Please welcome Mr. Black! Immunosuppressant = permanent damage?

Mr. Black wrote:

I have been bounced around and left to rot by some Dr.s. I have an issue with my first RA. He diagnosed me with RA based on clinical reasons. I just spent 5 years trying to get a Dr. GP to listen to me and get some help that this is not in my head. I do not want to take pain killers anymore! When I was Diangnosed with RA I was put on some imuno suppressing drugs. I was told after that if things did not improve we could try some newer more expensive drugs that would help. Just before the 5 months was up in November I stoped the meds they did not feel like they were doing the right things. Breathing was heavy laboured when I exerted myself, dizzy spells (thought I would pass out( and my heart rate would climb and dive and many palpatations. When I seen him in January (wife present) he tells me with out any futher tests to return to the meds or I will not qualify for the next round. So I did. The "side effects" returned, but worse till one night i had a seizure and ended up in a stoke unit. Two Cat scans, MRI, and countless blood work. You guessed it nothing. Ever since that episoide my health has continued to slip and faster. My spine since that episoide has deteriorated. Futhering my cause I looked into Lyme. It was like reading my own journal. I am pushing for this because I do not have time left, I feel that the toxic over load they just cant seem to identify is taking over. The symptoms have all become present all the time now. In resarching my cause I found some thing more than a little alarming. PEOPLE SUSPECTED OF LYME SHOULD NEVER EVER TAKE IMMUNO SUPPRESSING MEDICATION, MAY CAUSE PERMANENT DAMAGE. I am looking for anyone else who may have had something like this.