On IV Rocephin and lost sense of taste !

Has anyone out there lost your sense of taste from meds you've been on or on?

I'm on IV Rocephin and have completely lost the ability to taste anything. I have this constant salty/bicarb taste in my mouth. I can taste salty things if it's extremely salty. And sweet things are very nasty weird tasting.

This is called dysguesia and its very common if you've been on chemotherapy and apparently <1% of people on Rocephin have the side affect. woohoo....I'm in the lucky 1% !

The up-side is its helping me lose lbs cause there's no point in eating anything that tastes good cause I can't taste it. When you lose your sense of taste, you really realize how much you eat just for the enjoyment of it. But it really trips out my brain, cause I smell the food, then the corresponding taste that the brains assuming comes next doesn't happen. It's weird!! It's like sensory brain betrayal.

Has it happened to you and how long did it last?

Thanks for your input and prayers for a cure in 2011,
Lisa

I do methyl b12 injections daily, but I probably forget every other day.

thanks for your 2 cents!

Now I need to see my LLMD today for possible gall bladder problems from the Rocephin. Been having right upper quadrant pain, but no pattern related to meals.

Lisa

I think zinc deficiency can also cause loss of sense of taste...

I'm also in the 1%!!

10 minutes before receiving the Rocephin IV, a nurse let me have some apple juice and the juice tasted absolutely fine.

But not even 30 minutes after receiving the Rocephin IV, I tried eating some food and that's when I noticed it tasted really weird. I tried drinking water, but even the water was a strange salty taste. I tried chocolate, same thing! That's when I realized my "sweet" tastebuds were super dampened. "Sweet" is not completely gone, just so light I can barely taste it.

That was Wednesday. It's Sunday now and this still hasn't gone away... even though I've stopped receiving Rocephin.


@LupnerRN: If you come up with a solution, or you're better after a period of time, please let me know!! I really hope this is temporary and not permanent!!

Hi All,

Well the IV Rocephin was for the Lyme. My LLMD thinks the Lyme's dominate over the bart right now.

Medication history: 7/2008 - 12/2009 mostly on oral biaxin and hydroxychloroquine combo's, used Rifampin for 6 months, while doing herbal antimicrobials at the same time (mostly artemesia and nutramedix brands). Also treated the parasites with many different meds; Alinia was one. My GI tract was getting wacked by the end of 2009 and made the decision to stop pharmaceutical antibiotics and just go the herbal route. Tried many different combo's of herbals for about 7 months and plateaued. Then neuro symptoms started coming back. This scared me, got desparate then discussed going the IV route with LLMD. She wanted me to try Bicillin injections but I'm allergic to it. So we went with IV.



The Rocephin was working really well on the Lyme, but it started killing off my gallbladder. Had several episodes of severe pain. I'm on Actigall also which is supposed to help the gallbladder from this. Rocephin causes a sludge like buildup in the gallbladder that creates a "stone like" problem.

Watermist, welcome to this forum! Sorry you have to be here though. It took just over 3 weeks for my taste sensations to go back to normal again. Now I'm eating too much crap!!! Trying to make up for lost time I guess??

O.K. I've got to tell ya the BIG joke about being on the IV Rocephin. My insurance was billed over $4000 a WEEK just for this one med. My LLMD has a pharmacy that she's sent cash payers to that only charged $450 for a whole months worth of Rocephin. Is this totally ridiculous or what!!!!!

bucci, I'm definitely better than I was in mid 2008. But I'm still not able to work. Fatigued with no endurance and get easily mentally frustrated/overwhelmed. I consider myself maybe 60% normal. If I could get another 20% back I'd be happy with that and could start working at least part time. I'm hoping.

oh the virus': took Lomatruim for Parvo, herbal CMV remedy for CMV. And have an herbal remedy for EBV that I haven't done yet. Also did BioSet treatments for all of these. (electrodermal treatment - use of Chinese meridians)

Let me know if I didn't answer a question or two.
blessings of healing to us all this year!!
Lisa

I'm posting again to tell you all that FINALLY my sense of taste returned. On day 24 of taking Lamisil, I noticed my food tasted off. On Day 26, I had ZERO sense of taste and stopped taking the drug immediately.
After being off the drug for a month, I started tasting sour/tart. On about the 33rd day, I started (slowly) regaining the other tastes but it took until about day 40 to regain my long awaited sense of sweet. It's not even junk food that I missed but the sweet taste of a piece of fruit.

It's now day 42 and I'm not 100% but close and I'm SO GRATEFUL to have my sense of taste back!