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Posted 7/27/2011 2:58 AM (GMT 0)
hello everyone... I havnt been on in a while casue I am trying to plan a wedding ughh wich I am trying not to stress about.

my question is can Lyme casue problems with major organs in our body? I had some blood work done a few weeks ago from my MD and I have to get re-tested, he said that my pancreas levels were high and I have to get more blood work to make sure nothing is wrong and to re check them. I had an ultra sound done about a month ago on all my organs in my stomach area and every thing looked fine.

I did expirence a hyohypocalcemia attack the week b4 I got blood work and also was ill with a bad stomach virus and ever since that my lyme has flared up.

I have a brace on my left wrist cause it feels sprained but not sure how I did it so i am taking it as a lyme flare. today I felt a vibrating feeling on my left side of my head, which i havnt felt in a few months. I am very tired, un-motivated and depressed, I am not happy with my job, and hate being there cause I have horrible migrains half way through the day casue of the fluorescen lights above me and being at a computer most of the day.

tha headaches are starting in interfair with my work. I also have been wearing sun glasses when there are no customers in the store just so i can try to prevent a migrain. now as I am writing this I am have anxiety which I havnt had in months.

I upped my celexa today and hoping that this will help me a bit. I have not seen my lyme dr in a while now. I started to take my doxy again and had a i think a herx on Sunday when I was at a kids bday party outside. I kept feeling like I was going to black out and had to go into the house a few times to lay down and get out of the heat. It wasnt sunny out and made sure I wasnt in the sun becuase of the doxy.  also latttly if I have any kind of a cake or something high in sugar my belly feels funny. like i feel to suggared up, I cant explain this.

I feel like a hyoerchondriac  ;(

thanks for listening jennie

Posted 7/27/2011 12:34 PM (GMT 0)
OMG. You have a lot going on. Make sure you get enough rest and sleep. It is crucial to feeling better. Yes I believe lyme can affect every organ in your body and your pancreas is not one you want to fool around with. Take extra special caution. I would get back to your lyme dr. You are not a hypochondriac. We all know the feeling over everything hurting at once and feeling horrible. hang in there.
Posted 7/27/2011 12:49 PM (GMT 0)
Geez, jennie,

Absolutely, you aren't a hyperchondriac! There are real things going on with you. This disease attacks everything including your spirit.

I second springsjean in suggesting that you get back to your Lyme doctor. Don't let the wedding take precedence over your health! No one wants to see that.

Can you get some help with the wedding? Probably not a good time to switch jobs, but maybe planning to do that will relieve some of your despondency.

Hope things turn around for you soon.
Posted 7/27/2011 6:35 PM (GMT 0)
I hope it doesn't feel like we are ganging up on you, but I wanted to express my concerns as well!! Like Achievinggrace and Springsjean, I would seriously encourage you to get in to see your LLMD right away! It really sounds like you may be experiencing a re-activation of your infection(s). It's possible that the stress you are under right now with planning a wedding (yours?) and with work may have brought this on.

As for the florescent lighting, do you wear glasses full time? There are special color tints that really help reduce the glare that comes from these types of lights. If you don't wear glasses full time or at all, maybe you should consider getting glasses just to deal with the lights/computer screen? It sure doesn't seem like a good time to be switching jobs if you can help it.

I also found that not only was I really sensitive to the glare, but to the humming (or high pitched whining) that those lights have as well.

Just some thoughts.
Posted 7/28/2011 1:37 AM (GMT 0)
hello thakl you all for replying to me. I had a tireing day at work. it started out good but by 2pm i was ready for a nap and by 4 i was nauses. I have my blood work tomorrow. i have to wait to go see my lyme dr next tuesday, but till then i am taking my doxy and taking it easy.

i cant change jobs cause i have only been there for 9 months and this job is much better than my last one. no heavy lifting and less stress. its just the headaches. I do wear glasses that i havnt wore in over a year cause i lost them but i only used them for distance i have always been sensitive with my eyes with lights but since the lyme its been worse. I didnt know that you can get glasses to filter out the light. i have to look into this casue instead of wearing sunglasses lol but it does help.

the wedding planning is for me, but its not till next october so i do have time, the stress was from finding a place for the reception and ceramony and racking my brain on this but I found both places and relieved but its also the money part that stresses me out and also i went to get my gown the other day with just my best friend and sister, and i was not planning on buying my dress and it just happened and I upset my older sister and mother and that made me sad and a bit stressed to. every one has different scedules and my mom works 3rd shift and my sister is the next state over. I dont have weekends off, i didnt mean to upset my mom :( then I email the picture of the dress to my sister and all she said was thats not what i expected you to buy but you look happy... WHAT thats all ughhh sorry to vent... then she didnt come out and say it but basicly told me I was fat the other day I wanted to punch her. I have been strugling with my health for over 3 years and she knows this. and every time i do start to work out i feel worse or get sick so i cant win, i am over 15 to 20 pounds.... so see stuff like this is whats been stressing me out or i guess bothering me and makes me sad. and sad that i was feeling better and now not....

my wrist is hurting to type so i will keep everyone informed of what happens. i am hoping i do not have anything wrong with my pancreas, wish me luck. today i went food shopping and when i was bringing the bags in to my second floor apartment i did feel a lil pressure on my upper left side under my ribs.

ever since i had my stomach virus i have had a flare up, this always happens to me. i get better with the lyme and them booom i get sick and the lyme comes creeping back. i just cant win...

thank you all again ;)
Posted 7/28/2011 1:45 PM (GMT 0)
miss crandberry, thank you for your wonderful words. and yes I am soooo happy to be getting married to my best friend and love of my life.

