling this sick before (although I am sure I have plenty of times, but just don't remember). Hard to know what is what at this point, but I do suspect a flare of up lyme due to the hormones and stress. I usually wait it out and end up feeling better on my own, but that doesn't seem to be happenening this time around. Staying in bed another day. Thankful to my mother who is babysitting today as my fiance just started a new job today after being out of work for a few months. The timing couldn't be worse, but life must go on and hoping this weeks starts to get a little better so I can get back on my feet again. I always worry that any bad episode can send me back into a relapse, but fighting not to let that happen.
Posted 5/17/2010 3:37 PM (GMT 0)
It might be a wise thing, if you are feeling that bad, to go in & get checked. Although if you believe that it may be due to LD, maybe you should try to get hold of your LLMD (if you have one), and find out what they would recommend?

This is where I always get confused - do I need to see a regular doc? or a LLMD???? confused ????

Being somewhat like you, evidently, I usually wait things out, but in this instance, you could be having complications so maybe you should be seen by whoever can see you first??? I believe it is time to err on the side of caution, especially if you are continuing to feel worse each day.

Whatever you decide to do, please keep all of us posted.
My heart goes out to you~
Trav
Posted 5/18/2010 1:23 AM (GMT 0)
I have contacted my llmd and waiting a response, but I do have a follow up with my ob/gyn to get checked out. I wonder now if I picked up something at the hospital because I am feeling sick now. Who knows anymore.
Posted 5/18/2010 11:19 AM (GMT 0)
Glad to hear that you are going in to have things checked out, Jeminij! Unfortunately, you are right about the possibility of picking something up at the hospital - it does have to be considered.

When you are up to it, please let us all know how you are doing. :)

I wish you health & peace~
Trav
Posted 5/19/2010 2:46 PM (GMT 0)
still haven't heard back from my lyme doc. getting worse by the minute. Trying to avoid a trip to the ER because I hate going to the hospital, but I am going downhill fast from the miscarriage and I don't know why. I think it is my lyme coming out as a result of this, but can't remember the last time I felt this bad for this long even with lyme, it usually passes and I start to feel better, but this is a little scary.

If I can get up the courage to go back to the ER I will keep you posted. I hate to bring my little girl there, but getting nervous that something is not right.

If it is lyme, I know they can't do anything for me and I will just end up even more stressed out from going and being there all day and likely end up feeling even worse than I do. If it's not the lyme and a result from the miscarriage, then I am afraid to find out something else is wrong with me.

I really wish this never happened. I wish I would have known this was an option and I might not have tried to hard to get pregnant.

Posted 5/19/2010 4:14 PM (GMT 0)
Jeminij-
Don't be so hard on yourself! First of all, I don't believe you could have known 'this' (what ever is truly going on) would happen. This might not be related to LD at all, could just be complications from the miscarriage.

When I miscarried (way back when), I had no idea I had been infected with TBI's, and although I do believe that the miscarriage happened because of my being infected, what happened afterward I don't believe had anything to do with Lyme. (Did that make any sense?) I did end up with an infection & was scolded for not coming in sooner, as that kind of a situation can turn very serious in a hurry.

It might be as simple as having picked up an infection from the hospital - even though that is not in any way a minor thing. Maybe you should just get yourself in to the e-room, as if you do have an infection, you shouldn't wait around. After what you have been though, an infection could get serious in a hurry.

If it ends up being the LD, then at least you will know that it's not something that is immediately life-threatening. You could rest & recover without worrying that it could be a complication from the miscarriage, like an infection.

And as far as getting pregnant again, relax & recover - that needs to be a decision made while you are feeling a whole lot better!

Please keep us posted -
Trav
Posted 5/19/2010 6:05 PM (GMT 0)
Thanks. I haven't gone yet today. I might go in when my fiance gets home from work so I can have someone watch my daughter as I don't want to bring her to the hospital. You never know how long you might end up being there, but it will be good to rule out a possible infection. I just hate having to go through this all over again, but it needs to be done and like you said, if they don't find anything, then at least I'll know and can try to recover from the changes and whatever the LD is causing.

