Posted 5/19/2011 3:51 AM (GMT 0)
Hello, I am new to Healing well :) I will try to make this as short as possable. I was diagnosed in Aug of 2001 with MS , early 20's , and at that time didnt know much about Lyme. Problem is about 2 years prior I had a Rash they said was Pityriasis Risea (Never utched or spread all over like they said it would) . I also had headaches, flu, sore throats, weird/freaky dreams, extreme sensitivity to light, and etc. When I was diagnosed I began to question because it started in feb 01 with a near fainting episode, (2 rounds of antibiotics for what they 1st thought was inner ear infection) (because I often get pain in the cartilage of my ears). Then I got Vertago which made them di an immidiate MRI and was called two days later by my physician saying he thought I had MS. This is where the major questioning started - 3 MRI's later with Nurologist and whoever reads the MRIs saying that the amount of tiny white matter lesions and 2 larger ones was not normal for a person of my age for MS and my 1st 3 attacks were also said to be not likely of MS because they were Bells Palsy, an episode that was more likely to be West Nile Virus, and last one was pain in "both"arms and "both legs ( which the last one has happend 4 or 5 times now). I also have had other rashes, one they said was Celulitis and the other is reaccuring (abdomen and mid chest). I have had a total of 5 different Nurologist now and all say the same thing "you should have some issues but you dont which is weird" (because of MRI's. ) I have no permanent such as walking or anything that way, I have no major permanent damage from my bought of Optic Neuritis (about 2 years ago) . Instead I have tingling on and off in my right hand, pain on and off in my neck,back and ribs, shoulder and hip joints cracking and popping out of socket,major night sweats (which they have written on my record that I deny) I have had these on and off for years, my sleap times are all messed up and have been for a long time now, boughts of major frustration at certain times of day, I had panic attacks out of no where about 2 years ago also followed by a some what nerviouse breakdown, and the "not likely MS" list goes on:...... and now I am having slight trouble with short term memory (names, what I was about to do, simple words spellling, sumple math. So my main question is I finally found a doctor that is willing to treat for Lyme Disease after hearing my whole story with or without positive test results, am I doing the right thing because I am so confused but I am also tired of hearing "that dont sound like it from your MS".? Sorry for the long post but any input would be great. Thank you for taking the time to read this.