My sister is a twig, she always hs been cause she battles with her self image and thinks that supper skinny is better and she doesnt look healthy at all.

I am going to my llmd on Tuesday, till then i am on doxy and resting. just wish i could stay home from work but not an option today...

I have lyme brain Nuro so thats why i get so emotional and stressed :( there was a bug out side making a humming buzzing noice yesterday morrning when I was in the bathroom. It was amplified through my head and I thought the bug was in the bathroom lol. I went near the window and it got softer and it was indeed outside. but very strange episode. not sure if how my bathroom is set up that it made it echo through but it was like it was in my head ugggh....

thank you again... jennie

Posted 7/28/2011 3:27 PM (GMT 0)
I always find it hard to balance stress and Lyme symptoms. On one hand, when I am in a Lyme "moment", it is sometimes good for me to distract myself with work or something to keep from wrapping up in a knot with it. But, I can have a panic attack in a moment with an errant symptom. I just had one this morning while talking to a work colleague. I tried to just stay in the moment, BREATHE, and focus the best I could. Afterwards, it's best to try and not dwell on the negative aspects of the attack and just float with it. My doc did give me some Xanax to help with the anxiety attacks - I don't like meds so I do NOT take them often but, sometimes will to get me through a rough few hours. The dosage I use is ULTRA-small (0.25mg), about 5-10% which is typically prescribed for anxiety attacks! They take the edge off sometimes...but, again, I don't like to rely on drugs. It's funny how the doc will prescribe 40 of these to help get through a month and it will take me 2-3 months to use that supply!

These attacks have been a learned response from me from having to face these episodes throughout my entire life and not knowing what they were (until my Lyme diagnosis 6 weeks ago). So now, even though I know what they are, I have that response that has been ingrained over many years that hits me automatically now. There are cognitive and other strategies to work through them that I employ. One of them has a simple mneumonic: FAFL - Face, Accept, Float, Let time pass. Face the symptom/anxiety, accept it without emphasis, float along with it (ride it like in a boat) and just let time drift with it and it will go....I have been reading with GREAT INTEREST how the emotional response to Lyme and our underlying emotional traumas figure very much into our abilities to get better. Klinghardt states that is like 1/3 killing the organisms, 1/3 dealing with the toxins and the final 1/3 flushing out the emotional aspects. To make it somewhat more complicated, these need to be address in unison - in a balanced way!

Keep at it all!
Posted 7/29/2011 5:00 AM (GMT 0)
 

Jennie,

You're clearly having neurological symptoms if you're reacting that way to fluorescent lights and computers.  It's common for Autistics (another neurotoxin mediated illness) to be sensitive to fluorescent lights as well.  You might find some ideas for dealing with that in the Autism community.  I've found that many Lyme symptoms overlap like that with other neurotoxin mediated illnesses.  I'm not having issues with fluorescent lights yet, but I also know they contain mercury, which can be activated in the body when they're on and emmitting electromagnetic radiation. 

I am also having extreme sensitivity to the electromagnetic radiation from computers and cell phones.  There are some devices on the market that can help with this, but they're not 100% effective.  Most products are pasive, and have a wave in them that helps counter the damaging waves.  Some work as a sort of Fairaday's cage, scatering the damaging waves.  Some actively produce low frequency waves that counteract the damaging higher frequency waves.  All of this ventures into the areas of quantum physics and/or Eastern energy medicine.  Some of these products may or may not be compatible with one's religious beliefs. 

Going forward, as society continues to rely on wireless networks, cell towers, computers, microwaves, HDTVs, smart meters, and wireless pad chargers in roads for electric cars, there will be an increased need to address the damage from electromagnetic radiation.  There is evidence that it can damage DNA, in addition to causing headaches, chronic fatigue syndrone, adrenal issues, and sleep issues.  I wish I could tell you that there's some way to simply reverse the sensitivity, but I don't know of any.

 

Posted 7/30/2011 3:35 PM (GMT 0)
Lyme14 thank you for the education. I know i have always been really sensitve to flourescent lighting since I was in grade school, but it has gotten worse and I wish i could ease the amount at work. I sit infront of a computer all day, have flourecent lights all around me and even a HUMMM from my computer ughhh. So I am surounded my elctronics.

I will look into the autistic community and see if any sugestings with them. I go see my doctor on Tuesday, is there any type of medicine that you can go on to not trigur the headaches or eye drops cause they start in my eyes, thats were it hurts the most then slowly turns into a migrain. 

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