Thanks for listening.
Posted 5/19/2010 6:36 PM (GMT 0)
Your welcome, Jeminij!! Listening is about the only thing I can still do with any regularity!!!
I do understand about not wanting to take a 2 yr old to the e-room when they are not the one ill. It's hard enough on an adult!

Since I can't get to a doc that even understands TBI's, I hesitate going in to my doc unless I have already figured out what I'm having issues with. Fortunately, my doc trusts my judgment whenever I feel I have been re-infected & will put me on a month of doxy pretty quick. Other than that, though, he really is of little use when it comes to anything else having to do with TBI's.

I do hope that you will make it to the hospital today & find out whether or not you are dealing with something like an infection.
Please keep us all informed, once you recover from the trip to the hospital.

Sending healing thoughts,
Trav
Posted 5/20/2010 12:40 PM (GMT 0)
Well it is def. a flare of up my lyme symptoms. I can't even remember feeling this bad in a long time (although I know I have). I thought I was having a heart attack last night with the heart palpatations I was having. Today another massive migraine and overall flu like feeling and just not well. I have no idea how long this is going to last and it is the last thing I expected to have happen so it is a little hard to wrap my brain around. I should be having morning sickness right now instead I am in bed dealing with a major flare up that has knocked me out.

I am going back on amoxicillin for now and see if that helps any. I haven't been on lyme meds for almost 2 years now since my last pregnancy so it really sucks to even think about going back on something, but if I have any future plans of trying for another baby, I need to get my body back where it was a month ago. I just can't beleive I have to deal with this on top of everything else.

I just don't know how much more I can handle right now. When it rains it pours I guess. Hard to change your mindset from pregnant and happy to sick and miserable.
Posted 5/20/2010 2:54 PM (GMT 0)
I am soooooooo sorry Jeminij.
Focus on the positive. You now know what it is you are dealing with, been there before- so you know, at least somewhat, what is going on & what to do.

You can make it through this as well. I'm really sorry that after 2 years, you have to go back onto Lyme meds - but you can make it!!! It has to be quite a shock to the brain like you said, but we Lymies are a tough bunch!!!

I would suggest that you make sure to detox, as I believe that this will help you feel better, faster.
And sleep. Your body has been through quite an ordeal, remember, and sleep & good rest is essential for the body to recover.

Healing thoughts, and wishes for peace are being sent to you,
Trav
Posted 5/20/2010 4:16 PM (GMT 0)
I am still in bed and feel even worse today. I can't believe this is happening. I have the worst migraine of my life now and it feels like one of the worst herx's of my life. Oh my God! I am praying that is passes soon so I can function like a normal person again, but right now I feel like I have been knocked down so far I don't know how to get back up again. Just when I think I might start to feel better, boom, I end up feeling so much worse than I could even imagine. This really has turned into such a nightmare and I guess I am a lot sicker than I ever thought I was or I don't know how else I could have a flare up this bad from something like a miscarriage. I felt so good after having my daughter that I assumed I would have the same experience this time around, but boy was I wrong.

May the next days bring some much needed relief.
Posted 5/20/2010 10:25 PM (GMT 0)
Have you heard anything from your LLMD? If not, I would suggest that you get a hold of him/her and maybe even get in to see him/her as soon as possible???? At least get the doc to call you back with some suggestions???

I'm quite sure that this has been incredibly stressful & hard on your body, so be kind to it, detox, drink plenty of water, eat as healthy as you can - and rest!!!!!

I think there is a whole bunch of us Lymies that think we are healthier & more stable than we really are.

I agree; may the next days bring some much needed relief for you!!!

Sending thoughts of peace, healing, and comfort to you
Trav
Posted 5/20/2010 10:37 PM (GMT 0)
Hi Jeminij,

I'm truly sorry you lost this baby..  I was never pregnant before so I don't know what it's like except from other women..  

As others said, be kind to yourself, you are still very young and can have more children.  My bestest friend had her baby in her late 40's and that baby is now a Mom of 2 kids.. 

I think any trauma to our bodies will make us sick including stress.. 

Relax, please don't be so hard on yourself, it's not your fault..  some things are just meant to be.. 

Know that I am thinking of you and everything you are feeling is normal and will pass.. You got better before and you will get better again.

Hugs,

Denise

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