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I know's, Uhmm's, and finishing sentences...

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Posted 8/17/2011 9:41 PM (GMT 0)
does anyone have the problem of increasingly worse speech patterns?
i say umm so much, also i will say "i know" when people are talking to me about things i dont know but really, im just trying to confirm with what the person is saying and it aggravates the crap outta people, and myself.. i hate the way i talk with stutters and the way i accidentally finish sentences when people are talking, and get frustrated because i never talked like this before. it has been getting worse and worse. if i were to pay for the IV treatment, would i continue talking this way beyond my control or will i be able to cognate more clearly?
Posted 8/17/2011 9:59 PM (GMT 0)
With good, thorough treatment the neurological symptoms of Lyme are reversible (OOOH, I hate generalizations, they are always wrong... smilewinkgrin ). No, really, if you treat the Lyme you will get your thinking back -- it is a symptom, not a life sentence.

Speaking of sentences -- the other ones -- you are finishing people's sentences in an attempt to concentrate on what they are saying. Same with the "you knows". Also, you are using umm as a way to let your brain catch up to what you are saying. These are all really good coping mechanisms even if they are annoying to the people you are trying to talk to. Hey, it's a lot less disturbing than Torrette's syndrome!!!!

I don't think it is for us to tell you which treatment you should pursue -- what we can do is encourage you to continue some treatment and support you on your path to fully recovery.

You don't have to live like this. tongue
Posted 8/17/2011 11:13 PM (GMT 0)
"Hello," Boy can I relate to this posting. I was just talking about this to my Psych Dr. Monday. I have been getting definitely worse with being in the middle of a conversation & completely forget about what I was even talking about. I mean the subject not just what I was going to say. It does worry me more & more. I also say, "ya know" continuously. My mom, will interrupt me now and say,"no, I don't know." I have gotten better as my family was letting me know every time I was saying it.

Wishing everyone here a great day :)
Your Healingwell Friend,
Serenitee

ileostomy May 2011, pelvic/bladder trauma & dysfunction, 2-retoceles, 2-bladder lifts, vaginal vault lift following my colon tearing thru vaginal wall & colon & bladder fell out of vagina. 15-surgeries over the years & should be having another one coming up to change my temp. ileostomy to permanent.

Bipolar 2, Borderline, Anxiety/Panic Disorder, Ptsd
Posted 8/18/2011 12:24 AM (GMT 0)
This is a part of our illness.

Anyone remember those commercials - "this is your brain, this is your brain on drugs"?? I used to tell my family "this is our brains on Lyme". - very tongue-in-cheek!!!

I still deal with this when I herx or I am really, really exhausted. My family was and still is very understanding and will help me when I am searching for a word or have forgotten my place in a conversation. That helped me to stress less and not do it quite so often.

I do have to agree with Achievinggrace - it really does get better as you heal.
Posted 8/18/2011 2:53 AM (GMT 0)
ditto what grace and traveler said. It was actually the first (and so far, only!) symptom that improved with treatment. So hang in there!
Posted 8/18/2011 3:56 AM (GMT 0)
thank you all
Posted 8/18/2011 5:40 AM (GMT 0)
Yes... Lyme has turned me socially awkward as well.

Exactly the same as you... I say "ummm" to give my brain a second to catch up. I say "yeah!" when people are talking even if I'm clueless. And I forget topics mid convo.

It's been discouraging. All my other symptoms have cleared up except my brain. I used to be a quick thinker and always had cool stuff to say.

At least it's good to see I'm not alone.
Posted 8/18/2011 12:09 PM (GMT 0)
Though I'm well past being the complete bumbling speech idiot I once was and do feel like my old 'smart' self again.....

......I now find I absolutely cannot tolerate or even engage in small talk.

Though I've never been a fan of small talk--- preferring medium to large talk (Larry David style, lol) --- I was very good at it.   But NOW small talk is totally impossible ! 

I go right back to being a dummy....can't pay attention....don't care....I bumble along like a moron and wish the small talker I'm talking to would just go away and leave me alone! LOL  

Where is that island Traveler mentioned in another thread?  yeah

I want to go there with you guys, so we can just be silent or walk away mid-sentence or not talk at all......and still be genius.  smilewinkgrin

 

Posted 8/18/2011 12:37 PM (GMT 0)
I too have been there when the wrong words come out like "thank you" instead of "your welcome" or vice versus. My husband who was recently diagnosed was stumbling to get words out so bad that I would have to talk for him wehn we went to drs. apts. He has already seen improvement though. It is just amazing how the brain works (or doesn't).
Posted 8/18/2011 2:01 PM (GMT 0)
I'm tellin' ya Cat, that island would be a beautiful thing!! turn With it filled with just us 'Lymies' ( a very affectionate term I promise!!), there would not have to be any apologies for stumbling over our words!! nono No one would have to explain why they don't feel good, and when herxing bad enough, we could have a pact to take care of each other.... and the possibilities go on!!!! smilewinkgrin
Posted 8/18/2011 2:13 PM (GMT 0)

springsjean said...
I too have been there when the wrong words come out like "thank you" instead of "your welcome" or vice versus. My husband who was recently diagnosed was stumbling to get words out so bad that I would have to talk for him wehn we went to drs. apts. He has already seen improvement though. It is just amazing how the brain works (or doesn't).

i just got it at such a young age and never knew what it was, my mother was notoriously talking for me because of stammers and talking jumbled. after a decade of not knowing why my mental state was declining and i had a short fuse with getting frustrated with myself. i find myself apologizing to everyone i slip-up talking to. which is nearly everyone.
the hardest part is to refrain from saying im sick as an answer to that, i try to shrug it off, but its eating at me for sure.
i see a soc-cog-behave therapist who works only with talking and helping to accept the place im in without fear and judgement. its just unnatural to think of this kind of pain as a neutral feeling, but the point is you can change the way you use your mind. and im training mine to try and live with this and try to be an active, successful, healthy, and balanced person.

i have good news though!! but always comes with bad...

the herbal remedies im using have made my life 3x easier/more energetic, and i have gained a good deal of weight!!! i was 120 at 6'1" and in a matter of months im starting to fill out at age 21. the reason i find this exciting is because i was so emaciated i had to try to make it to the emergency room (before i knew i had co-infect), and they sent me home because they couldnt see a problem with me...
i lost everything (house,job,college) and now im starting to show signs of recovery on the outside haha
bad news is, i have terribly low immune functions and have just caught another cold/flu.. may bring my weight down again.

again, thank you all
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